Type 1 with no insulin

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Type 1 with no insulin


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Old 07-09-2014, 22:52   #1
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Smile Type 1 with no insulin

Since I am type 2 diabetic, I monitor diet, keep a healthy weight, & use metforman with an A1c of 5.7. Recently, my 10 year old step-grandson was diagnosed Type 1. Because I am diabetic I worry over the choices his parents have made. Since I did not have the Type 1 honeymoon phase or use insulin I was hoping to get some answers here. At first the parents administered insulin, watching diet, exercise. They have done their own researching and have decided their son's insulin is water (in their words). They feel he is Type 2 or l.5 and feel he should be using Metformin. They continue to monitor sugar levels & carbohydrates. After a meal he drinks 2 very large glasses of water. He is in the honeymoon stage. With the constant monitoring of his numbers and what he eats followed with water, his numbers are pretty much ok. If it spikes, more water, dips, carbohydrate. My question is what dangers if any is their method of treatment doing to his body? They say his Dr. is confused why this is happening, but, to continue with their plan. I find this hard to believe. I thought insulin was necessary depending on levels to keep body functions protected and prevent any serious side effects. Opinions please!!!!

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Old 07-09-2014, 23:25   #2
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A Type 1 in the "honeymoon" stage may not need insulin. This is temporary.

I've never heard of water-as-insulin before, for any Type of diabetes. Water's good stuff; better than almost anything else he could be drinking -- but his glucose must be monitored closely, and insulin added when (not if) the time comes.

Do you know what kind of numbers he has right now?

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Old 07-09-2014, 23:58   #3
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Quote:
Originally Posted by Shalynne View Post
A Type 1 in the "honeymoon" stage may not need insulin. This is temporary.

I've never heard of water-as-insulin before, for any Type of diabetes. Water's good stuff; better than almost anything else he could be drinking -- but his glucose must be monitored closely, and insulin added when (not if) the time comes.

Do you know what kind of numbers he has right now?
Last told his rising a.m. one day was 78. After his low carb meal and water supposedly around 128. It has been about 6 months since diagnosis. He was hospitalized with a high of 695. I rather not ask questions as they feel they have it under control.

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Old 07-10-2014, 00:00   #4
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What can happen when this honeymoon stage is over without taking insulin?

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Old 07-10-2014, 00:11   #5
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Diabetic ketoacidosis (DKA). Serious stuff, requiring an ER visit and insulin drip.

If he's "lucky," he may have some warning symptoms prior to that trip to the ER, such as increased thirst and urination, fatigue, brain fog, and numbness in the extremities.

Is he being tested daily? Do you know what his numbers are?

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DX'd April Fool's Day, 2011 - T2
Female, 58, 5'7", 150 lbs.
A1C 13.5 -> 6.7 ->5.4 (1/31/14)
MEDS:
Humulin-N (basal) - Humalog (rapid bolus)
MAGIC POTIONS:
Biotin --10,000mcg (for hair health)
B-complex
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KyoDophilus (pro-biotic)
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Old 07-10-2014, 00:21   #6
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Serious stuff, requiring an ER visit and insulin drip.

If he's "lucky," he may have some warning symptoms prior to that trip to the ER, such as increased thirst and urination, fatigue, brain fog, and numbness in the extremities.

Is he being tested daily? Do you know what his numbers are?[/quote]

Yes he is being tested regularly. They give him more water if it is a bit high. They claim his numbers are within normal range for a 10 yr old.

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Old 07-10-2014, 00:38   #7
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One thing I missed before (sorry, again) ... his parents have determined that he's a Type 2 or 1.5. They need to know his Type for sure. Tests do exist to determine Type. Regrettably, doctors don't always offer those tests unless asked. Has he been tested for Type?

If he is, indeed, a Type 2, then with good management he may never need insulin. However, if he's a Type 1 or 1.5 he most definitely will need insulin before very long.

As for testing ... "Regular" testing can mean many things. Daily testing is a must, and more than once per day. I hope he's getting that.

Daily testing would include waking, bedtime, before meal/snack, then 1 and 2 hours after first bite of meal/snack. If he's subject to lows, an early-hours test may also be required. (Once he's on a good regimen, and if his numbers stabilize, the family may be able to back off a bit.)

Do his parents really intend to use water-as-insulin as a permanent treatment, even if he is confirmed to be Type 1 or 1.5?

If so ... I wonder where they got that notion. There are a lot of scams that claim to "cure" or "reverse" diabetes. Such con artists are the lowest of the low.

You are in a very tough spot. Hope that the whole family can find accurate answers, ASAP!

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DX'd April Fool's Day, 2011 - T2
Female, 58, 5'7", 150 lbs.
A1C 13.5 -> 6.7 ->5.4 (1/31/14)
MEDS:
Humulin-N (basal) - Humalog (rapid bolus)
MAGIC POTIONS:
Biotin --10,000mcg (for hair health)
B-complex
One-A-Day Women's 50+ Advantage
KyoDophilus (pro-biotic)
LIFE SUPPORT:
Black Coffee - Unsweetened Iced Tea
Low-Carb, High-Fat Convert

Last edited by Shalynne; 07-10-2014 at 00:41.
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Old 07-10-2014, 10:44   #8
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At 10 years old and with beginning DKA it's a near certainty to be type 1, unfortunately.

The honeymoon stage could last anywhere from 2 weeks to 2 years during which time he may well be fine.

After that, Metformin won't touch high glucose, nor will water, diet and exercise. Thankfully, they're testing as there'll be a day nothing will bring down high glucose except insulin. They're going to find out very quickly.

I'm not sure why their doc is confused nor do I understand why his ER visit did not include a recommendation to see an endocrinologist. It's generally standard at his age.

Sadly, it sounds as though there's not much you can do for now. Perhaps you can rest a little easier knowing his parents are attentive and that the end of the honeymoon period will be obvious!

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Old 07-10-2014, 11:11   #9
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Whilst I agree with Tamagno that the youngster is almost certainly type 1, I also agree with Shalynne that that educated guess should be confirmed by an antibody test.

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Old 07-10-2014, 11:44   #10
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Quote:
Originally Posted by Shalynne View Post
One thing I missed before (sorry, again) ... his parents have determined that he's a Type 2 or 1.5. They need to know his Type for sure. Tests do exist to determine Type. Regrettably, doctors don't always offer those tests unless asked. Has he been tested for Type?

If he is, indeed, a Type 2, then with good management he may never need insulin. However, if he's a Type 1 or 1.5 he most definitely will need insulin before very long.

As for testing ... "Regular" testing can mean many things. Daily testing is a must, and more than once per day. I hope he's getting that.

Daily testing would include waking, bedtime, before meal/snack, then 1 and 2 hours after first bite of meal/snack. If he's subject to lows, an early-hours test may also be required. (Once he's on a good regimen, and if his numbers stabilize, the family may be able to back off a bit.)

Do his parents really intend to use water-as-insulin as a permanent treatment, even if he is confirmed to be Type 1 or 1.5?

If so ... I wonder where they got that notion. There are a lot of scams that claim to "cure" or "reverse" diabetes. Such con artists are the lowest of the low.

You are in a very tough spot. Hope that the whole family can find accurate answers, ASAP!
Thank you for your input. It is my understanding he is being tested as he should through out the day. He was hospitalized initially and it was determined he was Type 1. Insulin was given. Because his sugar was a roller coaster in the first few weeks, they researched the internet. They supposedly shared their thoughts with the Dr and were told he might be l.5 Somewhere along the line they found water was the answer for them, I feel they are in denial.

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