Type 1 with no insulin - Page 2

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Type 1 with no insulin - Page 2


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Old 07-10-2014, 11:54   #11
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Quote:
Originally Posted by Tamagno View Post
At 10 years old and with beginning DKA it's a near certainty to be type 1, unfortunately.

The honeymoon stage could last anywhere from 2 weeks to 2 years during which time he may well be fine.

After that, Metformin won't touch high glucose, nor will water, diet and exercise. Thankfully, they're testing as there'll be a day nothing will bring down high glucose except insulin. They're going to find out very quickly.

I'm not sure why their doc is confused nor do I understand why his ER visit did not include a recommendation to see an endocrinologist. It's generally standard at his age.

Sadly, it sounds as though there's not much you can do for now. Perhaps you can rest a little easier knowing his parents are attentive and that the end of the honeymoon period will be obvious!
FYI the Dr I refer to is an endocrinologist. One thing I found interesting. When I was diagnosised as Type 2 my family DR. had me go to a 3 day class. This taught and answered questions regarding diabetes. She monitors my levels and keeps me informed without an endocrinologist. My A1c this week was 6.0
When our GS was in the hospital a dietitian was assigned his case with the endocrinologist. She worked with them in the hospital for short periods over 2 days. After being released he had daily contact with the Dr giving daily numbers. A few visits in between. There has been no mention of a class to educate the parents.

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Old 07-10-2014, 12:10   #12
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One recurring theme that pops up around here is that many endocrinologists (and primary care docs) really don't understand diabetes all that well, and/or they can't provide much guidance about living with diabetes.

We also find that we must often ask for tests, training and follow-ups that should be offered automatically.

Your step-grandson's parents may need to ask for training. Hopefully they will be past their denial period and open to the training when it comes.

On the diet end of things ... we may actually be more helpful than any class! That said ... a good trainer will guide them well in the ways of testing and insulin.

We care. Please keep us posted!

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DX'd April Fool's Day, 2011 - T2
Female, 58, 5'7", 150 lbs.
A1C 13.5 -> 6.7 ->5.4 (1/31/14)
MEDS:
Humulin-N (basal) - Humalog (rapid bolus)
MAGIC POTIONS:
Biotin --10,000mcg (for hair health)
B-complex
One-A-Day Women's 50+ Advantage
KyoDophilus (pro-biotic)
LIFE SUPPORT:
Black Coffee - Unsweetened Iced Tea
Low-Carb, High-Fat Convert
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Old 07-13-2014, 12:53   #13
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Originally Posted by Shalynne View Post
One recurring theme that pops up around here is that many endocrinologists (and primary care docs) really don't understand diabetes all that well, and/or they can't provide much guidance about living with diabetes.

We also find that we must often ask for tests, training and follow-ups that should be offered automatically.

Your step-grandson's parents may need to ask for training. Hopefully they will be past their denial period and open to the training when it comes.

On the diet end of things ... we may actually be more helpful than any class! That said ... a good trainer will guide them well in the ways of testing and insulin.

We care. Please keep us posted!
Thank you for your input. I wish it were true that the parents would ask. I did suggest this, but, it was ignored. As long as his numbers are within the normal range for his age, they, will not take other measures. They have relied on internet resources and their own beliefs in monitoring and treating their son. They seem to do a well enough job with his carb intake to control severe ups and downs. My question still is could their personal treatment without the aid of insulin be a threat to his overall health? Not seeing this child often, we can see a physical change that his parents do not. He is thinner and his color is pale.

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Old 07-14-2014, 00:31   #14
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A Type 1 (or 1.5) will need insulin after the "honeymoon" ends, if not before. Some Type 2s need insulin, as well -- although that's unusual in youngsters, it's not unknown. A need for insulin is not a sign of failure, it's a fact.

If insulin is withheld after the need develops, symptoms will occur. The thinness may be the beginning. Bad case scenario -- return trip to the ER for DKA. Worst case scenario does not need explaining. Best case? When insulin is finally introduced, more will be needed -- and complications may already be entrenched.

Medical professionals are afraid of lows, and will sometimes recommend damaging highs. Both highs and lows, however, should never be necessary.

You are in a tough position indeed ... and so, it seems, is your step-grandson.

Contact with his (former?) medical team would be good. You may also be able to seek help from diabetes-related organizations in your area.

One more possible consideration (to be approached with caution): Do the parents belong to a religion that forbids the use of medicines? Are their beliefs part of an organized religion?

Reason I ask is ... unless their religion/philosophy specifically forbids the use of medication, you may be able to get help from an elder, minister or equivalent. Sometimes believers will take doctrine far from where it was intended to go. (Once again -- proceed with caution if you take this path!)

