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Old 04-22-2018, 20:55   #21
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I do have autoimmune issues and was once offered dexamphetamine by an immunologist but I didnt really want it. Maybe time to change.
I'm on Plaquenil - took over 6 months for it to kick in. Reduces fatigue and frequency of fevers, but doesn't eliminate all together. It does allow me to function at a higher level, which is good.

I see a rheumatologist for this.

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Old 04-22-2018, 22:54   #22
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sleep apnea is potentially good news because it is treatable with a machine. unfortunately, almost 80% people are not compliants with therapy within 6 months of treatment. the comfort of the mask is not good.

i've been 100% compliant for 18 years. it is un comfortable but if I don't use it I stop breathing 120 times per hour which is pretty severe so I use it even though it is uncomfortable
im curious if you have tested it regularly to see if there is any improvement as your diabetes gets better under control
good question. I think i would like to retest if my cpap pressures started to trend lower but they haven't.

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Old 04-23-2018, 00:33   #23
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sleep apnea is potentially good news because it is treatable with a machine. unfortunately, almost 80% people are not compliants with therapy within 6 months of treatment. the comfort of the mask is not good.

i've been 100% compliant for 18 years. it is un comfortable but if I don't use it I stop breathing 120 times per hour which is pretty severe so I use it even though it is uncomfortable
I find that fairly lightweight masks are the go, for me. My favourite went out of production last year and I finally was forced to find a replacement, and I've been very happy with the change. Easier to remain compliant. I dont use a humidifier anymore, I just add a filter at the front of the machine (so a total of 3 filters now!!). However, tiredness just wont let me go. Excluding the food coma (carbs!) I still get really tired. I just put up with it now. I do have autoimmune issues and was once offered dexamphetamine by an immunologist but I didnt really want it. Maybe time to change.
do you have days where you feel really good? if so, maybe a diary would help you identify a few home remedies( ones that works for you)

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Old 04-23-2018, 04:03   #24
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sleep apnea is potentially good news because it is treatable with a machine. unfortunately, almost 80% people are not compliants with therapy within 6 months of treatment. the comfort of the mask is not good.

i've been 100% compliant for 18 years. it is un comfortable but if I don't use it I stop breathing 120 times per hour which is pretty severe so I use it even though it is uncomfortable
I've been using cpap (actually apap) for 3 years. You might try some of the newer masks, especially if you don't breathe through your mouth. They are very light.

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Old 04-25-2018, 21:45   #25
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do you have days where you feel really good? if so, maybe a diary would help you identify a few home remedies( ones that works for you)
Oh I wish! I cannot remember when I last felt really good. It was probably sometime in the 80s. However, I like your idea of a diary, to at least keep track of feeling "not as bad as usual". Maybe a mood diary would help, too. I do have a sub-clinical depression but I'm not being treated because I found that the cure was worse than the disease. Its just that the kind of meds that work for me, also give me side effects (the dreaded brain shocks) and I hate that a lot more than I hate being depressed. Part of me has simply accepted that I've become disconnected from society and life. I keep my head above water by indulging in my hobbies of reading, Netflix, and photography. And my cat.

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Old 04-25-2018, 21:55   #26
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good question. I think i would like to retest if my cpap pressures started to trend lower but they haven't.
I find that mine change according to my bed position. I also have heart failure and need to be sleeping partly upright (3 pillows, and I need a different solution). I find that my pressures are almost always around starting level as long as I can maintain that position, and if I have managed it all night, then I'll wake with a low pressure as well. I don't think the state of my diabetes is having any effect on it, but it might be worth testing in some way.

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Old 05-04-2018, 22:00   #27
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I'm on Plaquenil - took over 6 months for it to kick in. Reduces fatigue and frequency of fevers, but doesn't eliminate all together. It does allow me to function at a higher level, which is good.

I see a rheumatologist for this.
YIKES! I just did some reading about it on drugs.com. I don't believe I have SLE or Rheumatic Arthritis, so would not be likely to have it prescribed. Don't like the look of the possible side effects, in any case.

I did "acquire" modafinil for a time whilst I was still working, so I could stay alert enough to do the job, but I stopped taking that after I was forced to retire. My source has gone offline now (it was coming from India via Fiji and yes, dodgy as heck, but at $30 a month, a lot cheaper than locally which was $120). Modafinil is not addictive, as dexamphetamine is, so it seemed to be a better option. But, it isnt listed on our PBS (subsidised drug list) unless you have provable diagnosed narcolepsy and then only if dex doesnt work. Our government has some strange ideas about whats good for people's health.

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Old 05-04-2018, 23:04   #28
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need to be sleeping partly upright (3 pillows, and I need a different solution).
because of acid reflux and the state of my lower back I've slept propped up for years. Just a few months ago I got an adjustable bed and a new mattress - oh,my - it is heaven. My back stays flat even though I'm at an upright angle. Soooo much more comfortable than those lumpy pillows. It was costly, but well worth it.

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Old 05-05-2018, 07:41   #29
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I absolutely need one of those, been thinking about getting one for years. And, now I am past the time where I am likely to have a bed partner other than my cat (!!) I think I should look at the possibilities. They cost a fortune over here, as much as a small car in some cases, but maybe its time to start seeking quotes

I also have GERD, along with everything else!

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Old 05-11-2018, 02:00   #30
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My Dr says I'm "too young" to be complaining about problems "this old".

I was born with two small bones out of place in my feet, so I've always had, what I call "standard leg pain". But in the past few years my joints have been hurting the hell out of me and I'm SOOOO tired ALL the time now! Some days I can barely stay awake at work.

But then at night, I can't sleep. But I feel like I've walked 2 million miles!

I've had every kind of sleep aid there is, and nothing works. Temazepam is the closest thing that I've been given thats supposed to help me sleep, but it doesn't. I get sleepy and fall asleep, but I'm awake in two hours regardless.

I'm ALWAYS tired. I mean, a walk to the mailbox is like a freeking trek to the top of Mount Everest!!!

I'm going to be changing Dr.s pretty soon anyway. Maybe this new one will have some clues as to whats going on with me.

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