Were any of you type II women also diagnosed with PCOS?

Go Back   The Diabetes Forum Support Community For Diabetics Online > Diabetes Forum Community > Diabetes Symptoms

Diabetes Symptoms Are you worried you are a diabetic? Are you diabetic and concerned about any new or different symptoms? Are you looking for a diabetes test? Please feel free to post your questions, concerns or related information in our Diabetes Symptoms section. See if any other members are going through the same issues or have already been through them and can offer you some valuable experience and advice.


Like Tree2Likes

Were any of you type II women also diagnosed with PCOS?


Closed Thread
 
Shared Thread Thread Tools
Old 03-05-2012, 18:24   #1
Senior Member
 
annsrum's Avatar
 
Join Date: Oct 2011
Location: Oklahoma USA
Posts: 206

Member Type
Type 2
Diagnosed in 2011

90 likes received
118 likes given
Default Were any of you type II women also diagnosed with PCOS?

My endocrinologist said that she feels that my type II diabetes were partially "caused" by another condition called PCOS (I think by caused she meant genetic predisposition). I am not fully versed on PCOS as of yet, but it is a condition that tends to run in families and that is generally first noticed at puberty (although may not appear until much later) by late onset of puberty or perhaps irregular or no cycle.

People with PCOS are generally insulin resistant even at that age and it effects the functioning of their ovaries (which are highly senstive) which can result in cysts on the ovaries, irregular or no cycle, slow down of conversion of androgen to estrogen (leaving excess androgen and potential side effects from this) as well as potentially causing infertility once a woman is old enough to want to get pregnant. Left untreated women with PCOS are much more likely to develop type II diabetes, heart issues, and some cancers.

Birth control will mask symptoms of PCOS and therefore a person may not be aware they have it until they go off birth control and try to have a baby.

What it doesn't mask or help with is the insulin resistance. If you don't know you have insulin resistance at such a young age I am guessing you are not going to know to eat low carb etc (like me). Dr.'s do not generally go looking for PCOS unless you complain about other symptoms. And they definitely didn't look for it back when I was younger as my sister-in-law who also has it was just told to take birth control at age 15 when she had no cycle.

I did not have cysts, but my female dr. said they do not go by that alone. They asked for a test to be run on the amount of insulin my body was producing. She said this was high and therefore they considered me to have PCOS (along with other factors.. you have to half at least three I think).

When I told my mother about all of this (she is not close to her siblings), she thought for a moment and said that two of my three aunts had irregular cycles and some of the other PCOS symptoms. (would have been nice to know).

Anyway, women who are diagnosed with PCOS and are not yet a type II are given very similar instructions as a diabetic on how to control it. My sister-in-law is on about 750 of Metformin XR which helped her to have a bio kid.

I am just curious if any women on this forum who have type II were also diagnosed with PCOS or suspect they might have it and it is undiagnosed (or know of others who have it and then got type II)?

annsrum is offline  
Old 03-05-2012, 18:35   #2
Senior Member
 
Join Date: Dec 2009
Location: Kansas City, MO USA
Posts: 5,911

Member Type
Type 1
Diagnosed in 2009 as Type 1.5

5194 likes received
9195 likes given
Default

I never had irregular cycles. I never had cysts, either. But, I was hirsute ... and per one Gyn friend, should have been evaluated for PCOS.

I am now post-meno so no need ... but I also have read that all T2D is related to a fundamental problem with Sex Hormone Binding Globulin, SHBG, which is the root cause of PCOS. No idea, but one more thing to research ...

annsrum likes this.
foxl is offline  
Old 03-05-2012, 18:38   #3
Senior Member
 
Join Date: Apr 2011
Location: United States
Posts: 7,932

Member Type
Type Undiagnosed
Diagnosed in 2010

4743 likes received
9872 likes given
Default

I had it (or have it?) and it was not connected at the time to anything other than cysts and no periods. I had my ovaries wedged and then did manage to get pregnant, but still had hormonal difficulties. I didn't have a name for it until my endo put things together for me last year.

I was/and still am hirsute even this many years after menopause.

I hope this helps,

annsrum likes this.
__________________

View Patdart's full Diabetes Forum profile here.

Last edited by Patdart; 03-05-2012 at 18:41.
Patdart is online now  
Old 03-05-2012, 19:10   #4
Senior Member
 
annsrum's Avatar
 
Join Date: Oct 2011
Location: Oklahoma USA
Posts: 206

Member Type
Type 2
Diagnosed in 2011

90 likes received
118 likes given
Default

Was just curious if anyone else experienced what I did. We are thinking to have a child as soon as my bg's are in a good range and was researching what ever else might need to be addressed prior.

