Back home after 5 weeks

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  • 2 Post By Hillary
  • 4 Post By Tamagno
  • 2 Post By fenix92

Back home after 5 weeks


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Old 08-02-2013, 07:30   #1
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Exclamation Back home after 5 weeks

or so in Bali. I went just 10 days or so after being officially changed from type 2 diag to type 1, prob. LADA. This meant I couldn't do my second Endo and Diabetic educator visit. Will do it next week.

It was all a bit patchy for me really. Somebody on here said having LADA was like trying to hit a moving target and that is really ringing true for me. Just when I go a couple of days of good control then along would come a day when everything went pear shaped. I did a lot of correcting with my rapid insulin.

Lantus is still doing it's job beautifully, 10 units at night. On waking I do 2 units to stop the rise from DP then 3 before breakfast around 17 grams of carbs. That is where the reliability ends I'm afraid. Lunch and Dinner were hit and miss and had a couple of hypos. I am using around 80 grams of carbs per day. Going lower than that was making me feel unwell and totally lacking in energy. I feel really good at this level. Of course eating out is bound to be harder than preparing for myself.

This type 1 thing is not as easy as I hoped. I was pretty sure that with my rapid insulin I would be walking on water pretty soon. I want to stay under 8 really as far as poss but that hasn't been happening so for the last week I have been settling for under 10 (Yuk don't like that figure) planning to fine tune it back down under 8 when I see the endo and educator.

Seems to me, the only way I can fine tune this is work out with the DE my IS, I:C ratio, correction factors etc etc. Anyone got any better ideas?

I'll do it if it kills me...wait no, take that back. I'll do it so it won't kill me.

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Old 08-02-2013, 10:34   #2
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Insulin pumps really help with both basal insulin and bolus calculations leaving you using less insulin in general and without the hassle of injections.

The whole question of LADA, type 1.5, or maybe just a rare case of late-onset juvenile diabetes also leaves me wondering. The same GAD 65 auto-immune feature is certainly present, but other tests may prove inconclusive. It took my endo about a year to settle on flat out type 1 with onset at age 60.

My personal experience suggests that beta cell destruction has taken a longer time with occasional cliffs coinciding with illnesses such as the flu and ketoacidosis.

Inconsistency seems to be a hallmark for many of us with one day's success being followed by the next day's failure.

Keeping carbohydrate consumption low helps, as does protein with proper fats, but as you point out, there are the problems of energy and hypos especially with sustained physical activity. Here again the pump is an asset as insulin delivery can be suspended as needed.

My recent addition of a continuous glucose monitor has also been helpful. It is sufficiently accurate that a glance at it tells me if I'm okay to drive, for example, rather than going through another finger prick. It also gives audible alerts when heading either too high or too low.

It does mean, however, carrying around a bag containing both monitors as well as changing out sensor canulas on a regular basis, not to mention the expense.

The presence of these sensors stuck on one's body may not be appealing to one's vanity while on the beach in Bali, but they are otherwise generally unobtrusive for most activities.

There is a movement afoot to make both pumps and CGMs standard therapy for type 1s thereby assuring both better health as well as insurance coverage.

I personally remain optimistic and the various health challenges I've encountered have so far been manageable, even in the face of some long periods of poor control.

I see no reason today should not be another of those good days and I see no reason for the whole affair to kill any of us!

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Old 08-03-2013, 10:01   #3
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Hi Hillary, 5 weeks in Bali sounds lovely
Adjusting will probably be easier for you now that your home, hollidays can be tricky. Lots of eating out and the occasional drink and on top of that physical activities tend to vary from day to day. Try to find a routine now and adjust your insulin to that. Once you find your way in your daily life, adjusting for the irregulars will become easier too.

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