Sleep Apnea - Page 4

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Sleep Apnea - Page 4


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Old 07-23-2014, 20:05   #31
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Mom said they laid me in the bassinet on my stomach the day I was born, and I was a stomach sleeper for 60 years. When CPAP came along, I had to teach myself to sleep a different way. I knew I could sleep in a recliner chair - essentially on my back - so by using bed wedges, I was able to convert from prone position, and now usually sleep on either side, if not supine. Getting off my stomach surely helped with the angry red dents in my face from burying it with the mask in the pillow!

(and as for overnight excursions . . . I may forget even to pack toothbrush or clean underwear, but I NEVER leave home without the CPAP! )



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Old 07-24-2014, 00:39   #32
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I have always been a stomach sleeper, and I tend to flop around when I sleep anyway. I may end up on my stomach, my side, my back. Never know.

When I had my sleep study done and went for results, the doctor told me that sleeping on your back is the worst position to sleep in because gravity naturally pulls everything down, so you are dealing with more pressure on your airways and everything. I asked what position was best? He said any position other than on your back (duh).

So, I remain a stomach sleeper. I have adjusted to using my mask while sleeping that way. Doesn't bother me in the least.

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Old 07-25-2014, 09:50   #33
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Wow, it looks like i am in excellent company... just got my cpap two days ago, still getting used to it. I noticed the first night it had a really clean fresh smell to the air, but tonight it smells kinda funky, i know i wasnt told to clean it EVERY night, and i did clean the nose mask thing but?? There isnt much more i can do right now, ive got a broken foot thats killing me so hobbling around trying to clean different things or whathave you isnt happening lol. I was wondering if there might be anything affecting the smell or if there was anything i could do TO affect the smell, positively..? Ive heard good and bad things about aromatherapy type stuff... apparently i dont actually STOP breathing much, i just breathe so shallowly that i dip down into the low 80s while still breathing.. least thats what the tech told me, i never actually got a report because my danged doc moved away (already posted complaining about that lol) in between my sleep study and next scheduled appt! Guess im lucky i got the machine at all heh.

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Old 07-25-2014, 12:55   #34
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I have to respond to the 'aroma' issue, lol! I started turning the machine on & let it blow a few minutes before I strap in. That's only because household odors seemed to seep in during the day & then blast me when I first turned it on. Ick! Did not want to revisit the bacon fumes just before bed, no matter how delicious was the bacon for breakfast that morning. Phew!

And I always make sure the filters are replaced/cleaned frequently/regularly, but that's more because of my allergic rhinitis than the odiferous aromas that settle in the hose during the day.




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Old 07-25-2014, 20:38   #35
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I have no direct experience with a CPAP or any other device.

However, a trick I used when travelling to various and sundry time zones and hotel/motels might be applicable here.

I had a dropper bottle of lavender oil, and I trained myself with that scent at home, in order for me to be able to sleep better "on the road." It seems to me that a combination of Shanny's method and a small drop of a scent you find soothing, might be the trick.

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Old 08-20-2014, 18:11   #36
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I was just diagnosed with severe sleep apnea. They said ~35 "events' an hour and an oxygen level of about 80%. I assume that means I wake up every 2 minutes?

Any advice for what to do while waiting for a cpap? I have to wait over 3 weeks to do another study with a mask on, and then who knows how long until I finally have one at home. I am really struggling to stay afloat, am almost ready to take FMLA since my work is suffering and any advice would be appreciated.

I wonder if I can buy a cpap online and get reimbursed by insurance when I get a prescription? Or maybe buy a cheap one and then hope it helps until I can get a real one? Or is that really dumb to even consider?

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Old 08-20-2014, 18:29   #37
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First of all, don't panic, you've likely had this condition for a long time. Or at least I had and you'll be okay but for the sleep deprivation. You might want to try some of those breathe right strips. They seem to help some people. I found picking the right mask was the hardest part of the whole process. I'd just wait until you can have the inpatient app't to buy one.

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Old 08-20-2014, 18:34   #38
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Quote:
Originally Posted by Patdart View Post
First of all, don't panic, you've likely had this condition for a long time.
You're right, I think I've had it for a long time (always snored). Things have gone downhill FAST since July. I've had to take off 10 days of work, I don't trust myself to drive without dosing, and I feel just awful, it's like having the flu every day...

The Breath Right strips are awesome! I use the strip and the new kind that goes in your nose at the same time. Seems silly but every little bit helps, it at least prevents the horrible nightmares of being unable to breathe, which I have been having a lot of lately.

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Old 08-20-2014, 19:16   #39
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Quote:
Originally Posted by Daytona View Post
I was just diagnosed with severe sleep apnea. They said ~35 "events' an hour and an oxygen level of about 80%. I assume that means I wake up every 2 minutes?

Any advice for what to do while waiting for a cpap? I have to wait over 3 weeks to do another study with a mask on, and then who knows how long until I finally have one at home. I am really struggling to stay afloat, am almost ready to take FMLA since my work is suffering and any advice would be appreciated.

I wonder if I can buy a cpap online and get reimbursed by insurance when I get a prescription? Or maybe buy a cheap one and then hope it helps until I can get a real one? Or is that really dumb to even consider?
1. Start reading my blog, beginning with "What you need to know BEFORE you meet your DME" here: WHAT YOU NEED TO KNOW BEFORE YOU MEET YOUR DME Part I | MASK ARRAYED

2. Go to CPAPtalk.com--That's the go to website to learn anything and everything about CPAP.

CPAPtalk.com is a lot like this forum. Tough love, no whining, incredible help. Everyone there uses their CPAP, all night, every night. We can help you if you want help, but just an FYI that we don't take kindly to the occasional newbie who comes looking for an excuse not to use CPAP. (Not that you would do that, I'm just saying for those who might).

3. Once you read my blog in #1 above, you will know what important information you need from your insurance company about purchasing a machine. Call your insurer and ask if it's possible to get reimbursed for an online machine purchase (HINT: this does NOT work on Medicare, except there are some online Medicare providers). You may be able to get a great machine at a good out of pocket price (no insurance coverage, but it still may save you money!) if you look on Craigslist (buyer beware--be sure you understand what machine you want, how to check for run hours and condition), or from the personal sales that pop up occasionally on cpaptalk.com ( there are some trusted sellers there and we try to root out the bad ones). Just today there was a sleep lab owner posting that he is closing down the supply side of his business and he has good deals on CPAP machines.

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Old 08-20-2014, 19:30   #40
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Quote:
Originally Posted by Janknitz View Post
1. Start reading my blog, beginning with "What you need to know BEFORE you meet your DME" here: WHAT YOU NEED TO KNOW BEFORE YOU MEET YOUR DME Part I | MASK ARRAYED

2. Go to CPAPtalk.com--That's the go to website to learn anything and everything about CPAP.
...
THANK YOU! This is great information and just what I needed. Heh, no worries about me not using a machine, give me a disease that lets me make spreadsheets ... LOTS of spreadsheets!

Now I have something to occupy myself with while I wait for the second study. I'll have all my info figured out and won't just blindly go with whatever is suggested.

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