Not everyone gets all symptoms or the same combination of symptoms. I'm not sure I still fully understand it.

But, if what I am reading sounds correct, if I have a daughter I need to keep an eye out for PCOS since early detection and treatment can prevent most if not all side effects such as hirsutism and also potentially help stop progression to type II.

It appears to run very strongly in my family. My endo said this predisposition and other genetic factors from my father mixed all together made me very predisposed to develop type II.

annsrum is offline  
Old 03-05-2012, 19:58   #5
Senior Member
 
Join Date: Jun 2009
Location: North East Ohio, USA
Posts: 4,368

Member Type
Type 2
Diagnosed in 2007

1773 likes received
1507 likes given
Default

A woman on another forum who was PCOS and a Type 2 just had her 3rd baby. I suspect I was Insulin Resistant well before I was dx'd with D but never really had the PCOS symptoms. Of course back then they didn't do a lot of tests for it either. I had no problems getting pregnant, so I probably didn't have it.

__________________
diagnosed Feb 2007
metformin-2550
low carb organic diet
3 T of Coconut Oil daily
moderate exercise- mostly walking 3-5 miles, tennis - 4 hours per week, weight training, hiking on weekends and vacations 7-10 miles

HbA1c 5.3 3/11
HbA1c 6.1 5/12

Age 62
jwags is offline  
Old 03-09-2012, 01:29   #6
Senior Member
 
Cats&Plants's Avatar
 
Join Date: Jan 2012
Location: Canada
Posts: 121

Member Type
Type 2
Diagnosed in 2012

125 likes received
81 likes given
Default

I have PCOS, have had it for years. I think I was about 16 when I noticed something wasn't quite right. Doctor told me my androgen levels were out and put me on birth control. Didn't think much of it until I went off the pills - was single and had no need for them, and I didn't get a cycle for two years.

A few years later I met my future husband and we got married. Of course we wanted children so I went off birth control again and nothing happened for over a year. Went to the doctor and she sent me to a "specialist" who told me I have PCOS and was insulin resistant. The first thing he said to me? Oh you're a Syndrome X. No one explained to me what that meant. Met with a dietician who showed me how to eat, lots of carbs and veggies, low fat. Of course, nothing happened and I gained weight. After six months of no progress he wanted to do gastric bypass. I told him no, he wasn't cutting my body apart and I never went back to him.

Four years ago, I went back to my doctor and she sent me to a GYN/OB who put me on Metformin, which did semi-regulate my cycles. Over the next 18 months, I had an HSG to check my tubes, multiple ultrasounds, then finally did three rounds of clomid to no avail. The next step was IVF and I just don't have that kind of cash ($9000 per try, with only a 30% chance of it taking). So we gave up on having children, an incredibly painful decision. If only I had known then what I know now.

Now I didn't do the research, I took what they told me as truth. Eat healthy - but they never said a dang thing about cutting the carbs. Now that I have discovered the wonderful thing called forums, I have discovered many ways to restore my fertility. I am 35 so I still have a little time. I am not getting my hopes up, it is too devastating when it fails and I can't do that again. It's hard enough pretending to be happy for my friends and coworkers when they get pregnant easily and have lovely babies.

There is some research about D-chiro-inositol and I took it for two weeks, it does seem to work, for me at least. I just have to find a cheap supplier as it is very expensive. Now that I am diabetic, I am hoping my diet change and lost weight will return my girly cycles. I just had an ultrasound in January and there are cysts present. That and obesity, insulin resistance and lack of cycles confirms the PCOS once again.

It took my mom 12 years to have me after my sister was born. One of her sisters never had children (although I don't know why). My mother died of pancreatic cancer, so who knows. Everyone I could ask questions are gone now so it's just a guess. My sister (who is just as heavy as I am, if not more so) has two children and had no fertility issues. None of my cousins seem to have any problems, they all have at least one kid. I am the only one who doesn't have a child. It's horrible explaining repeatedly to my family (and his too) why there are no babies.

Ok anyways, I've rambled about this way too long lol.

__________________
Dx T2 01/2012
Age 36
A1C - 5.3
Metformin 1500 mg/day
LC/HF
edited April 14, 2013
Cats&Plants is offline  
Old 03-09-2012, 04:30   #7
Senior Member
 
annsrum's Avatar
 
Join Date: Oct 2011
Location: Oklahoma USA
Posts: 206

Member Type
Type 2
Diagnosed in 2011

90 likes received
118 likes given
Default

Quote:
Originally Posted by Cats&Plants View Post
I have PCOS, have had it for years. I think I was about 16 when I noticed something wasn't quite right. Doctor told me my androgen levels were out and put me on birth control. Didn't think much of it until I went off the pills - was single and had no need for them, and I didn't get a cycle for two years.

