Do You Hide Your Diabetes ?

Go Back   The Diabetes Forum Support Community For Diabetics Online > Diabetes Forum Community > Diabetes

Diabetes This section of the forum can be used to discuss anything and everything to do with Diabetes. Please use this general Diabetes section for any comments or discussions that don't fit into the more specific forum categories below. Please also ensure that all posts and threads are on topic, about Diabetes.


Like Tree80Likes

Do You Hide Your Diabetes ?


Closed Thread
 
Shared Thread Thread Tools
Old 09-29-2014, 16:04   #1
Senior Member
 
Richard157's Avatar
 
Join Date: Dec 2007
Location: Kingston, NY
Posts: 3,024

Member Type
Type 1
Diagnosed in 1945

931 likes received
936 likes given
Default Do You Hide Your Diabetes ?

For many years after my diagnosis in 1945, I did not know another diabetic. I mentioned my disease to a couple of friends when I was a teen, but they looked so puzzled. They did not know what I was talking about, and I doubted they even believed me. So I hid my diabetes for many years, but I did try telling a few teachers in high school and college. They did not seem to understand, and maybe they did not believe me. When I was a college sophomore I had a very bad hypo while taking my first calculus test. When I approached the teacher and explained that my vision was blurred, and I could not read the test paper, he would not help me in any way. That was the only test I ever failed. There seemed to be almost no knowledge about diabetes in my early years.
I dated and told my girlfriends. It did not seem to make a difference to them that I was a diabetic. That was probably because they did not know enough about it to be concerned. The first person I knew who really was concerned was my wife, but only after we were married. She was not concerned before we were married because she never saw me have a hypo. I was high much of the time on animal insulin. I did not tell my students after starting my teaching in 1962. There did not seem to be any reason for doing so. I was alone as a diabetic, except for my family, until I was married. My wife and I have been married for 50 years, and she has been so wonderful in so many ways with helping me with my diabetes. But there was still something missing!
In July, 2006, I found diabetes on the internet. That essentially changed my life, in a very important way. There were so many people online who were diabetics, or they had family members with diabetes. We talked with each other, and we learned so many new things. I believe that at least 80% of what I know about diabetes was learned on the internet. I was helped in so many ways, and my control and my life improved. I became a diabetes advocate to many online people who needed to know the things I had learned. So many parents of diabetic children have found me to be an inspiration because I was diagnosed when I was 6, and am very healthy now that I am 75.
After 69 years as a type 1 diabetic, I am very comfortable telling people about my diabetes, and about diabetes in general. It is very comforting and rewarding to give and receive help online. I will never again hide my diabetes. I hope my online friends feel the same way!

__________________
I have been Type 1 for 73 years. My A1c is 6.2. I pump with the MM 630, and I am using the Dexcom G5.
Richard157 is offline  
Old 09-29-2014, 16:09   #2
Senior Member
 
macksvicky's Avatar
 
Join Date: Sep 2014
Location: Missouri Ozarks
Posts: 1,235

Member Type
Type 2
Diagnosed in 2002

2609 likes received
11320 likes given
Default

Wow, what a story! Thank you for posting this. Congratulations to you both for 50 wonderful years
__________________
Vicky

A1C at DX 2002 7.2
7/14 8.8
10/14 5.2
1/15 4.8
4/15 4.8
9/15 5.2

3/16 5.4
Weight was 280 now 186, 94# lost so far
macksvicky is offline  
Old 09-29-2014, 18:47   #3
Senior Member
 
silvertiger's Avatar
 
Join Date: Nov 2011
Location: Saskatchewan, Canada
Posts: 3,861

Member Type
Type Pre
Diagnosed in 2011

4282 likes received
5061 likes given
Default

I'm so glad!

I have to admit that I do hide my diabetes in a way, in that I don't bring it up unless someone questions my food choices. Even then I tend to phrase it as "carb-intolerant". But then I am Type 2 and don't have to inject anything.
__________________

View silvertiger's full Diabetes Forum profile here.
silvertiger is offline  
 
Old 09-29-2014, 18:52   #4
Senior Member
 
Join Date: Jun 2014
Location: United States
Posts: 1,354

Member Type
Type 2
Diagnosed in 1993

2016 likes received
293 likes given
Default

I come from a strong history of family members that are diabetics. No one ever told me about their diabetes. I knew my father had diabetes, and I knew his father was a type 1. So yeah, they basically hid their diabetes, probably more to the denial of life insurance problems. I wish my father had been more open to his diabetic complications, like suffering a heart attack at age 42. I knew he was worried about his feet, but he never described what he was feeling. He worried about amputation of them. Maybe if he shared what he felt, I may have been more careful about my diet. I suffered from mental problems for most my life, and ppl are closed about that. But I advocated for my treatment and got more insurance coverage for me and everybody under the plan (they treat mental like a medical problem now). So good things come from sharing!

I like you went on the internet and found wonderful communities of people just like me. So I share what I've found, so maybe it will help someone else. It's a form giving back what has been given to me! Love you all! Ya'll are wonderful people and the best community on the net.

Roxanne0312 is offline  
Old 09-29-2014, 21:39   #5
Senior Member
 
gotsomeold's Avatar
 
Join Date: Jan 2014
Location: US - GA and SC
Posts: 2,584

Member Type
Type Pre
Diagnosed in 2013

4673 likes received
4863 likes given
Default

When the family gets together...well...with some of us eating LC or LCHF, some of us vegan, some of us piscatarian, and several of us carb-addicts ... well, no one pays much attention to what anyone else is eating. And we have so many other things to talk about.

