Dr's make my head numb

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Dr's make my head numb


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Old 03-22-2011, 00:33   #1
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Default Dr's make my head numb

The Endo today says I don't have Type 2 like I've been told and treated for. She says it's Type 1, rare in my age group but not unheard of. Guess that explains the roller coaster I've been on for the past year with the previous insulin therapy.

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Old 03-22-2011, 00:41   #2
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I don't know how old you are, but I was diagnosed T1 just about two months shy of my 53rd birthday. I actually bypassed the T2 age-based misdiagnosis - it's the one thing my then-Endo was good about. There are lots of us out here!

What insulins have you been prescribed? I highly recommend that you pick up Think Like a Pancreas by Gary Scheiner and/or Using Insulin by John Walsh. They'll take a lot of the mystery and possible anxiety out of the whole process.

Jen


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Old 03-22-2011, 02:38   #3
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After what you've been through the past ten years, nothing would surprise me. Did they finally test you for GAD antibodies? Have they done a c-peptide? What concrete facts is the doc basing her diagnosis on? Enquiring minds want to know . . . And I truly hope you'll be given proper treatment now . . . I think you were originally diagnosed in DKA, right?




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Old 03-22-2011, 15:33   #4
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Hi, Aimster -- I am also in KC -- who do you see for your D? I go to St. Lukes endo on the Plaza.

LADA is NOT RARE -- About 20% of Australians dx'd as Type 2 turn out to have it, and I imagine Americans are about the same ... If you cannot tell by my knowing this, I have it, too.

What do you eat? What meds / insulin do you take?

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Old 03-22-2011, 18:56   #5
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Hi Fox! Glad to see someone close by me. I live between Rockhurst University and UMKC.
I started out at the KC Free Health Clinic ( I get all my medications and supplies free through them, I almost sheet at the cost when I had to buy my first vial of Lantus) and they finally referred me to the Endo at Truman Hospital.
I'm taking Lantus and Apidra (just started the Apidra, she took me off of the other fast acting and replaced it with that) and Metformin for Diabetes.

Shanny...I don't have the answers to those questions.
It's like they throw stuff at me so fast I can't think of anything to ask them when they ask if I have any questions. That's why I love this place you all are sooo educational and now I know what to ask next time.

And Jen I'm 47.


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Originally Posted by foxl View Post
Hi, Aimster -- I am also in KC -- who do you see for your D? I go to St. Lukes endo on the Plaza.

LADA is NOT RARE -- About 20% of Australians dx'd as Type 2 turn out to have it, and I imagine Americans are about the same ... If you cannot tell by my knowing this, I have it, too.

What do you eat? What meds / insulin do you take?

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Old 03-22-2011, 19:09   #6
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Wow -- I used to live right there!

I work next door to TMC -- so you probably see Dr. W? I have heard great things about her! I considered going to her; the fact she re-dx'd you is GREAT!

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Old 03-22-2011, 22:03   #7
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Yes that's my Doc! Small world isn't it.
Maybe we can hook for coffee or something one day.
I go back to her in 2 weeks and from a personal stand point I really like her.

I was also diagnosed with Gastroparesis recently but they didn't run any tests. The other Dr. just assumed from my symptoms that's what it was and prescribed. (blind faith on my part??)
So the first thing Dr. W did was take me off of the Reglan until they actually perform Gastro testing, which will be next Monday. She said it could have some real nasty side effects and until she's sure she doesn't want me to take it.


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Wow -- I used to live right there!

I work next door to TMC -- so you probably see Dr. W? I have heard great things about her! I considered going to her; the fact she re-dx'd you is GREAT!

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Old 03-22-2011, 22:07   #8
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Yes, Reglan can be nasty -- a person I know got CRYING JAGS from being on it! Ick.

Two coworkers recommended Dr. W to me when I first tested myself (and freaked out -- 447!), I considered seeing her but wanted my internist to coordinate w/ my Endo ... so stayed at St. Luke's. It would have saved me a lot of grief to go to her, I suspect!

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Old 03-22-2011, 22:30   #9
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It's the permanent twitch I hear about that worries me.....


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Originally Posted by foxl View Post
Yes, Reglan can be nasty -- a person I know got CRYING JAGS from being on it! Ick.

Two coworkers recommended Dr. W to me when I first tested myself (and freaked out -- 447!), I considered seeing her but wanted my internist to coordinate w/ my Endo ... so stayed at St. Luke's. It would have saved me a lot of grief to go to her, I suspect!

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Old 03-23-2011, 00:26   #10
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Tardive dyskinesia? OH -- did not know about that! Yikes.

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