A few years later I met my future husband and we got married. Of course we wanted children so I went off birth control again and nothing happened for over a year. Went to the doctor and she sent me to a "specialist" who told me I have PCOS and was insulin resistant. The first thing he said to me? Oh you're a Syndrome X. No one explained to me what that meant. Met with a dietician who showed me how to eat, lots of carbs and veggies, low fat. Of course, nothing happened and I gained weight. After six months of no progress he wanted to do gastric bypass. I told him no, he wasn't cutting my body apart and I never went back to him.

Four years ago, I went back to my doctor and she sent me to a GYN/OB who put me on Metformin, which did semi-regulate my cycles. Over the next 18 months, I had an HSG to check my tubes, multiple ultrasounds, then finally did three rounds of clomid to no avail. The next step was IVF and I just don't have that kind of cash ($9000 per try, with only a 30% chance of it taking). So we gave up on having children, an incredibly painful decision. If only I had known then what I know now.

Now I didn't do the research, I took what they told me as truth. Eat healthy - but they never said a dang thing about cutting the carbs. Now that I have discovered the wonderful thing called forums, I have discovered many ways to restore my fertility. I am 35 so I still have a little time. I am not getting my hopes up, it is too devastating when it fails and I can't do that again. It's hard enough pretending to be happy for my friends and coworkers when they get pregnant easily and have lovely babies.

There is some research about D-chiro-inositol and I took it for two weeks, it does seem to work, for me at least. I just have to find a cheap supplier as it is very expensive. Now that I am diabetic, I am hoping my diet change and lost weight will return my girly cycles. I just had an ultrasound in January and there are cysts present. That and obesity, insulin resistance and lack of cycles confirms the PCOS once again.

It took my mom 12 years to have me after my sister was born. One of her sisters never had children (although I don't know why). My mother died of pancreatic cancer, so who knows. Everyone I could ask questions are gone now so it's just a guess. My sister (who is just as heavy as I am, if not more so) has two children and had no fertility issues. None of my cousins seem to have any problems, they all have at least one kid. I am the only one who doesn't have a child. It's horrible explaining repeatedly to my family (and his too) why there are no babies.

Ok anyways, I've rambled about this way too long lol.
I'm 36 (so I'm older than you) and just got to a point where I was in a place to want to have kids. I have no idea if it will work. I always had very very irregular cycles through the years until 30 (no idea why 30 changed things.. ) and assumed that having kids would not be easy and likely impossible. Not sure why I jumped to that conclusion without talking to a doctor. Since I was too shy to talk to guys I figured that I would just adopt at some point all on my own. Then I met my hubby about 5 years ago. So things kind of changed.

Since I always just kind of used the adoption thought as a protection bubble I had not really allowed myself to think too much about a bio child. Since we actually have begun the steps to head the direction of a bio child (have to get my sugar controlled first), it has kind of changed my mindset a bit. Now when I mess up and eat something high carb I feel like, well there just went who knows how many more weeks or months due to my lack of control and my last good egg probably just went byebye . Ugh. Then I have to tell my self to chill.

I also kind of get a bit emotional fluctuating between wanting the family members to leave me alone about it to, nobody cares and no body is supportive. Ugh feels irritating as up until recently I always felt more guy like in my emotions until they started messing with my hormones levels (my androgens were high). LOL I'm like.. eww I sound like a weirdo hormonal female now! Guess I don't know what "normal" feels like.

My sister-in-law also has PCOS and is the same age as I am and her biological son just turned 1. She had tried for at least 10 years prior to her PCOS diagnosis. Being put on Metformin she got pregnant and didn't even realize it for 5 months. She just thought it was her usual problems with her cycle. then her stomach was growing and she thought she had a tumor. she also has 3 adopted children one of which she adopted while she was pregnant and didn't know it. So the two youngest are only about 6 months apart. So I have seen someone in our age bracket with PCOS have a baby.

annsrum is offline  
Old 03-09-2012, 05:25   #8
Senior Member
 
Cats&Plants's Avatar
 
Join Date: Jan 2012
Location: Canada
Posts: 121

Member Type
Type 2
Diagnosed in 2012

125 likes received
81 likes given
Default

It is definitely possible, I used to be on a forum for PCOS as well and there are lots of success stories. I just didn't know enough at the time, but now I am armed with information and maybe, just maybe the baby dust will finally settle on me. My hubby and I aren't against adoption, he himself is adopted, but we would like a biological child if possible.

