Collaborative medicine

Go Back   The Diabetes Forum Support Community For Diabetics Online > Diabetes Forum Community > Diabetes

Diabetes This section of the forum can be used to discuss anything and everything to do with Diabetes. Please use this general Diabetes section for any comments or discussions that don't fit into the more specific forum categories below. Please also ensure that all posts and threads are on topic, about Diabetes.


Like Tree7Likes
  • 3 Post By AnnC
  • 1 Post By CDB
  • 3 Post By AnnC

Collaborative medicine


Closed Thread
 
Shared Thread Thread Tools
Old 05-18-2012, 00:18   #1
AnnC
Guest
 
Posts: n/a


Default Collaborative medicine

Some years ago, on another forum, one of the long-term members posted about how he'd been diagnosed with Stage 4 renal cancer and given less than 6 months to live, but had used the Internet to find out everything he could about it, with the result that he was still alive and effectively cancer-free.

It was this man's story that led me to jump online looking for assistance within a couple of hours of diagnosis, and here is where I found myself. And I got lots of great advice.

An important part of ePatient Dave's success was that he found a surgeon who included him in the decision-making, answering his questions honestly and helping him understand everything about his cancer.

Dave is now a full-time e-patient advocate, speaking at patient groups, meetings on collaborative medicine, and generally promoting the empowerment of patients at all levels. He is currently one of the speakers at a meeting on shared decision making: the patient voice in health care in Maine.

Having read here in many threads of the frustration some members are having in dealing with their GPs, endos etc., I thought that Dave's story and the links on his website might be of both interest and some help to those who need to contact and select suitable medical partners in their journey with diabetes.

I'm pretty sure that if I hadn't had Dave's experience in mind when I needed desperately to find out all I could to manage my diabetes, it would have taken me a lot longer to get to where I am today than it has.

Shanny, MCS and Patdart like this.

Last edited by AnnC; 05-18-2012 at 00:23.
 
Old 05-18-2012, 14:52   #2
CDB
Senior Member
 
CDB's Avatar
 
Join Date: Apr 2012
Location: New York
Posts: 462

Member Type
Type 2
Diagnosed in 2012

492 likes received
40 likes given
Default

An unforuntate experience which for him at least turned out for the better, which is good. The medical system within the US, and most elsewhere really, isn't geared towards patient care in the sense that you or I would like it to be. It's more by the numbers care for the numbers, notably the bottom line of doctors and insurance companies. We could debate endlessly about how or why this is and what's the best way to fix it, but in the end what it means now is you've got to be your own advocate and ask questions, including whether or not the guy or gal you went to for care, despite their degree, is competent. And even if they are, are they serving you and your interests with their decisions? You're the one who is going to live or die on the results, may as well belly up to the bar and demand the service you want.

Shanny likes this.
CDB is offline  
Old 05-18-2012, 17:41   #3
Senior Member
 
Join Date: Aug 2011
Location: Cleveland, Ohio - USA
Posts: 2,055

Member Type
Type 2
Diagnosed in 2000

1638 likes received
130 likes given
Default

I believe it is of the utmost importance for one to be as involved as possible with their healthcare. If a doctor is unwilling to work with me and gives me the "do what I say or else" attitude, I just walk out and never return to that particular doctor. I don't need to be treated like a child who has done something bad. I need someone who will give me the information I need, be honest and blunt, and work with me to improve my health. I live in this body; nobody else. I know what I feel and how I feel, so don't be so pretentious to think you know me better than I know myself. I don't need a superior attitude from a doctor. They are nothing but another human who happened to go to school to gain the knowledge they did, but it doesn't make you better than me.

