Insulin neuritis

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Insulin neuritis


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Old 08-30-2010, 20:47   #1
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Thumbs down Insulin neuritis

Hi, I have ben a type one diabetic for 40 years and have done pretty well. The only thing it has stopped me doing was joining the Army and piloting an aeroplane!

But my daughter has just (3 months) been diagnosed as Type 1 diabetic.

She is 17 and her blood tests are quite good, ranging from 5.4 to 8.7.

Over the last 6 weeks or so she has started to suffer with a constant tingling feeling on the underside of her feet. This has now spread to the whole of her foot. She has had nerve conduction tests on her feet and this has substantiated the diagnosis of Insulin Neuritis. This is very different from Diabetic Neuropathy, and the 2 are often seen as one issue!

This is keeping her awake at nights. From our research we have found that this condition can be brought about by her blood sugar levels being brought down too fast after diagnosis.

Has anyone else come across this and any ideas on what to do or how to help.

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Old 08-30-2010, 22:43   #2
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Hello Chris . . . I honestly don't have a clue about this problem, but I'm very pleased that you've joined us because there are very wise & knowledgeable members here who have great experience, and are happy to share it.

And when your daughter reaches age 18, I hope she'll want to join us too. Tell her we're pulling for her already.

Take care & visit us often.

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Old 08-31-2010, 05:56   #3
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Quote:
Originally Posted by creekmoorchris View Post
Hi, I have ben a type one diabetic for 40 years and have done pretty well. The only thing it has stopped me doing was joining the Army and piloting an aeroplane!

But my daughter has just (3 months) been diagnosed as Type 1 diabetic.

She is 17 and her blood tests are quite good, ranging from 5.4 to 8.7.

Over the last 6 weeks or so she has started to suffer with a constant tingling feeling on the underside of her feet. This has now spread to the whole of her foot. She has had nerve conduction tests on her feet and this has substantiated the diagnosis of Insulin Neuritis. This is very different from Diabetic Neuropathy, and the 2 are often seen as one issue!

This is keeping her awake at nights. From our research we have found that this condition can be brought about by her blood sugar levels being brought down too fast after diagnosis.

Has anyone else come across this and any ideas on what to do or how to help.
Hello, I have never heard of Insulin Neuritis. I do understand diabetic neuropathy, I have it in both feet and my left hand. I tried to do a web search of Insulin Neuritis and there is not much written. Good luck and I hope your daughter can find some help with her pain.

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Old 09-04-2010, 02:47   #4
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Quote:
Originally Posted by creekmoorchris View Post
Hi, I have ben a type one diabetic for 40 years and have done pretty well. The only thing it has stopped me doing was joining the Army and piloting an aeroplane!


But my daughter has just (3 months) been diagnosed as Type 1 diabetic.

She is 17 and her blood tests are quite good, ranging from 5.4 to 8.7.

Over the last 6 weeks or so she has started to suffer with a constant tingling feeling on the underside of her feet. This has now spread to the whole of her foot. She has had nerve conduction tests on her feet and this has substantiated the diagnosis of Insulin Neuritis. This is very different from Diabetic Neuropathy, and the 2 are often seen as one issue!

This is keeping her awake at nights. From our research we have found that this condition can be brought about by her blood sugar levels being brought down too fast after diagnosis.

Has anyone else come across this and any ideas on what to do or how to help.
I am sorry to hear about your daughter's diagnosis. I have never heard of insulin neuritis but almost sounds like an allergic reaction to the insulin. What insulins is your daughter using? Maybe adjusting her insulin ratios to allow for higher numbers might help, but I don't know.
I did find this link however. Acute Painful Neuropathy (Insulin Neuritis) in a Boy Following Rapid Glycemic Control for Type 1 Diabetes Mellitus ? J Child Neurol
which states a case of a boy having the same problem and what was done.
I hope your daughter feels better soon. Neuropathy is quite painful so I am sending your daughter a lot of hugs.