__________________
Dx T2 01/2012
Age 36
A1C - 5.3
Metformin 1500 mg/day
LC/HF
edited April 14, 2013
Cats&Plants is offline  
Old 03-09-2012, 13:05   #9
Senior Member
 
annsrum's Avatar
 
Join Date: Oct 2011
Location: Oklahoma USA
Posts: 206

Member Type
Type 2
Diagnosed in 2011

90 likes received
118 likes given
Default

Quote:
Originally Posted by Cats&Plants View Post
It is definitely possible, I used to be on a forum for PCOS as well and there are lots of success stories. I just didn't know enough at the time, but now I am armed with information and maybe, just maybe the baby dust will finally settle on me. My hubby and I aren't against adoption, he himself is adopted, but we would like a biological child if possible.
Well it is nice to find someone who is experiencing similar things as me (although I wish no one had to experience it). I found people with PCOS but not diabetes and people with diabetes but not PCOS.

Have you got to a point of having good a1c yet? I am struggling with sticking to low carb. Some days I have difficult time figuring out what to eat and/or what I do have in the house sounds revolting. Or my hubby wants something that is not low carb and eats it in front of me and I cave in and eat a little! Some days I just would rather not eat! And a lot of the time I am too tired feeling for exercise. I am pushing myself to do it, but it feels like torture!

annsrum is offline  
Old 03-09-2012, 14:01   #10
Senior Member
 
Cats&Plants's Avatar
 
Join Date: Jan 2012
Location: Canada
Posts: 121

Member Type
Type 2
Diagnosed in 2012

125 likes received
81 likes given
Default

Quote:
Originally Posted by annsrum View Post
Well it is nice to find someone who is experiencing similar things as me (although I wish no one had to experience it). I found people with PCOS but not diabetes and people with diabetes but not PCOS.

Have you got to a point of having good a1c yet? I am struggling with sticking to low carb. Some days I have difficult time figuring out what to eat and/or what I do have in the house sound revolting. Or my hubby wants something that is not low carb and eats it in front of me and I cave in and eat a little! Some days I just would rather not eat! And a lot of the time I am too tired feeling for exercise. I am pushing myself to do it, but it feels like torture!
It is nice to have someone to talk to about this, normal people don't understand. Not that I wish this on anyone!

I struggle with the low carb a bit too, I've just been diagnosed in the last couple of months, so I haven't had my second A1c yet. It was 8, but based on my meter readings, as long as things don't change, it should be much lower, hopefully in the 6 or lower range.

I keep lots of romaine and veggies around, lots of quick meat for snacks (bacon, sausages etc). It is frustrating when hubby eats chips/chocolate in front of me, but I keep some 75% dark chocolate around for those chocolate cravings. I have lost 15 pounds since Feb 1 so I must be doing something right . I find the less carbs I eat, the less I want them. As for the exercise, that's not going well, I just haven't figured out a good way to get that into my schedule. It'll come. Spring is almost here and I have more energy in the spring and summer.

Good luck, feel free to message me when you just need a little encouragement!

__________________
Dx T2 01/2012
Age 36
A1C - 5.3
Metformin 1500 mg/day
LC/HF
edited April 14, 2013
Cats&Plants is offline  
Closed Thread

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Just Diagnosed With Type 2 DezDye Introduce Yourself 4 01-12-2012 08:11
Newly Diagnosed Type II annsrum Introduce Yourself 7 10-12-2011 19:07
Diabetes and PCOS Sketch'd Diabetes Forum Lounge 2 06-26-2011 09:57
Just diagnosed with type 2, looking for advice Twan013 Introduce Yourself 14 05-22-2011 16:00
New Member seeking advise on diet and pcos Prema22 Introduce Yourself 4 04-06-2011 21:43

LEGAL NOTICE
By using this Website, you agree to abide by our Terms and Conditions (the "Terms"). This notice does not replace our Terms, which you must read in full as they contain important information. You must not post any defamatory, unlawful or undesirable content, or any content copied from a third party, on the Website. You must not copy material from the Website except in accordance with the Terms. This Website gives users an opportunity to share information only and is not intended to contain any advice which you should rely upon. It does not replace the need to take professional or other advice. We have no liability to you or any other person in respect of any content on this Website.


All times are GMT +1. The time now is 01:09.




Powered by vBulletin®
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO