Odd long-acting insulin question

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Odd long-acting insulin question


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Old 04-05-2013, 17:34   #1
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Default Odd long-acting insulin question

So I've been on and off Lantus for the past year, switching between levemir when I can and sometimes not able to afford either. What I have noticed is when I'm on Lantus, 15 units per day one shot at night, my sugars are great in the morning, hovers around 80mg/dl. The strange effects I've noticed are tough to describe, but it's hard to concentrate, have a disconnected feeling, blurry/dry eyes, and just an odd mental state.

I thought it was just me going back to normal, but it lasted months. I only really noticed the change when I ran out for 2 weeks and within a day I felt great! My FBS were high, but me feeling good was a good feeling.

I was able to switch to Levemir 2 months ago and the symptoms have lessened, but are still noticeable. With the Levemir I get really tired after I take my nighttime dose and my muscles feel really weak during the day.

Does anyone know of other options? I could start on a pump, but that's a large amount of money I don't really have. I've also read about animal insulin, but that seems to be a shrinking supply if they even make it anymore.

Quick background. 29 years old, type 2 diagnosed, I think I'm more of type 1 since I'm skinny, eat well and no oral meds ever helped control my BS. 15 units levemir, humalog 1 unit per 15g carbs, bumps up to 30g after I work out.

Thanks all for your insight.

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Old 04-05-2013, 17:54   #2
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That sounds exactly like my story. Thought I was type 2 and finally diagnosed with T1. I was on Lantus and Novolog and had a really hard time getting everything right and doing multiple shots daily was really getting the best of me. Then I went to the pump and all I can say is what a difference for the better. No more MDI and much better control with basicly unlimited adjustments to your insulin delivery that can be tailored to you as an individual. My personal thought would be to do what ever is necessary to get yourself on a pump ; the cost is not cheap but your health and living a normal happy life is priceless. Well as normal as it can be for us anyway.

Hope it works out for you.

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Old 04-05-2013, 18:02   #3
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Hey Crank, I'm glad you responded. After reading another post of yours in another thread I thought you might have some insight.

Yeah, the pump could be a really sweet idea if insulin will be my lifelong buddy. Curious what insulin you use in your pump? I've been having a delay with my rapid actin humalog, I'll take my meal time and usually wait 30-45 min to eat or my sugars go up fast. I might try switching if people have had better experience with another insulin.

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HA1C - 10/11 - 10.8, 4/13 - 5.5
Levemir- 15 units/day Humalog - 20 units/day
Other - glusocamine, chromium, green tea, magnesium, st. johns wort, vitamin A, B, D, MSM
Diet - 2500 kcal, 100g fat, 300g carbs, 100g protein
Exercise - 6x week, weights mainly, some cardio
14% body fat, 155 pounds----165 ideal
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Old 04-05-2013, 18:07   #4
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Hey Im T1 and I use lantus.. Which i have to split! I believe this isnt a preffered method but they dont offer pumps in the UK! Well they do but its hard to get!

My lantus doesnt seem to last me all day! I spike later on! I tried levimere but it caused skin reactions wierdly!

I am currently on 40 units of lantus split into 20 in the morning and 20 in evening!

Not sure if that helps?

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Old 04-05-2013, 18:21   #5
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I am on Novolog in my pump. It does seem that if I bolus around 15 minutes before I eat it gives me the best reasults and cuts down on the spike after. It doesn't really lower me all that much during that period from bolus to a meal but must just allow enough to get absorbed into my system to prevent it from going through the roof.

I have been useing only Novolog so really can't give you much info on other types , besides the lantus I was also on prior to the pump and that just wasn't working for me.

My opinion and again it is just my opinion and I don't want to send you in the wrong direction ; if you can get yourself on a pump you would probably be pleased on what they can do for you. Just to be able to stop injection after injection was worth it for me , I was about ready to throw in the towel. Pump is still not wonderful as far as having it on basicly 24-7 in your pocket , on your belt , tucked in your bra ( not me) but the offset of controlling my sugar with excellent reasults is a small price to pay.

