My CGM Journey - Page 8

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My CGM Journey - Page 8


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Old 12-01-2016, 13:46   #71
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I'm happy to report that I have gotten better at taping the sensor on! My current sensor has been on for 21 days. I plan on keep it on until it either gets itchy or stops being accurate.

My current sensor prep routine is this:

1. Rub with alcohol to de-grease my skin for better adhesion.
2. Apply skin-tac, which makes the adhesive on the sensor stick better to my skin.
3. Put on the sensor.
4. Cover the sensor with Tegaderm. I cut a hole in the center which the transmitter goes through using a gift tag punch. This keeps the sensor tape dry when I shower.
5. Add some OpSite FlexFix tape around the edges. Probably don't need both tegaderm and flexfix, but this ensures that when the edges pull up, it's well away from the sensor tape. As the tape comes up over time, I trim with scissors and occasionally throw on another strip of FlexFix.
6. Use uni-solve to unstick the sensor when I'm done. It softens the adhesive so that it just slips off, then it degunks my skin, removing leftover adhesive, leaving my skin happy and smooth, with no red marks.

I am allergic to latex and extremely sensitive to most adhesives I've run across. So very happy to report that nothing in my sensor setup irritates my skin one bit.

Fun fact: Dexcom will help you out if you bork up a sensor insertion (or at least they did for me). My second time, I put it on and then fumbled when taking off the inserter, the sensor came unstuck from my arm, ruining it. They overnighted me a replacement. Have to say, the Dexcom team has been the best "diabetes interaction" I have ever had with any medical professional. They are the best!

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Old 12-06-2016, 22:30   #72
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Saw the Endo today for my 3-month checkup. Now that I am turning into a cyborg, I don't get to see the dr. willy-nilly as I feel like it but that's okay.

She's very happy with how I'm controlling things, tweaked my basal a bit as she thinks that perhaps my higher dinner readings are in part due to flagging basal.

She had a resident with her that she was training and it was interesting to watch their interaction. The resident greeted me, did a catchup on how I was doing, my ratios, and reviewed my CGM readings. Then the dr came into the room, the resident gave her a "report and recommendations". Then the Endo lead the resident about a bit trying to solicit her to guess that my basal may be off. Maybe I just enjoyed it because it took the pressure/focus off of me but I do like thinking that I am helping make better doctors down the road.

I asked about a pump, just to see what she thought about it and she is totally for it. She offered to write a letter to my insurance to make it happen. I'm in a odd situation since United Health Care recently decided to only cover a single pump manufacturer, with zero coverage for other pumps without an exemption. UHC only covers Medtronic, which is a neat gadget but it uses a different (less accurate) CGM, and isn't T2 friendly, with only 3mL capacity. The Tandem T:Flex works with my Dexcom and holds 4.8mL which would let me get a full 3 days per infusion site.

I chatted with Tandem today, siccing them on my insurance company. They think that the capacity issue should grant me an exemption. He's writing the letter for my doctor, and sending it to her to tweak as she sees fit, or just signing off. Very helpful!

With any luck (hah!) I'll have a fully covered pump of my choice by the end of the month, before my deductible resets.

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Old 12-06-2016, 23:10   #73
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Great news! What a road you've traveled to get here. Could not be more well-deserved.

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Dx'ed Feb 2011 w/ BS > 600
A1C: . . . . . . . . . . . . . . . Other Stuff
2/13/11 .. 14.7 . . . . . . Trig/HDL ratio .. 5.5 to 2.2 in 6 mo
5/23/11 .. 6.2 . . . . . . . Low-carb/high healthy-fat diet
9/8/11 .... 5.6 . . . . . . . No meds, No statin
2/24/16 .... basal/bolus insulin 2-3 days/wk due to steroids

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Old 12-20-2016, 01:19   #74
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My pump is arriving on Thursday, a little Christmas present to myself!

Long story short, I decided to get the pump that insurance would not pay for, the Tandem t:slim X2. I paid for it myself ($4,300) and insurance will pay for the supplies at 100% going forward.

It's a lot of money (both the CGM and now the pump) but I think it's the best way for me to spend my money right now. While it would be nice if insurance paid for stuff, I won't sacrifice my health because of it. I'm so thankful that I am so lucky to be able to make that decision.

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Old 12-20-2016, 03:25   #75
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Congrats Daytona on getting your pump.

Makes no sense to me why an insurance company is paying $X on a pump, they could still pay $X on any pump and the insured could pay the difference if there is any. Is full coverage of supplies normal?

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Old 12-20-2016, 06:42   #76
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Quote:
Originally Posted by Daytona View Post
I decided to get the pump that insurance would not pay for, the Tandem t:slim X2.
Ha! A pump so new it doesn't even have a non-Geek name yet!

Congrats. You've earned this one!

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Dx'ed Feb 2011 w/ BS > 600
A1C: . . . . . . . . . . . . . . . Other Stuff
2/13/11 .. 14.7 . . . . . . Trig/HDL ratio .. 5.5 to 2.2 in 6 mo
5/23/11 .. 6.2 . . . . . . . Low-carb/high healthy-fat diet
9/8/11 .... 5.6 . . . . . . . No meds, No statin
2/24/16 .... basal/bolus insulin 2-3 days/wk due to steroids

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Old 12-20-2016, 18:58   #77
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Quote:
Originally Posted by mbuster View Post
Congrats Daytona on getting your pump.

Makes no sense to me why an insurance company is paying $X on a pump, they could still pay $X on any pump and the insured could pay the difference if there is any. Is full coverage of supplies normal?
I have United Health Care for insurance and they recently made the unprecedented decision to only cover one type of insulin pump.

https://diatribe.org/unitedhealthcar...tarting-july-1

If I needed a different pump for a medical reason, like getting the t:flex because it has a higher capacity for Type 2 diabetics, I could have applied for a medical exemption and gone through that stupid process.

After some hard thought, I didn't want to tie myself down for 4 years to a pump that would never integrate with my CGM and won't be upgraded (I asked). The pump I went with isn't "different enough" from the covered pump from Medtronic to warrant an exemption. I chose it because it allowed me to use the superior Dexcom CGM which I am already very happy with, and because instead of buying a new pump every time new features comes out, I can update the software. So when Dexcom integration is added next year, and then closed hybrid looping, I can get it without paying for another pump.

"Supplies" are essentially the insertion set and I think they get a large discount on it. It doesn't cover insulin at 100% which is the next largest expense. And I'm still paying for the Dexcom myself. So it's not as much of a big deal as it sounds.

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Old 12-20-2016, 19:02   #78
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Quote:
Originally Posted by moon View Post
Ha! A pump so new it doesn't even have a non-Geek name yet!

Congrats. You've earned this one!
If by "You've earned it" you mean "You have raging DP that can't be controlled with 2x/daily basal injections" then haha, I guess I have!

Hmmmm, I should come up with a cool name for it... I've been calling myself a "cylon/toaster" and "borg" and "cyborg" with all my attachments, so maybe I can draw some inspiration from that. The Dexcom is skynet (from The Terminator).

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Old 12-29-2016, 00:30   #79
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The Tandem trainer is coming to my house tomorrow to teach me how to use the pump. Normally I'm the type of person to just wing it, but putting a 25 gauge, 9mm needle in my tummy with a direct line to enough insulin to kill me... I figure I would have someone watch my technique and pick her brains for tips/tricks.

The doctor forgot to prescribe vials so she's going to show me how to MacGuyver insulin out of my pens. Otherwise I've read the brand spanking new Pumping Insulin (new edition this Sept), and programmed the pump with what I think sounds like a good start. Should be fun to compare that to what the doc suggests.

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Old 12-29-2016, 05:13   #80
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Quote:
Originally Posted by Daytona View Post
The Tandem trainer is coming to my house tomorrow to teach me how to use the pump. Normally I'm the type of person to just wing it, but putting a 25 gauge, 9mm needle in my tummy with a direct line to enough insulin to kill me... I figure I would have someone watch my technique and pick her brains for tips/tricks.
Well, since you put it that way ... good plan! (though admittedly you had me at the needle plunge into belly bit ...)

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Dx'ed Feb 2011 w/ BS > 600
A1C: . . . . . . . . . . . . . . . Other Stuff
2/13/11 .. 14.7 . . . . . . Trig/HDL ratio .. 5.5 to 2.2 in 6 mo
5/23/11 .. 6.2 . . . . . . . Low-carb/high healthy-fat diet
9/8/11 .... 5.6 . . . . . . . No meds, No statin
2/24/16 .... basal/bolus insulin 2-3 days/wk due to steroids

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