Serious Complications - Page 2

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Serious Complications - Page 2


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Old 01-28-2014, 15:33   #11
 
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Quote:
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Did you happen to follow hans' thread when he had borreliosis (lyme disease) - his legs were paralyzed? Are your docs absolutely unequivocally certain of their diagnosis?
You know, I read a short article about Diabetic Amyotrophy last night and it said usually older type 2 (more rarely type 1) men get it, so I was kinda wondering myself since you are only 27.

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Old 01-28-2014, 20:36   #12
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You may have already found this but I found this article to provide quite a lot of information. Diabetic Proximal Neuropathy: Getting At the Root of the Pro... : Neurology Today

Hoping you are on the road to improvement soon.

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Old 01-29-2014, 03:17   #13
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Wicked complications, Justin . . . so sorry.

Did you happen to follow hans' thread when he had borreliosis (lyme disease) - his legs were paralyzed? Are your docs absolutely unequivocally certain of their diagnosis?
Oh yeah...EMG came back after neuro eval.

45% reduced neural capacity in lower extremities. Not sure if permanent. Need endocrine eval to determine long term effective treatment for closer BGL control to evaluate effective restoration of neural function in lower extremities if possible. At present assumption, neural capacity reduction considered plausibly permanent.

That is the exact verbage of the report.

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Old 01-29-2014, 03:38   #14
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In terms of Tight BGL control. My average today was 141.2 mg/dl.

Estimated HbA1c chart indicates I will be at a 6.8 if I keep this up which will be BETTER than 13.

I consider greater than 150 to be my high level.

My current insulin intake is down by 60 units on Levemir and down by 10 units on Novolog for mealtime. But I take Metformin and Fenugreek to help my glucose levels.

Fenugreek is sorta like a herbal metformin. I take it whenever I take my Metformin and I've seen better control over my levels.

Of course I also portion out my meals better so that helps overall.
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Old 01-29-2014, 04:53   #15
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Was wondering how you were doing, Justin ... had hoped for better. Very sorry about your complications. Glad you're back with us, though!

Best Thoughts winging your way ... please keep us posted!

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Old 01-29-2014, 08:25   #16
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You're pretty young for all this, Justin!

On the brighter side, I personally know a guy who was hospitalized no less than three times with complications leaving him unable to move except in great, seizure-like spasms. All three times docs told him to expect a nursing facility and all three times he rebounded, each faster than the last, much to the astonishment of the medical personnel involved. Similar DX.

Do all you can on the glucose side, but don't forget to pray and man-up whenever possible.

I've got an awesome cherry-red walker you can have if you want it but I don't think you'll end up needing it any more than me.

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Old 01-29-2014, 18:53   #17
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Justin so sorry about your DX, I have no experience in this area but just want you to know that I am praying for you and hoping things improve for you quickly, keeping my finger crossed.

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Old 01-29-2014, 20:00   #18
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Quote:
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You're pretty young for all this, Justin!
Yeah I like to think there is nothing typical about the progression of my disease. Of course I've remained consistently at around 11 - 13 HbA1c Levels for 8 years straight now. Can't say I'm surprised my body is breaking a bit.

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Do all you can on the glucose side, but don't forget to pray and man-up whenever possible.
I am. I was in the military and saw a lot of things and had to endure worse than this. I don't know how to stop fighting though sometimes I grow weary of it.

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I've got an awesome cherry-red walker you can have if you want it but I don't think you'll end up needing it any more than me.
No thank you. I appreciate the sentiment I truly do however I think that using the walker is going to be more detrimental in the long run. If I don't relearn to support my own weight without help then this is going to last a lot longer than it should. Yeah I fall all over the damn place in my apartment and I use it when I go out in public but I try not to if I can get away from it.

Of course, the whole pathology of Diabetic Amyotrophy is neurological not musculoskeletal so I don't see the point in physical therapy if your nerves aren't firing right.

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Old 01-30-2014, 05:31   #19
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Overall today my average dropped to 136.8 mg/dl over the total of 10 tests equaling 1368 mg/dl (sum of all tests so far)

Was shooting for lower than 1200 by this time...I hate the fact I keep missing my mark.

Estimated HbA1c level is 6.6 if I keep this current track up according to the formula for HbA1c I found online.

No change in weakness or mobility today...pain is getting worse I'm afraid. Don't know what to do really about that.

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Old 01-30-2014, 05:39   #20
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I've known several people who've suffered strokes, TBIs and other neuro issues. The goal of PT for neuro conditions is to get nerves, muscles and brain re-acquainted with each other. This can only be done through exercise; our daily activities typically don't provide enough reps to get that job done.

On the topic of blood glucose ... you've made some fantastic progress! Do you also do post-meal and post-snack testing? Spikes can occur, then subside, rather quickly during the hours between meals -- lingering juuuust long enough to do a person some serious mischief.

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Female, 58, 5'7", 150 lbs.
A1C 13.5 -> 6.7 ->5.4 (1/31/14)
MEDS:
Humulin-N (basal) - Humalog (rapid bolus)
MAGIC POTIONS:
Biotin --10,000mcg (for hair health)
B-complex
One-A-Day Women's 50+ Advantage
KyoDophilus (pro-biotic)
LIFE SUPPORT:
Black Coffee - Unsweetened Iced Tea
Low-Carb, High-Fat Convert
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