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Old 01-31-2014, 00:22   #21
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LOL, you gotta be careful with that treatment. It may not stop the pain, but it will make you not care. Bad side effect is the munchies and that usually results in a carbfest.
Heh. It's been a long time, but I remember back in the day I would eat stuff that I normally wouldn't touch even back then, like 7-Eleven microwave pizza.

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Old 01-31-2014, 05:35   #22
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You CAN see another doctor...yeah it'd be on your dime.

You know...you and I are the same. I have problems taking pain killers or pain medication for my pain that I experience (which is quite extreme).

That being said...

If someone offered me a percocet right now to relieve the pain I am in currently I would take it without hesitation.

Does that make me an addict? NO. I'm not addicted to the pills...I'm addicted to being free from pain. Give me an alternative that works better and I'll be for it but nothing works for the leg pain I experience.

Also, it is a controlled substance but if you lost that much muscle mass and you are struggling and LA was confirmed then I don't see this doctor's damn problem. You obviously went through a harrowing ordeal and your body is reeling because of it. It is obvious to anyone with a brain that you are in pain and he prescribes you aleve?

That doctor needs to have his medical license shoved up his narrow tightly wound patooty. (Just sayin...)

If I was your doctor I'd prescribe you valium to help cope with the tension and anxiety (not depression) of the pain you experience and try you on trammadol first. It is a non narcotic pain killer.

If that didn't work I'd try you on the Elixir form of Hydrocodone.

If that didn't work I'd try you out on Percocet

If that didn't work I'd just give you Fentanyl Patches and call it good because if that doesn't work...hell I don't know what will...

Of course there is Oxycodone, Darvocet, Morphine, and Dilotid. I wouldn't even get close to any of those however. Dilotid is about as powerful as you can get I believe without killing yourself...but not worth it.

You definitely need to talk to your doctor about getting into Physical Therapy as well. Up your protein intake and buy something called Shakeology. It is high in protein and phytonutrients and I highly recommend it to anyone who is trying to put on muscle. Have it with your meals every day and do as much activity with your legs as possible (ever hear of flutter kicks and bicycle kicks? research them and do it in bed if you can't walk that well it is what I'm doing for my legs right now...well not at this MOMENT but you know...ah you get it...)

Of course it is also high in carbs so you might want to use it as a meal replacement or the sole proprietor of carbohydrates in your meals.

PT would definitely help you out Bree. You've gone through so much and I do hope you start to feel better and I hope that doctor his head out of his ass and starts doing what's right by you to help alleviate your suffering.

But when you go and see the doctor tell him that you would like to try trammadol first. It is a non narcotic solution. If it doesn't work for you, it could be the gateway to higher forms of pain killers. I just pray that trammadol works.

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Old 01-31-2014, 05:46   #23
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I just checked my labs and they did do a Thyroid Stimulating Hormone Sensitive test. Mine was 1.070 mIU/L. The range is 0.465 - 4.680).

But my Lymphocytes were very low:

9.5%, range is (20-45). and
0.40, range is (0.9 - 4.86)

Lymphocytes are the immunity cells most responsible for viral infections. They are your NK cells, T cells, and Beta cells. They focus on tumors, viral infections, and beta cells are most associated with antibodies.

What was the WBC count? Overall and did you have any elevated levels of leukocytes? Eosinophils? Neutrophils? Monocytes? The percentage you see is the percentage of the WBC count that is actually that cell type.

If it is low it might represent a lowered need for that cell at the present time of the test. It could indicate something serious or nothing at all. If it continues to be suppressed you might want to bring it up. Say second test it is suppressed...bring it up.

As for myself I'm always elevated on all forms of immunity cells. It explains why I'm never sick.

Quote:
Oh, and my ESR was 22, not 20, range (0-20).
ESR stands for Erythrocyte Sedimentation Rate (Sed Rate for short)

It measures the amount of inflammation in the body.


Quote:
C-Reactive protein 18.7, range (5.0 - 9.9)
This is another test used to test for inflammation. Ask for a HS:CRP Test (High Sensitivity C Reactive Protein) to have a closer look at the amount of inflammation you are experiencing in the body.

Apparently your doctor thinks you are suffering from an inflammatory disease or is trying to evaluate if your anti inflammatory drugs are working correctly (C Reactive Protein Test Purpose)

He is also trying to monitor you for Tissue Death as ESR can be used for that purpose as well as identifying autoimmune disorders and inflammatory diseases.

Sounds like he is trying to figure you out. But he still needs to give you the proper pain medications so your quality of life can increase.

Edited:

Perhaps this is his line of thought: Inflammatory Myopathies

Inflammatory Myopathies Fact Sheet: National Institute of Neurological Disorders and Stroke (NINDS)

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Old 01-31-2014, 17:39   #24
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So sorry you are going through this.
No advice here.
Just hope it all gets figured out.

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Old 01-31-2014, 20:46   #25
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Dilotid? You mean Dilaudid?

My favorite from when I was in the hospital was Demerol.

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Old 02-01-2014, 04:03   #26
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Dilotid? You mean Dilaudid?

My favorite from when I was in the hospital was Demerol.
Eh...potato po-tah-toe...it numbs you to the world around you that's all that counts right?

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Old 02-03-2014, 05:20   #27
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Well, Bree, you got quite a bit of advice. I didn't understand most of it but I will say that upping the Vitamin B will help you heal. As you heal, you will start to feel more like moving around and restoring your muscles. You do seem understandably "upset." Has meditation ever helped? I know from my experience and my mother's that the more emotionally stressed I am, the more my (and my mom's) physical pain increased. So, in summary, my advice is to take it slow, step by step. If Elavil helps, go for it. BTW tramadol gave my mom nightmares so be careful. Good luck.

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Old 02-04-2014, 20:19   #28
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Originally Posted by justinervin85 View Post
You CAN see another doctor...yeah it'd be on your dime.

You know...you and I are the same. I have problems taking pain killers or pain medication for my pain that I experience (which is quite extreme).

That being said...

If someone offered me a percocet right now to relieve the pain I am in currently I would take it without hesitation.

Does that make me an addict? NO. I'm not addicted to the pills...I'm addicted to being free from pain. Give me an alternative that works better and I'll be for it but nothing works for the leg pain I experience.

Also, it is a controlled substance but if you lost that much muscle mass and you are struggling and LA was confirmed then I don't see this doctor's damn problem. You obviously went through a harrowing ordeal and your body is reeling because of it. It is obvious to anyone with a brain that you are in pain and he prescribes you aleve?

That doctor needs to have his medical license shoved up his narrow tightly wound patooty. (Just sayin...)

If I was your doctor I'd prescribe you valium to help cope with the tension and anxiety (not depression) of the pain you experience and try you on trammadol first. It is a non narcotic pain killer.

If that didn't work I'd try you on the Elixir form of Hydrocodone.

If that didn't work I'd try you out on Percocet

If that didn't work I'd just give you Fentanyl Patches and call it good because if that doesn't work...hell I don't know what will...

Of course there is Oxycodone, Darvocet, Morphine, and Dilotid. I wouldn't even get close to any of those however. Dilotid is about as powerful as you can get I believe without killing yourself...but not worth it.

You definitely need to talk to your doctor about getting into Physical Therapy as well. Up your protein intake and buy something called Shakeology. It is high in protein and phytonutrients and I highly recommend it to anyone who is trying to put on muscle. Have it with your meals every day and do as much activity with your legs as possible (ever hear of flutter kicks and bicycle kicks? research them and do it in bed if you can't walk that well it is what I'm doing for my legs right now...well not at this MOMENT but you know...ah you get it...)

Of course it is also high in carbs so you might want to use it as a meal replacement or the sole proprietor of carbohydrates in your meals.

PT would definitely help you out Bree. You've gone through so much and I do hope you start to feel better and I hope that doctor his head out of his ass and starts doing what's right by you to help alleviate your suffering.

But when you go and see the doctor tell him that you would like to try trammadol first. It is a non narcotic solution. If it doesn't work for you, it could be the gateway to higher forms of pain killers. I just pray that trammadol works.

I did ask for tramadol, but he refused. So, I'm forced to try something that could be considered dangerous. Yes, I'm that desperate.

I've done a lot of research on mega dose vitamin D3/K2 therapy. I'm a few weeks in at the moment and am seeing some interesting results. One, my hair stopped falling out, my wrist rashes have all but disappeared, the burning on my muscles have lessened by 40%, intestinal problems have completely cleared up, and I'm feeling that happy energy that had left me for so long, since way before Dx. I'm nowhere near where I want to be but I'm better than where I was.

IFF this does not work completely, I will consider the antidepressant for pain management. Even saying that makes me cringe. But, I will do it. Who knows, maybe it will also help with some anxiety, although this has greatly lessened in just this past week alone.

Why do I find this treatment risky? Because the US, where I live, is only beginning to perform studies and research in the area, especially in conjunction with cancer, MS, etc. In places like Brazil, they have all but reversed such things as MS. It's quite remarkable. I continually read studies to this affect.

I'm sad to have to take these matters into my own hands, but enough is enough. The thought of living with debilitating fatigue and burning is just too much for me. The thought of breaking every medical rule, bringing my Vitamin D count well above 'recommended allowance', as many have done, without medical supervision is all but frightening. I know what is at stake. This is my choice.



Thank you. Everyone, Thank you. Truly.

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Old 02-04-2014, 21:30   #29
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Bree, I took an antidepressant for about two years for my back pain and it was like a magic pill until it just quit working. I'm interested in the vitamin D studies as my endo has me taking great big doses of it now. She thinks it really is magic so told me to try it. By the way, when I took the a.d. it was off label. So it's been a while.




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Old 02-04-2014, 23:00   #30
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Bree, I took an antidepressant for about two years for my back pain and it was like a magic pill until it just quit working. I'm interested in the vitamin D studies as my endo has me taking great big doses of it now. She thinks it really is magic so told me to try it. By the way, when I took the a.d. it was off label. So it's been a while.
Interesting that it just stopped working! I've heard of that with NSAIDs and antidepressants. For some reason the body becomes resistant to a certain molecule and it needs a rest for a little while (switch medication) until it sensitized again.

Vitamin D3 is just an amazing seco hormone. Truly. Over the past month I've read three books and over 200 studies. Vitamin D3 must, however, be taken with Vitamin K2 (MK-4 or MK-7) if taken in large doses (at a ratio of 10:1) if you are using megadose of Vitamin D3. I took 50,000 iu yesterday, only 20,000 iu today. Just trying to find the dose that is most therapeutic. But, truly get some Vitamin K to prevent calcification of organs.

Very exciting!!!!

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