Okay, with that said, I just want to comment about my last appointment with my diabetologist, whom I believe truly cares about my health, but said something that truly disturbed me. As most of you know, I've had great difficulty with number fluctuations due mostly to things beyond my control (not the WOE that I have adopted, but internal happenings with my system due to age and stage of life). Of course I try to understand all of it, but some of it is just a bit over my head or just doesn't make sense to me. So, when the diabetologist muttered under her breath "would you consider gastric bypass?" I immediately said "no". I don't believe that is the answer to all of this! And, gastric bypass has its own set of problems. I am overweight; have been most of my life. However, I don't think that I'm am so overly obese that I would consider such a serious surgery as this without having more than just diabetes! That was a bit disappointing to me. But, I'll let it go for now and just keep up with what I've been doing. As I've stated before, I'm just one of those that is going to have to claw my way to tight control. It doesn't mean that I'm spiking at 400 or something! Not even close to 300 anymore. I do get some numbers in the 200's, but I need to really review what did I do that sent me that high and not repeat that again. Mostly my numbers are below 200, but I'd like to get them to be mostly below 140. Some things just make absolutely no sense when I have a lower number and cannot for the life of my figure out what did I do different, or when a number is higher and can't figure out why.

Thanks for listening. Just my frustration getting to me again!

__________________
**Renee***

Metformin - 2000 mg daily
Humulog - on a PING Pump now...
Zoloft - 100 mg
Milk Thistle
Alpha Lipoic Acid
Biotin
GTF Chromium
Fish Oil - 4 grams a day
Vitamin D3 - 5000 iu daily
81 mg aspirin daily
Probiotic
naynay is offline  
 
Old 05-18-2012, 21:59   #4
AnnC
Guest
 
Posts: n/a


Default

It's also up to us as patients to read as much as we can, ask intelligent questions, challenge (in a respectful way) any statements that indicate the doctors are just parroting the numbers at us, and generally indicate that we consider ourselves partners with rights - in fact, overriding rights - in the partnership.

Prior to D, my last serious interaction with the medical profession was back in 1987/88 when I was (finally!) diagnosed with severe endometriosis and told that I needed a radical hysterectomy. I was given no other option, although I was told that I could choose when, and continue on the hormone treatment as long as I liked. I chose to do it soon, and the results were really good. But in those days, there was little information available to me, the online bibliographic databases all costing hundreds of dollars an hour to access, even though I had that access and the skills to search them. 99.9% of the non-medical population didn't even have that.

Now that we have the resources, we need to assist with implementing the changes to doctors' attitudes by making it clear that we are entitled to have our say.

I just think it's good that meetings such as the one Dave was speaking at are happening, and that there is, in some places at least, recognition that shared decision making can result in better medicine. Let's hope that those doctors with fragile egos can eventually learn from other doctors and their patients.

Since I got D (and I'm a lot older and more assertive now, as well as having networks and free access to the information) I've made it clear to my doctors that I feel entitled to do my own research, and discuss the results of that research with them. They're also seeing the results of this, and so far, are delighted for me. I hope they are passing on some of this to their other patients, which is one reason I've been so up front with them about what I am doing.

Shanny, Patdart and Hillary like this.
 
Closed Thread

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Homeopathy Medicine manunamdev1 Diabetes 7 01-07-2012 23:43
Bittergourd Capsules instead of medicine? dezmay Diabetes Treatment 7 10-23-2011 05:17
laughter is the best medicine onlymep Diabetes Treatment 0 05-19-2011 13:26
Help those in need of Diabetes medicine and supplies cameronbuss Diabetes Medication and Supplies 3 07-21-2008 11:06

LEGAL NOTICE
By using this Website, you agree to abide by our Terms and Conditions (the "Terms"). This notice does not replace our Terms, which you must read in full as they contain important information. You must not post any defamatory, unlawful or undesirable content, or any content copied from a third party, on the Website. You must not copy material from the Website except in accordance with the Terms. This Website gives users an opportunity to share information only and is not intended to contain any advice which you should rely upon. It does not replace the need to take professional or other advice. We have no liability to you or any other person in respect of any content on this Website.


All times are GMT +1. The time now is 03:17.




Powered by vBulletin®
Copyright ©2000 - 2020, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO
vBulletin Security provided by vBSecurity v2.2.2 (Pro) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
User Alert System provided by Advanced User Tagging v3.1.0 (Pro) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.