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DX'd April Fool's Day, 2011 - T2
Female, 58, 5'7", 150 lbs.
A1C 13.5 -> 6.7 ->5.4 (1/31/14)
MEDS:
Humulin-N (basal) - Humalog (rapid bolus)
MAGIC POTIONS:
Biotin --10,000mcg (for hair health)
B-complex
One-A-Day Women's 50+ Advantage
KyoDophilus (pro-biotic)
LIFE SUPPORT:
Black Coffee - Unsweetened Iced Tea
Low-Carb, High-Fat Convert
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Old 07-14-2014, 11:49   #15
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Quote:
Originally Posted by Shalynne View Post
A Type 1 (or 1.5) will need insulin after the "honeymoon" ends, if not before. Some Type 2s need insulin, as well -- although that's unusual in youngsters, it's not unknown. A need for insulin is not a sign of failure, it's a fact.

If insulin is withheld after the need develops, symptoms will occur. The thinness may be the beginning. Bad case scenario -- return trip to the ER for DKA. Worst case scenario does not need explaining. Best case? When insulin is finally introduced, more will be needed -- and complications may already be entrenched.

Medical professionals are afraid of lows, and will sometimes recommend damaging highs. Both highs and lows, however, should never be necessary.

You are in a tough position indeed ... and so, it seems, is your step-grandson.

Contact with his (former?) medical team would be good. You may also be able to seek help from diabetes-related organizations in your area.

One more possible consideration (to be approached with caution): Do the parents belong to a religion that forbids the use of medicines? Are their beliefs part of an organized religion?

Reason I ask is ... unless their religion/philosophy specifically forbids the use of medication, you may be able to get help from an elder, minister or equivalent. Sometimes believers will take doctrine far from where it was intended to go. (Once again -- proceed with caution if you take this path!)
Thank you. I wish it was as simple as that with these parents. In the beginning the Step-daughter asked me to research wheat and milk as a possible cause of Type 1. I also sent her a link on effects of not using insulin. This only set her off, stating they don't read things to scare them. I promised not to bother them again. So I do not call and when I see them I ask no questions. As for religion, that's another touchy subject. My step daughter had no faith. She decided to educate herself, over a 2 yr period she went through a tough time making herself miserable and everyone around her as she found herself through religion. She attends no church and has formed her own beliefs. The father is and has always been one who knows all. So, there is no talking to them. They would be furious if we went to the Dr they had been using. This is a family filled with drama and roller coaster emotions. We can only hope their son will not have problems resulting from their neglect. The internet can be a dangerous thing!


Thank you for the comment. You have

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Old 07-14-2014, 17:41   #16
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I was afraid of this. Let's just say I have family history of my own.

I apologize, but I must be blunt. To withhold insulin from a Type 1, or from a diabetic of any Type who needs it, is lethal. No ifs, ands or buts.

Ethically speaking, the child's former doc should not blab if you speak to him/her. If, however, you want to be aware of the child's rights, the parent's rights, your own rights and possible options, I would strongly recommend that you consult with a family law attorney ASAP. Your consultation would be confidential.

Please keep us posted!

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__________________
DX'd April Fool's Day, 2011 - T2
Female, 58, 5'7", 150 lbs.
A1C 13.5 -> 6.7 ->5.4 (1/31/14)
MEDS:
Humulin-N (basal) - Humalog (rapid bolus)
MAGIC POTIONS:
Biotin --10,000mcg (for hair health)
B-complex
One-A-Day Women's 50+ Advantage
KyoDophilus (pro-biotic)
LIFE SUPPORT:
Black Coffee - Unsweetened Iced Tea
Low-Carb, High-Fat Convert
Shalynne is offline  
Old 07-15-2014, 06:55   #17
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Yes, this is no joke... and if the boy is thin, it is highly unlikely that we will be lucky and find he is type 2.. type 2 in a thin youngster is almost unheard of. Im afraid you are about to be put in a very bad position... a position no family member wants to be put in. I hope and pray that WHEN he starts out of the honeymoon period and his blood sugar begins to rise that they will understand that what they are doing is not helping but HARMING him and will adjust as they should, and give him the life saving insulin that he will need... but if they do NOT>.. you have to ask yourself what are YOU willing to do...you will have options...but you may have to choose between your grandsons life and your relationship with his parents... and as a "step" grandparent you will have fewer choices and you may very well lose your relationship with him as well, and if it is not as bad as it could be, or if you move too soon, you may lose everything and still not save his life.. please continue to monitor this situation and keep us updated, and please do speak to a family lawyer as suggested.

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