* Necrobiosis Lipoidica Diabeticorum (NLD) * - Page 2

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* Necrobiosis Lipoidica Diabeticorum (NLD) * - Page 2


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Old 02-23-2012, 21:44   #11
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Join Date: Jan 2012
Location: Illinois
Posts: 4

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Type 1
Diagnosed in 1999

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I have just been diagnosed with NLD today ..grr..i got one spot that started about 5 years ago and then another that started about 3 years ago. Both are on the same leg. I was misdiagnosed initially and just now got the correct diagnosis. I hate wearing shorts now b/c people r rude and say things like...do u have ringworm, ew. SO RUDE! From reading it seems rare and not much success with treatment. Mine dont actually hurt or itch or anything which i guess is a good thing since so many experience itching and pain. They put me on some cream today which i just have a feeling wont work..

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Old 06-11-2012, 22:26   #12
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Join Date: Jun 2012
Location: New York, United States
Posts: 1

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Type 1
Diagnosed in 1992

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Hi All,

So i have been diabetic for about 20 years now and have spent the last 10 or so with two (formerly 3, but 2 slowly morphed together) very ugly looking patches on my leg. After numerous misdaignoses and failed attempts at resolving the issue, i have finally seen a doctor who has essentially written the book on NLD and has offered up a very complex treatment regimen that he says will eventually get rid of the NLD on my leg. I will indicate what the treatment prescribed is below, but according to the doctor, it may take between 3 and 4 years before its completely gone. The good news is, despite many people suggesting otherwise, it is treatable and its nothing serious and not from any mis-management of diabetes. The key to treatment, according to the doctor is to first turn the color of the outer layer of the NLD "brown", instead of red it is now (I suppose the idea is to essentially contain the NLD first). Once the outer area has browned, the process of treating the inner area will begin. I apologize in advance, but i havent gotten far enough into the treatment to know whether it will continue to treat the inside, or whether new medications will be prescribed. So, here is the current treatment regimen...
1) Trental 3x per day
2) Baby Aspirin 1x per day (which the doctor suggested should be taken by diabetics, with or without NLD)
3) Protopic cream, applied only on the outer edge 1x per day Monday through Friday
4) Clobetasol cream, applied only on the outer edge 2x per day Saturday & Sunday (this is apparently a very strong cream which would cause atrophy if used too often, hence the 2x per week)

Hope that helps...

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