Fluid Retention w/ Insulin?? Why? - Page 2

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Fluid Retention w/ Insulin?? Why? - Page 2


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Old 10-11-2011, 02:58   #11
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Four endos in 14 years . . . I guess it could be worse. This one just seems to me particularly arrogant, and if he continues to insist that edema is not a side effect, somebody needs to dig in their heels & tell him that swelling of the arms/legs is one of the SEVERE side effects of lantus. Go to your GP or whoever else will listen, but get help for this now.

I also suggest a new doc.
Shanny, I don't think my GP will help me. Don't know if you remember me, but I'm the one - a few months ago - whose GP wouldn't treat my Diabetes with any meds or insulin, etc. despite having Ha1c's ranging from 10-12.1 (now 12.7) over the past 3 years.

So, I took everyone's advice and got an Endo Doc to treat me.

I've gained 18 lbs in the past 18 days and I feel MISERABLE on this insulin. I have "pretty" BG numbers and I like the absence of "brain fog," but in all other respects, I feel horrible.


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Old 10-11-2011, 04:32   #12
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Shanny, I don't think my GP will help me. Don't know if you remember me, but I'm the one - a few months ago - whose GP wouldn't treat my Diabetes with any meds or insulin, etc. despite having Ha1c's ranging from 10-12.1 (now 12.7) over the past 3 years.

So, I took everyone's advice and got an Endo Doc to treat me.

I've gained 18 lbs in the past 18 days and I feel MISERABLE on this insulin. I have "pretty" BG numbers and I like the absence of "brain fog," but in all other respects, I feel horrible.
I read your post and just want you to know that you aren't wrong about the fact that insulin does help us put on weight. Do you have a local pharmacy where you live, or is there a pharmacist who works where you buy your medications that you might trust? My reason for asking is: sometimes Pharmacists are a whole lot smarter than the doctors are where side effects of any medications are concerned. My local pharmacist told me that when he went to college to become a pharmacist, they had to spend more than 3 months learning how the various medications affect people with Diabetes.

If you are able to ask a pharmacist about the side effect of rapid weight gain with insulin, you can tell the smart aleck Endo that he is wrong. I don't think you deserve to be treated like that. I used to see an Endo and the very last time I was in his office he also treated me with disrespect (much as your Endo did to you). I got up......walked out of the patient room........left the building and never looked back. Since that Endo was the only one we have in our town I guess maybe I acted impulsively, but I don't care if I ever see him again!

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Old 10-11-2011, 04:59   #13
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Thank you everyone for your responses. I appreciate the support. I'm going to start to looking for another Endo Doc tomorrow.

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Old 10-12-2011, 02:51   #14
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Update:
I was so miserable last evening from gaining 18 lbs of fluid in 18 days since starting Insulin therapy that I called a physician friend who called in a script for a (Furosemide) "water pill" for me.

I'm happy to report that it's working already!! When I woke up this morning, I had LOST 5 lbs of body weight - in less than 12 hours of time.

So, this just proves that I am not over-eating and that this rapid weight gain is all fluid.

It will be interesting to see what this Endo Doc has to say about that when I return in 4 weeks!!

It's really pitiful that the people supposedly trained to treat Diabetes seem to know so little about Nutrition and weight loss. They try to put everyone into the same categories and it just doesn't work. Diabetes is not a "one size fits all" kind of disease and the treatment needs to viewed as individual as we are.

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Old 10-12-2011, 08:55   #15
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It will be interesting to see what this Endo Doc has to say about that when I return in 4 weeks!!
Just a suggestion . . . take a 2x4 with you next month when you see him, so you can smack him up side o' the head . . .




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Old 10-12-2011, 09:28   #16
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Just a suggestion . . . take a 2x4 with you next month when you see him, so you can smack him up side o' the head . . .
lol I love your spunk!! Can I take you with me to my next appt.?

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Old 10-12-2011, 22:19   #17
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You have fluid retention because your body stores carbs in the form of glycogen -- which uses water molecules.

If you minimize carb intake, you also minimize insulin dosage -- and glycogen storage.

I just changed my diet, decreased my insulin dosage, and dropped 5 lb I suspect were all WATER.

And your doctor is mistaken. It's listed as a side effect, I believe.
Foxl... I'm sorry for being so "dense," but I still don't understand this fluid thing and was hoping you could expand on your response a little more.

I gained 18 lbs of fluid in my first 18 days after starting Insulin therapy. On day #19 and day #20, I started taking a diuretic "water pill" and lost 5 lbs of fluid each day (total of 10 lbs lost in 2 days).

I understand that prior to starting the Insulin therapy, glucose from the food I ate was staying out in my bloodstream was being urinated out instead of being used to feed and nourish my body.

My Endo says that I am now metabolizing my food normally.

But, how is it "normal" to hold on to & accumulate an extra lb of fluid every day?
I don't believe normal people do that.
And, judging from the response I've received thus far, it's not the "normal" bodily reaction of people with Diabetes who are taking Insulin.

If I'm understanding things correctly (and I'm not sure that I am), it sounds like my Endo is saying that my "normal" condition is to accumulate a lot of extra fluid just by eating normally.

This just doesn't make sense to me. I've had normal Ha1c's at very times over these past 14 years and I wasn't puffed up like the Jet Puff Marshmallow (wo)man.

Like I said, I'm sorry to be so "dense," but I really want to understand this.
I'm also wondering if I'm doomed to have to stay on a diuretic for the rest of my life, and if so, why? How is that "normal"?

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Old 10-12-2011, 23:11   #18
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Okay - I think I found my answer. I was looking in the sub-forum here in the Treatments section and found a post by someone who said they had Insulin Induced Oedema. I googled that, and it describes my condition. The article I read mentioned (what foxl said) about increased glycogen storing causing some of the fluid retention; however, that is not sufficient to explain the EXTREME fluid retention that occurs when Insulin therapy is started.

The article goes on to explain many of the causes of this rare reaction to Insulin. The treatment was "diuretic" so my physician friend was right on target. If I can "google" it and find this info, it makes me wonder why my Endo Doc apparently didn't know about it. He said it was not related to the Insulin and that I have something else going on and I need to see my GP. argh!!

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Old 10-12-2011, 23:20   #19
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Maybe I'm just an ornery old broad, but if I were you, I'd run a print of the data you found & present it to your endo, asking why it didn't occur to him that prescribing a diuretic might be appropriate. And if he pulls any more stunts like this, I'd dump 'im!




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Old 10-13-2011, 00:00   #20
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Maybe I'm just an ornery old broad, but if I were you, I'd run a print of the data you found & present it to your endo, asking why it didn't occur to him that prescribing a diuretic might be appropriate. And if he pulls any more stunts like this, I'd dump 'im!
I think that sounds like WONDERFUL advice. Thanks, Shanny!!

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