GAD antibody test result back

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  • 10 Post By Hillary
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GAD antibody test result back


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Old 08-11-2013, 00:47   #1
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Default GAD antibody test result back

positive. I waited for these tests until my return from 5 weeks away in Bali because I didn't really have time to get myself together after change of diag from 2 - 1 (LADA) before I left. My endo was saying that his diag was LADA even if they came back negative but today I got an email from him telling me the GAD antibody test is positive. Well at least I know where I am now.

Strangely, since I already knew his diagnosis, I am finding this confirmation a little confronting. I'll give myself today to get my head around it.

Having calmed down a lot I am also feeling angry with my "old doc" for not being willing to listen to my observations and not seeing some very obvious red flags nor sending me to an endo. At the moment probably better I don't contact her. I guess I will hear from her when the time comes around for my next scheduled, totally useless, diabetic care plan appointment and then I will try to tell her calmly what I now know. You know, I believe that if "old doc" had been more on the ball then the tingling in my toes would not, probably, have come about over the last few months :-(

Also feel thankful for "New Doc" being on the ball and for her partner who I saw while waiting for the endo appointment when I was worried about BS levels and ketones. I like the endo and also the DE who seems to be on my wavelength.

I seem to be doing OK really as long as I stay at or below around 30gr carb per meal. Less at breakfast. More than that everything gets a bit iffy and unpredictable (Dr Bernstein's law of small numbers I guess) and below that I don't feel so good since for some reason I can no longer tolerate the very high fat levels I was on. Will fine tune my management with the DE next month.

If anyone is reading this who has doubts about their diagnosis, or who is seeing sudden changes and has a Doc who doesn't see the problem then PLEASE get a 2nd opinion even if until then you have liked and been happy with your Doctor..

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Old 08-11-2013, 09:29   #2
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Pretty much the same story as mine, Hillary.

The antibody test is fairly simple and should routinely be given to adults as part of the metabolic panel.

Don't know about you, but shortly after my T2 diagnosis I went into a long honeymoon period that confounded everything. If memory serves, I was on my third primary care doc before I found one who would make the endo referral with another three-month wait to get in to see her.

I felt unwell all those long months, and, like you, knew what the problem was.

At least around here, the docs are looking for bad ketoacidosis along with glucose in the 400+ range to diagnose T1. LADA appears to be an unknown phenomenon.

Our school nurse nailed the diagnosis on sight the very first day I suspected a problem and went to her in search of a glucometer.

Nevertheless, I'm glad to hear you're doing well and pray it may always be so!

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Old 08-11-2013, 13:37   #3
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You will do great, and glad you pursued it!

I cried when confronted with the reality, even after aggressively pursuing dx. So far, NO LOOKING back!

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Old 08-11-2013, 15:31   #4
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So glad you finally got a correct Dx. We all know how well that goes to proper treatment.

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Old 08-12-2013, 00:42   #5
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Thankyou for the replies. I have woken up this morning still angry with my "old doc". I feel if I had been put on insulin initially or at least reasonably soon after I saw some questions that I would have saved some pancreatic function for a bit longer. Lucklily my eyes, in January were still OK but am a little nervous about the next check. During the last few months have signs of neuropathy in my toes which could have been avoided. Maybe that is a little better since starting rapid insulin.

Also a little angry with myself for not believing in myself enough to get a 2nd opinion sooner. I remember at one point about 4 months ago after that abortive visit to the doc for my "diabetic care plan" visit I seriously gave consideration to eating a large fruit danish pastry, iced of course, maybe a mars bar for good measure and having a drink of juice and heading to the emergency room in order to get a diagnosis.

Oh well, at least anger is a nice hot clean emotion, if you know what I mean. It is preferable to the confusion, depression and despair I was feeling for at least a couple of months there, longer maybe!!!

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Old 08-12-2013, 08:48   #6
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Interesting way of describing anger, Hillary!

I used to think I'd be glad when my pancreas just gave out once and for all. Seemed it would be a much cleaner place to be, without so much confusion. I suppose in much the same way you depict your emotional state.

Well, things have turned to be not so simple as I once imagined. There are many adjustments to be made in lifestyle, including the low-carb diet much discussed on this site.

Nevertheless, I expect there's a good chance of reversing that neuropathy in your toes and clearing up your vision as glucose stabilizes.

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