"Ah well it's not your fault then"

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  • 13 Post By Hillary
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"Ah well it's not your fault then"

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Old 12-20-2013, 04:38   #1
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Default "Ah well it's not your fault then"

Since my daig was changed a few months ago from thype 2 to LADA I have noticed something very odd in the way I am treated. Most people don't know what LADA is so I tell them it's late onset type 1.

With type 2 I so often got people implying that it was my fault or if I just did this or that it would go away. Now I don't believe now, nor when I thought this was what I had, that type 2 is the fault of the person suffering from it. I believe that the basice metabolic problem causes the over weight etc etc. It used to give me the whoops!!!

Now, when I tell them late onset type 1 all I get is sympathy that I don't really need, but they mean well and I appreciate that.
It is almost like some wierd diabetic snobbery and I am perceived to be in the "upper class".

Well, being of English working class background being upper class anything is a new experience but having being on both sides of this fence I resent this. I also find it odd that every man and his dog seem to be an expert in this!

OK rant over. Merry Christmas to all.

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Old 12-20-2013, 06:48   #2
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Well, if your 'fault' has been removed that's good for you.

However, I'm not very sure of the "latent" bit in the label. If anyone has read any research confirming that part please post a link. I think "late onset T1" is realistic, but is it really latent.

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Old 12-20-2013, 06:55   #3
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No I agree with you not latent at all. Late onset is a much better description!

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Old 12-20-2013, 09:19   #4
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Agreed. My DX came at the age of 60. The "juvenile" diabetes label is as off as "latent."

As to the peculiar discrimination between T1s and T2s, I think some of it is a throw back to the not-so distant past when juvenile diabetes was so much harder to treat and often meant an early death.

The usual other prejudices still apply, though. Any of you T1s been accused of alcohol abuse as a cause?

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Old 12-20-2013, 12:37   #5
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I think they call it "latent" because of the belief that T1 is purely an immune system malfunction - an "autoimmune" disorder. In this theory, the immune system obeying some genetic signal and for no other apparent reason, turns on the beta cells and destroys them. Thus, if this built-in, predestined immune system implosion doesn't happen until adulthood, it was "latent" until then. This makes some sense in light of the aforementioned belief system since if T1 is completely genetic, it was there since birth (actually since fertilization!) and was therefore "latent" for 40 or 50 years.

I don't believe it. The immune attack on beta cells is as I understand it observed science. However, I don't believe this is just some inherited time bomb. Something must trigger the immune system to go haywire. The latest thing which convinced me of this is the realization that when Steffanson observed "no diabetes" among the traditional Inuit, THAT INCLUDED BOTH T1 AND T2 - clearly, since no one had made that distinction yet and it was all just "diabetes".

Then, recently, someone posted some genetic information that children of T2s can get genes for T1 and it all really started making sense. If true, it's clear how an avalanche of glucose from diet in a population can cause increases in BOTH T1 and T2.

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Old 12-20-2013, 14:16   #6
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That's interesting. I know that Celiac can be "latent" and must have a trigger for the autoimmune process to begin. Some people carry the genes and never develop the "disease". Others' trigger can be childbirth (both for the baby and for the mother). Most people's trigger is some sort of severe illness or accident.

So it doesn't surprise me that other autoimmune disease can develop the same way (needing a trigger). Explains why people develop T1 at various ages.

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Old 12-20-2013, 22:39   #7
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Being diagnosed in dka had no latency, whatsoever, for me.

But yes ... FAULT? None of wants this freakin disease and if we were warned, educated, about the dietary pitfalls, we would have done just about anything to AVOID it.

"Fault" is BS and horsehooey.

Hugs to all my friends, T1, T1.5, T2, who deal with such %#@#@! people. (including from "other diabetics!"). It is not right.

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Old 12-22-2013, 00:56   #8
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And I just want to say thank you for everyone being so warm and accepting. If it weren't for people's profiles, I would hardly know who is T1 and T2 here, because all of you are earnestly trying to help everyone, no judgment. And since we are all for the most part using LCHF as a way of treating, we have many commonalities.

I didn't realize how wonderfully supportive you all are until I decided to follow the diabetes community on Tumblr (a social media-blogging platform), and it was...bracing. Basically, very anti type 2s. It was sad and frustrating and made me feel very bad about myself. All you guys have ever made me feel is encouraged and like we are in this together.

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