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Old 12-03-2010, 01:01   #5
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Default Insulin Neuritis Sufferer

Quote:
Originally Posted by creekmoorchris View Post
Hi, I have ben a type one diabetic for 40 years and have done pretty well. The only thing it has stopped me doing was joining the Army and piloting an aeroplane!

But my daughter has just (3 months) been diagnosed as Type 1 diabetic.

She is 17 and her blood tests are quite good, ranging from 5.4 to 8.7.

Over the last 6 weeks or so she has started to suffer with a constant tingling feeling on the underside of her feet. This has now spread to the whole of her foot. She has had nerve conduction tests on her feet and this has substantiated the diagnosis of Insulin Neuritis. This is very different from Diabetic Neuropathy, and the 2 are often seen as one issue!

This is keeping her awake at nights. From our research we have found that this condition can be brought about by her blood sugar levels being brought down too fast after diagnosis.

Has anyone else come across this and any ideas on what to do or how to help.

Dear Chris,

I suffer from this painful condition. I was newly diagnosed at age 22 and almost immediately got my sugar under control. My first A1C concluded my previous levels to have been in the range of 500-600. As a result of bringing the levels down so rapidly my pain arrived and changed my life drastically. I have been on several extremely potent pain medications in the 4 years since then but my pain persists. I no longer take the same amount of medicine, but my pain follows me all the time. You MUST find a neurologist with knowledge of the disease because others will NOT know how to accordingly treat it. This will take considerable time to get used to. I had just begun my final year in university and had to withdraw from school on medical leave. I finally completed my degree two years later, but i wish I had given myself more time to understand and cope with the pain. The most important thing is how your daughter feels. At her young age there must be myriad things she hopes to do; the last one would be to stay at home with foot pain. I cannot stress that learning to live with the pain takes time and that it should come before anything else. In addition to the medicine, the only natural thing that ever really helped to alleviate it was my mother rubbing my feet. I should say squeezing them as opposed to rubbing. I liken it to a dog chewing on a bone to put pressure on its painful teeth. Also, the "isqueez foot massager" (I purchased it form American retailer Brookstone) is something that mimics the previous action and I wish I had bought it the day I was diagnosed. It makes all the difference in the world to press a button and be relieved. It is expensive but worth every penny to me and can also be purchased second hand on craigslist much cheaper. I hope this post reaches you because this is a difficult pain to live with, made worse by the lack of awareness. Please contact me with any questions as I would do anything in my ability to help someone with the same problem.

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Old 12-03-2010, 01:03   #6
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Chris, I forgot to include a way to reach me. Just respond in this thread. I live in the US. My name is Nick. I wish your daughter the very best and please do not hesitate to call if she has any question, no matter how seemingly insignificant.
Regards,
Nick


Last edited by Shanny; 12-03-2010 at 03:39. Reason: Removed phone number
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Old 12-03-2010, 03:04   #7
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I have some of the same symptoms....and my a1c dropped from 11.4 to 5.1 in 3 months with the help of insulin. I'm on gabapentin for the pain which helps me get through the day but doesn't really help me at night. I'm up every couple of hours. The one thing I have found that helps with the pain in soaking them in cool water....and some times massaging them.

I hope your daughter finds relief.

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Old 04-20-2011, 07:39   #8
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Hi, I suffered from this (Acute Painful Neuropathy) in my early 20's after rapid stabilisation of my BSLs. The pain was in my legs, lower back, abdomen and hips. It took 3 months, 4 endocrinologists, 3 neurologists, multiple other specialists and loss of a third of my body weight before I got a diagnosis. So just be aware that not all doctors are familiar with this subtype of diabetic neuropathy.

The good news is that in most cases (not all) it will resolve itself. Mine was greatly improved after about 8 months. But getting sufficient relief from the severe pain can be a struggle with the various health professionals.

