Fluid Retention w/ Insulin?? Why? - Page 3

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Fluid Retention w/ Insulin?? Why? - Page 3


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Old 10-13-2011, 16:25   #21
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McT, I couldn't have described what I looked like when I took Lantus any better than the Marshmallow guy! That is priceless.

I was on Lantus 2 yrs ago, and literally gained almost 50 lbs. on it, and was certainly not eating enough to gain that kind of weight. I quit taking it and immediately lost the 50 lbs. I look at pictures from then (my Niece was getting married and just between her wedding shower and the wedding which was like 2 months) and I look so bloated and huge! I will never go back to using Lantus again. I am now on Levemir, and although I've gained a slight amount of weight (under 10 lbs), I can deal with that. When I questioned the endo doctor I was seeing back then, I got the arrogant attitude and the "your numbers will not come down without insulin" response. I said why all the weight gain and wasn't that just as unhealthy as high numbers? No explanation from endo; just you need to take the insulin. Weight gain doesn't matter. Well yeah, of course it doesn't matter to the doctor because they are not the ones who is gaining all this weight for no reason! I never went back to that endo. I went through 4 endo's as well until I found the one I am with now and she is wonderful. She specializes in just diabetes in adults; nothing else. All other endo's deal with the entire endocrine system, so they have just basic med school training with diabetes. Just like none of the other endo's EVER told me about Dawn Phenomenon, but yet I found all kind of information on the web, and from other diabetics. Now, do you think one of these endo doctor's could have told me about this? I was complaining about my morning numbers being the worst out of all my numbers, yet not one said a word.
I agree with you that the amount of fluid you were retaining is not normal, and I would certainly look for another endo. Keep switching until you find one who is knowledgeable regarding diabetes, and will listen to you and work with you to get your numbers to a healthy point. Good Luck. I totally understand your struggles.

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Old 10-13-2011, 16:37   #22
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Quote:
Originally Posted by naynay View Post

I was on Lantus 2 yrs ago, and literally gained almost 50 lbs. on it, and was certainly not eating enough to gain that kind of weight. I quit taking it and immediately lost the 50 lbs. I look at pictures from then (my Niece was getting married and just between her wedding shower and the wedding which was like 2 months) and I look so bloated and huge! I will never go back to using Lantus again. I am now on Levemir
sounds like my journey....I got a bad infection earlier this year and so had to take more lantus than usual (from 25 to 75mmls per day)...I have put on so much weight I don't want to leave the house...I am also now on levemir...I'm still trying to get the dose right but it is better than lantus in that I've stopped putting on weight...

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Old 10-13-2011, 23:08   #23
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Originally Posted by naynay View Post
McT, I couldn't have described what I looked like when I took Lantus any better than the Marshmallow guy! That is priceless.

I was on Lantus 2 yrs ago, and literally gained almost 50 lbs. on it, and was certainly not eating enough to gain that kind of weight. I quit taking it and immediately lost the 50 lbs. I look at pictures from then (my Niece was getting married and just between her wedding shower and the wedding which was like 2 months) and I look so bloated and huge! I will never go back to using Lantus again. I am now on Levemir, and although I've gained a slight amount of weight (under 10 lbs), I can deal with that. When I questioned the endo doctor I was seeing back then, I got the arrogant attitude and the "your numbers will not come down without insulin" response. I said why all the weight gain and wasn't that just as unhealthy as high numbers? No explanation from endo; just you need to take the insulin. Weight gain doesn't matter. Well yeah, of course it doesn't matter to the doctor because they are not the ones who is gaining all this weight for no reason! I never went back to that endo. I went through 4 endo's as well until I found the one I am with now and she is wonderful. She specializes in just diabetes in adults; nothing else. All other endo's deal with the entire endocrine system, so they have just basic med school training with diabetes. Just like none of the other endo's EVER told me about Dawn Phenomenon, but yet I found all kind of information on the web, and from other diabetics. Now, do you think one of these endo doctor's could have told me about this? I was complaining about my morning numbers being the worst out of all my numbers, yet not one said a word.
I agree with you that the amount of fluid you were retaining is not normal, and I would certainly look for another endo. Keep switching until you find one who is knowledgeable regarding diabetes, and will listen to you and work with you to get your numbers to a healthy point. Good Luck. I totally understand your struggles.
Levemir sounds great! Thanks for the info - I had not heard of this one. I'm going to ask the Endo to switch me to Levemir WHILE I'm shopping around for another Endo.

I got the same response you did about "your numbers will come down without insulin" from my GP who just passively monitored my A1c's going from 5.9 to 12.7 for the past 3 years for no reason. He just kept telling me that "you're being naughty" with my diet. And, I wasn't. Arghh.. That's when I fortunately found this forum and was advised to find an Endo.

I like your suggestion about finding an Endo that focuses only on Diabetes. I had not thought of that - so THANKS!!

I can relate to your experience of no one telling you about the Dawn effect. I found out from, of all people, my Psychiatrist that I was seeing for my Attention Deficit Disorder. His son has Type 1 Diabetes so he just happens to know a lot about Diabetes.

Thank you for sharing your experiences and wisdom. It's so comforting to know that I'm not alone. I love coming to this forum.

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Old 10-13-2011, 23:26   #24
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Originally Posted by d33na View Post
sounds like my journey....I got a bad infection earlier this year and so had to take more lantus than usual (from 25 to 75mmls per day)...I have put on so much weight I don't want to leave the house...I am also now on levemir...I'm still trying to get the dose right but it is better than lantus in that I've stopped putting on weight...
Hey Deena, You are not alone. I, too, do not want to leave the house because of the weight I've gained. I'm totally through with diets b/c they just don't work. I'm tired of getting my hopes up and buying all this new stuff - new ingredients - new foods, etc. And, then it doesn't work.

I'm taking a whole new approach this time. I'm simply recording everything I put in my mouth on FitDay.com. I purchased their software program, but a very good version is available FREE on their website. I set up my own goals for calories and grams of carbs, fats, and proteins. Then, I'm weighing every day and, of course, measuring my BG's four times per day. I know that sounds like a lot of record keeping, but it's gotten easier over the past several weeks of doing it every day. After a while I'll be able to see patterns of what works and what doesn't and then I'll keep SLOWLY tweaking my diet until I find one that works for me - one where I can lose a reasonable amount of weight (not too fast or slow) and NOT feel deprived. I'm tried low carb/high fat in the past and I just can't stick with it for very long. I don't like cooking or spending time preparing things. I also feel too deprived on it. But, that's just me.

Thanks for responding. I'm definitely going to ask to be switched to the Levemir.

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Old 10-14-2011, 02:02   #25
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Originally Posted by MsTCB View Post
Hey Deena, You are not alone. I, too, do not want to leave the house because of the weight I've gained. I'm totally through with diets b/c they just don't work. I'm tired of getting my hopes up and buying all this new stuff - new ingredients - new foods, etc. And, then it doesn't work.

I'm taking a whole new approach this time. I'm simply recording everything I put in my mouth on FitDay.com. I purchased their software program, but a very good version is available FREE on their website. I set up my own goals for calories and grams of carbs, fats, and proteins. Then, I'm weighing every day and, of course, measuring my BG's four times per day. I know that sounds like a lot of record keeping, but it's gotten easier over the past several weeks of doing it every day. After a while I'll be able to see patterns of what works and what doesn't and then I'll keep SLOWLY tweaking my diet until I find one that works for me - one where I can lose a reasonable amount of weight (not too fast or slow) and NOT feel deprived. I'm tried low carb/high fat in the past and I just can't stick with it for very long. I don't like cooking or spending time preparing things. I also feel too deprived on it. But, that's just me.

Thanks for responding. I'm definitely going to ask to be switched to the Levemir.
Im keeping a daily diary also...more to work out any patterns I can break! lol...I think I'm going to concentrate on not eating anything manufactured...keep it simple and fresh...I'm retaining so much fluid my shoes don't fit...it's just so damn uncomfortable ...I want an end to it!!!!!!!!!!!!!!!! So onward we go !

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Old 10-14-2011, 02:26   #26
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Originally Posted by d33na View Post
Im keeping a daily diary also...more to work out any patterns I can break! lol...I think I'm going to concentrate on not eating anything manufactured...keep it simple and fresh...I'm retaining so much fluid my shoes don't fit...it's just so damn uncomfortable ...I want an end to it!!!!!!!!!!!!!!!! So onward we go !
Can you ask you Doc for a "water pill" to help you get rid of the fluid? I agree - it is EXTREMELY uncomfortable. It's like it effects your whole body!!

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Old 10-14-2011, 03:20   #27
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Can you ask you Doc for a "water pill" to help you get rid of the fluid? I agree - it is EXTREMELY uncomfortable. It's like it effects your whole body!!
I will do if nothing shifts soon...right now Im cutting carbs way back...

0 for breakfast

5 - 10 lunch and dinner

see how it pans out over a week...

lol I already have shoes in 3 sizessssssssssssss

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Old 04-26-2012, 16:57   #28
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Its not an allergy, its a side effect. I've been dealing with this for years. Finally I asked my endo to give my some diuretic and that fixed the problem. Small dose before bed and its all gone in the morning. I already was taking benicar for the kidney protection factor, so this was just added to the medication as it comes in combination with a diuretic. Ask your doctor.

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Old 04-26-2012, 17:01   #29
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oh and good luck with the low carbing. It will work for you, but it is very tough to stick to. I have found that I do better with moderate low carb, not extreme and I don't need all that much extra insulin if I do like 20 carbs a meal. Count your calories, too. Insulin makes you hungry and you tend to pick.

I have an iphone app for both my glucose and calories and they help tremendously.

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Old 04-26-2012, 17:35   #30
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Insulin stores glycogen, and that requires fluid.

But, Storm, this post is pretty old and the OP was banned, here.

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