Upsetting Things People Say About Diabetes

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Upsetting Things People Say About Diabetes


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Old 03-27-2013, 22:59   #1
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Default Upsetting Things People Say About Diabetes

I was diagnosed in 1945, when I was 6, and there was so little awareness of diabetes then. None of our relatives and friends had heard of it. When I was in my 30's two doctors told me I would not live past my 40's. When I told a few friends what the doctors had said, one of them said that my parents must not have taken good care of me while I was very young. At least they did not blame me, they blamed my parents. Now I am 73, have been type 1 for 67 years, and I have very good diabetes health. My parents took very good care of me. That is why I made it through my childhood.

Do any of you remember things you were told by a doctor, a friend, a relative, or even a stranger, that were very upsetting?

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Old 03-28-2013, 09:00   #2
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Richard, I could not begin to make a list! I've been blamed for T1 for everything from too much exercise to not being born again. Among the worst is being in hospital with DKA and hearing people talk about you when they think you're unconscious - vast fields of despair! It brings hope to me, however, to see that you've lived with this for so long!

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Old 03-28-2013, 09:53   #3
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Originally Posted by Richard157 View Post
I was diagnosed in 1945, when I was 6, and there was so little awareness of diabetes then. None of our relatives and friends had heard of it. When I was in my 30's two doctors told me I would not live past my 40's. When I told a few friends what the doctors had said, one of them said that my parents must not have taken good care of me while I was very young. At least they did not blame me, they blamed my parents. Now I am 73, have been type 1 for 67 years, and I have very good diabetes health. My parents took very good care of me. That is why I made it through my childhood.

Do any of you remember things you were told by a doctor, a friend, a relative, or even a stranger, that were very upsetting?
Your good health is in itself a slap on those people's face who said you would not live in good health or past 40s. When my father passed away through a heart stroke coupled with uncontrolled diabetes, there were many people who came up to us and told us "if only we had managed his diet, if only we had taken good care of him....etc...". He was in the hospital for a week after the stroke and then passed away. There were people who told us that maybe he was dead since a week and they just kept him there and mint money!!! And some of these people were his immediate siblings.

I think some people are just ruthless. As much as i wish my father was with us right now, i still know that i would not be able to force him to eat right and exercise well. Its a choice he made. Which we wish he would not have. But still......

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Old 03-28-2013, 19:45   #4
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I was diagnosed in 1945, when I was 6, and there was so little awareness of diabetes then. None of our relatives and friends had heard of it. When I was in my 30's two doctors told me I would not live past my 40's. When I told a few friends what the doctors had said, one of them said that my parents must not have taken good care of me while I was very young. At least they did not blame me, they blamed my parents. Now I am 73, have been type 1 for 67 years, and I have very good diabetes health. My parents took very good care of me. That is why I made it through my childhood.

Do any of you remember things you were told by a doctor, a friend, a relative, or even a stranger, that were very upsetting?
dear richard ,
i still rememberd about ten years ago when my elder brother first dignosed and our family doctor frightened my brother and me few days we meet endocrinologist and we find that he did not frightened us .
two years back when i diagnosed i went to same endocrinologist and told him i am very upset and nervousness he told me dont frightened about diabets but dont and never take it lightly . diabets is opportunity to live healthy life he said many thousand people dont know they have blood pressure and diabetes they r like sit on atombomb . and you r fortunate that you caught diabets in early stage and your all things are fine .

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Old 03-28-2013, 20:19   #5
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i also know a man in our comunity that if he know someone become diabetes he told amongst friends with smile that this man now become mamu local language slang mean this man penis not erectile .
i know poor man that his family background is full of diabets his mother father and unlce died of diabets complication but he thinks he never get diabets .

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Old 03-31-2013, 04:52   #6
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Great Thread Richard.

it upsets me when people say "Eric, you're OK now" as if my diabetes has or will go away.

They fail to grasp the day to day struggle this disease is.

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I am sometimes too "harsh". I feel that sometimes one must be "harsh" to get the point across.
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Old 03-31-2013, 05:01   #7
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I hate it when people tell me I can't have diabetes because I'm not fat, not the type, don't like sweets, etc. but that's where they are now. Nothing to be done about it except to say that my tests show that I have an endocrine syndrome and leave them stymied.




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Old 03-31-2013, 05:21   #8
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I hate it when people say that if you do "such and such" diet and Exercise then you can "cure" your diabetes. I clue them in real quick! Same with the folks who think if you have to go on medications/Insulin your not doing a good job "managing" your diabetes. What about us Type 1's who have to be on insulin to live? And why is it that diabetes is considered to be an illness that is our fault? Our body doesn't work right.

I'd never wish this on anybody...but I'd like it if they could live a day dealing with what we deal with.

Sorry in a mood tonight... Dealing with my other silent illness: Fibromyalgia.

Jj

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Old 03-31-2013, 14:53   #9
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I hate hearing that one "type" is better or worse than the other ... especially as I seem to be in the MIDDLE!

Sometimes I am told that T2 is "worse," because you brought it on yourself, and other times I am told T1 is "worse," "so bad you have to use a PUMP!"

Both causes of hyperglycemia, in order to be treated well, require self-discipline and constant vigilance. They both suck ... but, one person told me when informed of my diagnosis, "the diet really sucks, for that." WRONG!!! It is not the diet that sucks, not at all ... it is actually the forethought required, that sucks.

...and, of course, knowing what you know, about how food affects blood sugar, and being unable to convince the uninitiated.

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Old 03-31-2013, 15:26   #10
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I hate hearing that one "type" is better or worse than the other ... especially as I seem to be in the MIDDLE!

Sometimes I am told that T2 is "worse," because you brought it on yourself, and other times I am told T1 is "worse," "so bad you have to use a PUMP!"

Both causes of hyperglycemia, in order to be treated well, require self-discipline and constant vigilance. They both suck ... but, one person told me when informed of my diagnosis, "the diet really sucks, for that." WRONG!!! It is not the diet that sucks, not at all ... it is actually the forethought required, that sucks.

...and, of course, knowing what you know, about how food affects blood sugar, and being unable to convince the uninitiated.
Oh i hate the half baked knowledge too. They seem to believe that anything sweet raises blood sugar so if diabetics dont eat sweets, they are cured (and sometimes potatoes)! I have a tough time convincing people that any food deep fried, that grows undergrounds, fruits (!!!!) raise sugar. They seem to think that i must sneak in some sweets here and there and blame it on fruits and grains. LOL!

My father in law, a diabetic since before my marriage was suggesting me to drink a mix of carrot betroot juice if i cant have regular fruits juices. He was not convinced when i said that carrot and betroot are a strict no-no. At times it feels i am fighting a lost battle here. I lost my father through diabetes and so i try extra hard to make my father in law act a little more responsibly. Still trying to get some success on that.....

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