I went through the full gambit of medications; the anticonvulsants (gabapentin/lyrica), tricyclic antidepressents, Mexitil etc etc. But I really don't know how I would have coped if I hadn't finally found a pain doctor who was willing to prescribe me opoids as well. They were understandably very cautious about doing so due to my age and perceived "chronic" nature of diabetic neuropathy. But my argument was always that this was a severe and acute form of neuropathy and so I really pushed hard to get sufficient pain relief. I also found Mersyndol very good at night as it reduced the number of times I was waking up with the pain due to it's sedative effects. It was difficult to come off the opoids after the 8 mths, but (for me) it was worth it. Obviously if the non-addictive medications give enough relief it's better to stick with those.

Anyway, hope her pain has improved since you posted.

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Old 04-25-2011, 19:34   #9
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I am fascinated by this discussion! After having diabetes for 25 years, 3 years ago I got an insulin pump and my A1C levels dropped DRASTICALLY. And FAST! Ever since I have had the weirdest symptom. (I do suffer from the typical neuropathy as well). I am wondering if this could explain it.
It is a prickly heat sensation but it moves around in my body. There is NO area it doesn't go, although usually sticks to one or two areas at a time. It (typically) only happens after I lay down at night. The docs keep saying they don't know what it is and give me a sleeping pill to get relief.
Does this sound at all like what you are talking about? I've tried to think of everything from what I am eating to drug reactions but no one can explain it.
Would love more insight if anyone has it.
Thanks!
This Forum is helping already and I just signed up last night!

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Old 07-18-2011, 15:25   #10
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Quote:
Originally Posted by creekmoorchris View Post
Hi, I have ben a type one diabetic for 40 years and have done pretty well. The only thing it has stopped me doing was joining the Army and piloting an aeroplane!

But my daughter has just (3 months) been diagnosed as Type 1 diabetic.

She is 17 and her blood tests are quite good, ranging from 5.4 to 8.7.

Over the last 6 weeks or so she has started to suffer with a constant tingling feeling on the underside of her feet. This has now spread to the whole of her foot. She has had nerve conduction tests on her feet and this has substantiated the diagnosis of Insulin Neuritis. This is very different from Diabetic Neuropathy, and the 2 are often seen as one issue!

This is keeping her awake at nights. From our research we have found that this condition can be brought about by her blood sugar levels being brought down too fast after diagnosis.

Has anyone else come across this and any ideas on what to do or how to help.
Hello, I just got diagnosed with this condition. I have been diabetic for eight years, but I was unable to get good control of my BG. About two years ago I lost a lot of weight and feeling a lot better, so I thought I had a better control of my BG. During the past year, between changing doctors, not checking my BG regularly and having a false sense of well being, my condition got worse. When I finally found a doctor, my A1C was 15 and he immediately started me on insulin. After starting insulin, two weeks later I started feeling a burning sensation on the bottom of my right feet that woke me from my sleep. After that the pain got progressively worse, that I felt also stabbing pain on my legs, soreness along with the tingling burning sensation on both of my feets.

It took one foot doctor, two endocronologist, three neurologist and two and half months later for me to get the proper diagnosis - Painful diabetic neuropathy, insulin neuritis due to the sudden drop of my BG. It was the last neurologist that properly diagnose the condition and he told me that because my BG dropped from 15 to 7 due to the insulin therapy, I developed the painful neuropathy. He also mentioned that there's no immediate cure, but only maintaining my BG under control, in time the pain should go away (six to twelve months). He gave me Lyrica to cope with the pain, but it has not alleviated my pain. Fir me the pain is so intense, that it does not let me sleep (average sleep is two-three hours), making it very difficult to function during the day, so much so that I had to take a medical leave from work.

Currently I started acupunture treatment (my second session) and I will let you all know how that's helping me.

The biggest help you can give her is emotional support, since the pain can be overwhelming, and help her maintain her BG under control, not only through insulin therapy but also through her diet (I learned that the hard way!!).

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