Just Venting, I apologize in advance.
I've delayed writing this because when I'm upset, I go into 'silent mode'. It's a hard habit to break.
Ok, so I'm going to vent, because that's the only thing I feel to start with right now.
I'm so upset!!!
Let me start in the middle...
A few weeks ago, I had an emergency apicoectomy. One minute I was at the dentist's office, the next morning in the endodontist's chair. Apparently, I had an infection that was eating away at my jaw. It wasn't too bad, everything is fine. I'm glad it was taken care of so quickly. But, here's the kicker,... They gave me some strong pain medication, one of which was a narcotic.
Now, I was diagnosed with diabetes, type 2, a year and almost 5 months ago. They gave me metformin, a statin (which I ditched after a month because OUCH!), some calcium and vitamin D, and a small aspirin, and a whole bunch of bad diet advice and a ton of grief when I went on LCHF. Most of you know this story. What I also received was a nice gift of PAIN and debilitating fatigue! Muscular pain that ate away at my large muscles, arms and legs became toothpicks and I was said to have lactic acidosis from the metformin. Whatever.
So, we dropped the metformin last May, blood sugars were great, A1Cs were great. My A1C at diagnosis was 10.7, fasting 316 or 317, and my subsequent ones were 5.0, 4.7, and my latest one a couple of weeks ago was another 4.7. Yay me. uh huh..
Cholesterol, great, all markers great, low WBC and RBC. BP 95/56.
A few months after dropping the metformin, my muscle pain was replaced with strong muscle burning and my muscles began to grow back. I understood this to be a long process. Okay...
So, back to the endodontist and the pain meds... a narcotic called hydroxycodone, I believe. For a few days I experienced NO pain or burning. None. I had energy, I was out and about, I was happy, I had hope, the fatigue was gone. Gone! I had been in agony for well over a year! Well, I will shamefully, or not, tell you that I wanted the relief to continue. I wanted my life back, come what may. The following week I had my blood work done which showed inflammation, a higher than normal C-reactive protein (18.8) and ESR (20). But, not enough to be conclusive. Now, I've been talking to my doctor about this pain and burning for almost a year and a half! I wanted it to end , now that I knew it actually could, but agreed that narcotics were probably not the way to go. So, I had to fight tooth and nail for him to please put me at least a bit out of my misery. And, it was a battle, because it was obvious I was seeking Drugs! And, I'm the person who is reluctant to take an aspirin. I also fought hard with diet to lose all of my weight and get off of all diabetes medication. This was not me, asking for meds to relieve this burning which causes so much fatigue and muscle knots, I have been unable to regain my active and happy life. In fact, I became quite the hermit, even a tad agoraphobic.
So, last August, it was decided that I move with my daughter to her apartment near her medical school because I can't climb stairs, it's so painful, and our house is very big. Happy, better, but terribly sad. I've since regained some energy as my muscles rebuild and have made wonderful friends. I go out briefly now a few times a week. A far cry better than the year I spent in BED.
Pathetically, the doctor relented and gave me 15 mg a day of mobic for the pain. It doesn't work. Then now naproxen.. a nice back reliever but nothing for this burning and fatigue. He did offer me an antidepressant which I declined. I can't tell you how that offended me and what I wanted to do with his kind offer. The option to switch doctors is truly not an option since we are retired military and he's the only one who supported LCHF (which he is beginning to blame for the burning).
It's been a few weeks now since the hydroxycodone and I am beginning to forget what those few days were like. This is a mixed blessing. I see him again end of February when I have to make a 5-hour useless drive, for what? I fear there is no help and I shall have to just learn to live with this, somehow. I know that people live with worse, and maybe I'm just a big baby, but I'm Tired!
Ok, vent over. I'm sorry. I just .. needed to vent. You have all been more of a help to me than any of them.
Oh, and for your doctor?
Please pardon if this is unwanted or impossible advice, but would it be at all possible to change docs?
Love the message for the doctor. :)
Aaaaahhhhh ... I was afraid of that. We sail in similar boats, you and I!
Oh Bree, I hope that you find relief soon! I've had many debilitating pain problems over the years, and have been lucky to avoid getting hooked on pain meds. I know just how you feel about that. In my opinion, the side effects of most drugs are worse than the problem you are taking them for. Ugh.
Anyway, rant all you want. It's free, and there are plenty of us here to listen and send back healing vibes. BIG HEALING HUGS!
I know of hydrocodone and oxycodone, but never heard of hydroxycodone. EDIT: I think it's the same as hydrocodone.
The hydrocodone w/acetaminophen is Vicodin, the oxycodone w/acetaminophen is Percocet, without the acetaminophen it is Oxy-Contin, I believe.
They are all drugs that are frequently abused and hence it is becoming more and more policy to have more stringent requirements to obtain them.
Bree, so sorry that things are so bad for you - (((Big Hug)))
Now, just to let you know, I take an anti-depressant and like you I was aghast when my doctor prescribed it as I was in pain not depressed. I then listened carefully to what he was saying and it turns out the old tricyclic anti- depressants are used for chronic pain relief - usually in combination with some other med - in my case Lyrica (for PHN following shingles).
It appears that the tricyclics stop pain messages to the brain and this is why they are prescribed for pain conditions, not because the patient is depressed.
I have been taking Amiltriptyline for some years with no side effects. I did once try to stop taking it (doc didn't know) and suffered strong pain breakthrough.
So, perhaps this is the reason your doc suggested it.
You can read more about Amiltriptyline on this website. Go to the site map and then click on Amiltriptyline. It gives a good overview of chronic pain.
Home - Pain Concern
Hope this helps
Hi Bree, perhaps you should try the anti-depressant since it might help. Freyagirl is right, those can help for chronic pain - especially if it's neuropathic. You'd probably get a lower dose than you would if you were depressed thus lessening the risk of side effects.
Whatever you decide, I hope you'll find some relief.
I don't know why it is that I am so reluctant to go on antidepressants for pain relief. It's not that it's intense pain as it was last year. My muscles have come back in slowly. I would describe it as burning in all large muscle areas. But, I have a high tolerance for pain and I was in agony last year. So, things have improved. The problem comes in when the burning just lasts forever without relief. It's exhausting.
But, I'm encouraged that it's not the horrible pain I had to endure a year before. I do see some improvement, which, perhaps mistakenly, leads me to believe that my body knows what it's doing, that my body can and will, in time, heal itself.
A few weeks ago, I read an incredible book by Jeff Bowles on mega doses of Vitamin D3/K2 treatment, looked up quite a few studies currently being conducted in the US and abroad. It's just incredible how the body repairs itself, the mechanisms of that repair,.. I have begun this high dose treatment and I definitely have improved energy. Then the surgery and the hyroxycodone fiasco. It was like opening Pandora's Box.
Today, I have abandoned the tylenol, mobic, and naproxen, so I do suffer, but I have to remind myself that it is no different than 'pre-hydroxycodone days'. I can endure this. The Vitamin D3/K2 therapy has thusfar cleared most of this odd rash on my wrist, has certainly made me happier, and had lessened the burning by about 10%. I don't know exactly what it will do in my system over time, but it does take time (many months).
I'm saddened that I have to take matters into my own hands, but I guess it can be empowering, as well. I'm sure there is a reason for my life this past year and a half, and I certainly hope that something good can come of it, if only to serve as an encouragement to one person,.. once this season of my life has come to a close. I guess as long as I can believe that it will come to a close, I can keep going. If it is the case that this is my life with no remedy, then I would have to rethink the matter.
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