My profile sounds very simalar to yourself : skinny , eat good and extremely active with no lack of exercise or activities. I do have a few years on you though however to me thats just a number that means little to nothing for me. 50 years old here and still rock climbing , mountain biking , kart racing , hunting , fishing and the list goes on. Some days when I wake up I feel it and at least I know why but wouldn't change it at all. A rolling stone gathers no moss so my only choice is to keep rolling.

Hope that everything works out for you and you can find some answers here.

Craig

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Old 04-05-2013, 18:22   #6
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Quote:
Originally Posted by LoraRoo View Post
Hey Im T1 and I use lantus.. Which i have to split! I believe this isnt a preffered method but they dont offer pumps in the UK! Well they do but its hard to get!

My lantus doesnt seem to last me all day! I spike later on! I tried levimere but it caused skin reactions wierdly!

I am currently on 40 units of lantus split into 20 in the morning and 20 in evening!

Not sure if that helps?
When I was taking I had to split my dosage as well. My doc at the time, he retired last year, was involved with the trials for it and told me most people would have to split their dosage, especially if they take over 30u/day. So you're not alone on that.

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Old 04-05-2013, 18:27   #7
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Quote:
Originally Posted by LoraRoo View Post
Hey Im T1 and I use lantus.. Which i have to split! I believe this isnt a preffered method but they dont offer pumps in the UK! Well they do but its hard to get!

My lantus doesnt seem to last me all day! I spike later on! I tried levimere but it caused skin reactions wierdly!

I am currently on 40 units of lantus split into 20 in the morning and 20 in evening!

Not sure if that helps?
I was under the impression that the pumps available in the UK were more advanced than the ones we can get here in the states. I was told that the pumps and CGM in the UK were designed as one unit that worked together where as in the US they are two seperate units that work independant of each other. Again thats what I was told and if I am wrong please don't throw me under the bus.

I too was splitting my lantus when I was on it , still could not get it to work though.

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Old 04-05-2013, 18:27   #8
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A pump does sound good.. I mean like u say just to stop injecting would be AMAZING! I inject 5 times a day.. And its normal but a pain in the rear end! Ha!

Yeaa lantus splitting does seem more common than my diabetic nurse made out! It works for me so its all good!

Lets all be honest a cure would be so simple.. But I think the chances in my life time are slim! Lol!

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Old 04-05-2013, 19:36   #9
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Here here for a cure!!!!

Wouldn't that be nice. I haven't really had any issues with control on my BS with lantus or the levemir. My A1C last lab was 5.5. I have asked about split dosing my long lasting, but I really just want to get off it. I forgot to mention the burning at injection site plus numbness...either way it sounds like the pump is my next step.

Craig, keep up all the fun stuff you're doing!! I would hope that the D won't keep me from doing all that for another 20 years!!

you ever heard about the Omnipod? It's an all in one pump that's Bluetooth controlled. It's marked towards active people like yourself, might be more expensive but could be worth a look. I know a few poodle with it and they love it, no tubes to snag things and whatnot.


I might try a switch back to human insulin, I heard that some people don't do well on analog insulin. I was on humalin r for a bit and I kinda liked it, took wayyyyy too long to onset though. Try planning for an hour before every meal at 6 meals a day....whew

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HA1C - 10/11 - 10.8, 4/13 - 5.5
Levemir- 15 units/day Humalog - 20 units/day
Other - glusocamine, chromium, green tea, magnesium, st. johns wort, vitamin A, B, D, MSM
Diet - 2500 kcal, 100g fat, 300g carbs, 100g protein
Exercise - 6x week, weights mainly, some cardio
14% body fat, 155 pounds----165 ideal
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Old 04-05-2013, 19:48   #10
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Classic , if you have A1C like that then you obviously have a pretty good handle on keeping things under control.

I have heard of the omnipod but unfortuinatly just switched from medtronic to the ping pump so it looks like I am stuck with it for the next four years since my insurance only covers my pump until the warantee runs out and allows me an upgrade at that point. Hopefully over that time peroid there will be more improvements to what is allready available , just have to wait and see. The pump in the pocket and hose is kind of a hassle but I over time have gotten used to it so has become second nature to me. If I am doing any real strenous and rough activites I usually just shut down basil and disconnect from the pump for a short time.

A cure would be nice but don't see that in my lifetime , hope that generations to come are lucky enough to have such a thing though.

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