I am glad the online community exists! It is good to talk about it with people who get it!
__________________
- Nancy

wf, 63yo, 5'4", 110 lbs
LCHF diet-controlled T2
DXd myself with PP BG over 270
DX 12/13 with A1C 5.9
8/26/14 HbA1c 5.5
avg BG: 90 - 95 before meals, 100 - 110 one hour PP, 95 2 hours PP
gotsomeold is offline  
Old 09-29-2014, 23:55   #6
Senior Member
 
grammaB's Avatar
 
Join Date: Feb 2012
Location: Beautiful Big Sky Montana, USA
Posts: 7,783

Member Type
Type 2
Diagnosed in 2012

7323 likes received
13044 likes given
Default

Not really. My friends here that I socialize with know I have diabetes and eat lc/mp/hf/keto and when we get together there is always something I can eat besides what I bring. My kids are in CA. My DD eats paleo so we are very compatible and my DS has a T1 daughter (15 yo) so there are always selections for her at the table that are lower carb than the other family member's selections.

I've even mentioned it to a couple of the "sample people" at Costco and an Organic grocery, when they try to push something too hard. Yah, it may be organic, gluten free or what ever but it has way too many carbs and is not good for a diabetic!!

__________________

View grammaB's full Diabetes Forum profile here.
grammaB is offline  
Old 09-30-2014, 09:11   #7
skb
Diabetic
 
skb's Avatar
 
Join Date: Dec 2011
Location: Mumbai, INDIA
Posts: 2,680

Member Type
Type 2
Diagnosed in 2007

4080 likes received
2435 likes given
Default

You are an inspiration Richard. I've personally learnt a lot from you and your posts. I think that you are the most talked about diabetic on online communities. So your diabetes is known about, one way or another.
__________________
A1c ~ 5.4
Follow LC/HF diet since Aug 2010
Control only with diet/exercise. No meds.

Blog - Metabolically Challenged
skb is offline  
Old 09-30-2014, 09:43   #8
Senior Member
 
Shalynne's Avatar
 
Join Date: Apr 2011
Location: San Francisco Bay Area, CA, USA
Posts: 5,399

Member Type
Type 2
Diagnosed in 2011 (on insulin)

6972 likes received
5382 likes given
Default

Granted, it's kinda hard to see from here, but I'm a very private person. For me, it's not so much a matter of keeping diabetes a secret -- it's more that I tend to be hush-mouthed about everything personal.

That said ... when someone (anyone) repeatedly shoves cake under my nose, the D-word shall come forth. If a casual conversation just happens to turn to diabetes, well, most likely I was not the one to start it ... but ... yes, I'll take advantage of that Teachable Moment.

Online? Strictly no holds barred. (My favorite debate on diabetes/low-carb happened on a music forum!)

In the final analysis, I feel I have a right to privacy, but there's also a responsibility to inform and educate. Hence, I don't wear a "Diabetic" neon sign, but I'm always ready to come out of D-closet.
__________________
DX'd April Fool's Day, 2011 - T2
Female, 58, 5'7", 150 lbs.
A1C 13.5 -> 6.7 ->5.4 (1/31/14)
MEDS:
Humulin-N (basal) - Humalog (rapid bolus)
MAGIC POTIONS:
Biotin --10,000mcg (for hair health)
B-complex
One-A-Day Women's 50+ Advantage
KyoDophilus (pro-biotic)
LIFE SUPPORT:
Black Coffee - Unsweetened Iced Tea
Low-Carb, High-Fat Convert

Last edited by Shalynne; 09-30-2014 at 11:11.
Shalynne is offline  
Old 09-30-2014, 15:48   #9
Active Member
 
Join Date: Mar 2014
Location: usa
Posts: 76

Member Type
Type Pre
Diagnosed in 2014

120 likes received
76 likes given
Default

Honestly, yes I do.

I'm overweight and being overweight is a license for people to overtly or subtly blame diabetics for their disease. Just don't need that attitude.I've seen it with my own eyes with friends and family members.

I'm currently losing weight with the goal of reducing my A1c. So now, I just say I'm dieting when presented with a piece of cake or cookie. People seem to respect that statement. I don't know how I will handle the pushy food folks after I get down to my ideal weight.
__________________
Dx: 3/14-A1c 6.1
Newest A1c: 3/15-A1c 5.6, FBS-84
5'10" 180lbs
No meds

All my posts are my opinion or experience only.
dagnabit is offline  
Old 09-30-2014, 22:35   #10
Senior Member
 
silvertiger's Avatar
 
Join Date: Nov 2011
Location: Saskatchewan, Canada
Posts: 3,861

Member Type
Type Pre
Diagnosed in 2011

4282 likes received
5061 likes given
Default

dagnabit, I have to admit that I feel a bit defensive about calling myself diabetic because I am overweight as well. Luckily so far, nobody has called me out about not eating sweets at work functions. (And the other diabetic ate two pieces of cake, so that would confuse coworkers too.)

Richard157, Shalynne and kyteflyer like this.
__________________

View silvertiger's full Diabetes Forum profile here.
silvertiger is offline  
Closed Thread

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Do You Hide Your Diabetes? Richard157 Diabetes 77 09-21-2012 15:55

LEGAL NOTICE
By using this Website, you agree to abide by our Terms and Conditions (the "Terms"). This notice does not replace our Terms, which you must read in full as they contain important information. You must not post any defamatory, unlawful or undesirable content, or any content copied from a third party, on the Website. You must not copy material from the Website except in accordance with the Terms. This Website gives users an opportunity to share information only and is not intended to contain any advice which you should rely upon. It does not replace the need to take professional or other advice. We have no liability to you or any other person in respect of any content on this Website.


All times are GMT +1. The time now is 18:33.




Powered by vBulletin®
Copyright ©2000 - 2020, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO
vBulletin Security provided by vBSecurity v2.2.2 (Pro) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
User Alert System provided by Advanced User Tagging v3.1.0 (Pro) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.