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Old 04-08-2017, 21:27   #21
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@hftmrock

FIRST RESPONSE

Yes, I am producing some insulin. As per my NP, I am "honeymooning", which is why that is happening.

Maybe their concern is that I no longer use insulin and one day or night my honeymoon is over and my blood glucose rises to a level I can't control.

I have enough insulin for an army, at least until it expires in 2021. I have TONS of it. Pens, vials, you name it.

No matter what, even if I continue to control this without insulin, I will always test my blood glucose and I will always keep a pen with me "just in case". I don't plan on telling myself that I'm not a diabetic because I am not taking insulin.

I don't think my doctor(s) fully understand that.

I did a lot of research today and might have found a new supportive endocrinologist and a dietitian. But, the dietician wants me to have "medical support" before she agrees to work with me.

I'll know more this week.

SECOND RESPONSE

Funny you said that. My primary thinks I'm a 1.5. Hopefully I will have more answers soon!

THIRD RESPONSE

I will post my results here at the end of the week once I receive them!

She drew blood yesterday mid-afternoon, no fasting or anything. Based on reading, there is debate as to whether or not you should fast prior to a C-PEPTIDE test because of the reason you posted earlier.

I'll mention that to her and see what she has to say.

Enjoy the rest of your weekend and thank you again for the time and information! I'll work on increasing the fat a bit and reducing my carbohydrates a bit more!

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Old 04-09-2017, 17:43   #22
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My attention span is short today (med side effect), but I wanted to comment that much of what docs know about Type1 diabetes is based on CHILDREN. Children GROW and they need carbs to grow or to keep up with their genetically defined growth pattern (Dr. Bernstein does not disagree with this). Maybe that is part of the problem. Your endo isn't basing his/her recommendations on ADULTS with type1 - you no longer need to grow. In addition, too many carbs can create insulin resistance in type1 diabetics as well.

Now the only carb my endo is concerned about is citrus because it's already been shown in me that I heal slowly and citrus actually demonstrably helps. That may not be your issue at all - but it showed clearly on small wounds that I had that would not heal. So, with my low carb high fat plan, I agreed to include citrus since, for me, its no different from a med.

FYI - initially 1.5 was suspected, but my c-peptide was actually above normal and GAD was negative. Next time, doc did it and c-peptide was below normal and I had some kind of islet antibodies which was a definitive test as well for 1.5. I wonder if the c-peptide came up the first time that way because I was fasting and the 2nd, I wasn't? Don't know.

Ok, hope to reread this thread when brain is working better.

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Old 04-11-2017, 04:52   #23
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That may not be your issue at all - but it showed clearly on small wounds that I had that would not heal. So, with my low carb high fat plan, I agreed to include citrus since, for me, its no different from a med.
Although I don't have specific wound-healing issues, a month or so ago I landed in Urgent Care with a freak accident on my ring finger (something about a ring and washing dishes and a hairline crack that made the ring pierce my finger and my trying to cut the skin off and making a bloody mess ... ). They got my ring off, gave me tetanus, lots of bandages and sent me on my way.

Just the month before, a friend for decades had sent me some healing gel made from Manuka honey. He's from NZ originally, where it comes from. He had a bad bike accident, had some in the house from a company that wanted him to represent the product, and figured he'd document if/how it worked. (You can see under Testimonials at https://honeyforhealing.com/how-it-works/ )

Anyway, that evening I applied it, then again 4 hours later, and in the morning I could see only some discoloration where the wound had been. Seriously! I called him and said 'Before I believed you, but now I'm a believer!" Got a cut on my finger last night, this morning it was slightly infected and swollen, used it, and bang - it has healed and there's no evidence where it was.

He said Manuka has become so valued in NZ, prices soaring, supplies short, that it's like drug wars!

Anyway, Manuka honey creams/ointments/etc are around from others, I've no monetary interest in his product, but I can definitely recommend it. Truly amazing stuff.

(oops - sorry for the tangent in your thread knarfny!)

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Old 04-11-2017, 10:34   #24
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Originally Posted by knarfny View Post
...................

So you're thinking that if my numbers naturally rise when I'm sleeping then I'm producing glucose, which should make the ketones go away?
Glucose doesn't make the ketones go away, insulin does. That is why ketosis seldom becomes ketoacidosis for type 2s. Increase of BG is usually accompanied by an increase in insulin production. What occurs naturally for most type 2s has to be manually initiated by type 1s.

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Old 04-12-2017, 00:08   #25
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@hftmrock

Wanted to share some information with you.

I went to see my new endocrinologist and he provided me with some answers.

As you know, my original doctor told me to get to the emergency room because I had ketones present.

My new endocrinologist said it's perfectly normal to have ketones present with a low-carbohydrate diet, which doesn't even mean a true keto diet. He suspects anything less than 100G of carbohydrates daily should cause ketones. Perfectly normal. He doesn't agree with it, but that's another story. You shared all of this with me, so you were spot-on.

Now, here is what is dangerous, but it depends on the person and the amount of control that person has.

Ketones aside, a low-carbohydrate diet means I have no glycogen storage. One day I slip up, whether it be drinking alcohol, to much yard work, my blood glucose drops quickly. It's going to be very hard for me to recover because I have no glycogen storage. I have no carbohydrates in my system, therefore no "sugar". I might have worded that a bit differently, I'm working off memory. I'm pretty sure that's what he said.

The other potential problem is insulin resistance. My original carbohydrate-to-insulin ratio was 13:1 and sensitivity 35. Now, on such a low-carbohydrate diet with extremely high protein, that has changed and will continue to change. Thing is, without experimenting, I won't know what the change(s) are and if I ever decide to "cheat" or indulge, I won't know what to bolus.

The concern is one day I cheat, or, I order a diet soda and it's actually not diet. My blood glucose shoots up to 300. So in the past I would need ~6-units to get myself back to a normal number and it would take about 2-hours; give or take. Now, I might need only 2-units and it might only take 30-minutes. But, if I accidentally take 3-units, I'm in trouble.

He described it as giving a non-diabetic 3-units of insulin, it would kill them. He feels that is the situation I might face at some point.

The way he described it was the stricter I am with my lifestyle "diet", the harder it's going to be to figure out.

If I was "perfect" all the time, he doesn't see any issues at all. But he said it's a very hard lifestyle to lead and I'm walking a tight-rope.

With all of this, he was still very confused on my near perfect numbers without the need to bolus for ~100G of carbohydrates daily, plus I have to set up a temporary basal at 0% for about 6-hours daily; more if my activity level increases.

Bottom line, I'm surviving with ~18-units basal daily, no bolus and according to him, VERY little insulin production according to my .5 C-PEPTIDE. He said that it doesn't coincide with my C-PEPTIDE and GAD65.

We did all sorts of new bloodwork, which are pending results.

He said there is a slight chance that I am a mutant of sorts, very rare, very lucky, or having the best honeymoon in existence.

I'll tell you this, I fertilized my lawn today, which consisted of walking back and forth over 14,000 square feet. Took me about 45-minutes. I was a 118 when I started and I suspended my basal when I started. I was a 42 by the time I was done and honestly, I felt fine. No sweats, no shakes, no nothing. I ate a yogurt with 18G of carbohydrates and recovered very quickly, so no issue.

This sort of goes with what my new endocrinologist said, in regards to not having any "storage". A little bit of new activity, and there was a dramatic change. Had I stood outside for another 10-minutes, I could have been dealing with some serious consequences!

Thanks for reading and I'll update again soon upon receipt of my blood work.

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Old 04-12-2017, 01:14   #26
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i'm really really glad that you found an endo that you can work with. I'm anxious to hear about your blood work numbers

I am not type 1 so I cant really give any practical advice past what you already know but I think this doctor has the potential to be an advocate to you to find the right balance of nutrition and medication to help you on your journey.

I believe you can do this and I think with the information you have and your doctor which is now a partner in this, you will be able to find that 'sweet spot' that works for you.

Please let us know when your blood work comes back. I am very curious to the results. I am still thinking that you have the potential to be 1.5

Also I wonder if you eating slower digestible carbs in smaller doses might keep your numbers from making high fluctuations.


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Here are some good starting points to read

Blood Sugar 101 - VERY informative and accurate
http://www.diabetesforum.com/diabete...ng-method.html a tried and true testing method
https://www.dietdoctor.com/low-carb lists foods for LCHF

""You take the blue pill, the story ends. You wake up in your bed and believe whatever the doctors want you to believe. You take the red pill, you stay in Wonderland, and I show you how deep the rabbit hole goes." "
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Old 04-12-2017, 01:37   #27
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Quote:
I was a 118 when I started and I suspended my basal when I started. I was a 42 by the time I was done and honestly, I felt fine. No sweats, no shakes, no nothing. I ate a yogurt with 18G of carbohydrates and recovered very quickly, so no issue.
curious... when did you eat before this ? what did you have? Im curious to that as well

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Here are some good starting points to read

Blood Sugar 101 - VERY informative and accurate
http://www.diabetesforum.com/diabete...ng-method.html a tried and true testing method
https://www.dietdoctor.com/low-carb lists foods for LCHF

""You take the blue pill, the story ends. You wake up in your bed and believe whatever the doctors want you to believe. You take the red pill, you stay in Wonderland, and I show you how deep the rabbit hole goes." "
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Old 04-12-2017, 10:46   #28
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Here's my entire boring menu for the day, plus my numbers. I try to remain consistent during the week, it's easier for me to manage. The weekend's protein comes from meat, which of course increases fat and everything else.

04:22AM: 104BG
06:28AM: 6G CARB, 40G PROTEIN [Protein Shake]
09:13AM: 135BG [NORMAL FOR ME, TREND HIGH MORNING]
09:33AM: 2-HOUR BASAL SUSPENSION
09:33AM: WORKOUT, CARDIO
10:45AM: 6G CARB, 40G PROTEIN [Protein Shake]
11:30AM: 66BG
11:30AM: 18G CARB [Greek Blueberry Yogurt]
01:16PM: 128BG
01:42PM: 1-HOUR BASAL SUSPENSION, YARD WORK
02:11PM: 44BG
02:11PM: 17G CARB [Greek Peach Yogurt]
03:18PM: 136BG
03:21PM: 6G CARB [Protein Shake]
05:04PM: 148BG
05:04PM: 23G CARB [Potatoes & Zucchini, DINNER]
06:06PM: 188BG [NORMAL, NO INSULIN]
07:21PM: 90BG
08:30PM: 84BG
08:30PM: 3.5-HOUR BASAL SUSPENSION
08:30PM: 45G CARB [Before bed to keep my numbers UP.]

01:09AM: 116BG [TODAY]
05:06AM: 90BG [TODAY, WAKE UP, 40-MINUTES AGO]

Had I not suspended my basal before bed, I would have woke up at a 40 or not woke up. Remember, I suspended basal AND ate 45G carbohydrates right before I passed out.

My "Potatoes & Zucchini", it's just called that, my grandmother's recipe. I make it my own way, and use three small red potatoes in the whole pot, which is good for seven meals.

1,670 calories eaten, 170G protein [42%], 121G carbohydrates [30%], 50G fat [28%].

I do take fish oil and a multi-vitamin. I have to get some fiber in me, yesterday was only 4G.

So my basal was suspended for 6.5-hours in total plus about 1-hour "suspended", shower and all. So that's only 17-units of insulin yesterday via basal, no bolus whatsoever.

Also, the nutritionist said 121G of carbohydrates is low but not true keto low. To my system it's keto, because I'm so used to 500G of carbohydrates daily.

My calories are low right now because I'm trying to lose weight but I'm likely going to bump them up because I'm losing about 4-6 pounds weekly so I want to acclimate up to reduce the pace a bit. I'd rather do 8-10 pounds per month, this way I reach my goal weight in only 2-months.

This is what my doctor is confused about. According to him, with a C-PEPTIDE of just under .6, I WOULD NEED to bolus for 121G of carbohydrates.

He doesn't have an answer though. He thinks it's because of the high amount of protein keeping my "system" stable, or, and he said he was not trying to scare me, this is what happens when people go into renal failure.

But, C-PEPTIDE is from January 2016 and then October 2016. He does not think it changed, but I'll have new results soon. January it was a .56 or something and then slightly lower in October, I believe a .55.




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curious... when did you eat before this ? what did you have? Im curious to that as well

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Old 04-18-2017, 18:09   #29
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@hftmrock

I received my A1C and C-PEPTIDE results today.

A1C is a 6.2% and my C-PEPTIDE is a 0.96.

My endocrinologist and nurse practitioner have never seen a C-PEPTIDE level increase the way mine has.

They still label me as a T-1 because of the GAD antibody levels I have and wrote me a script to have them checked again.

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Old 04-18-2017, 19:03   #30
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@hftmrock

I received my A1C and C-PEPTIDE results today.

A1C is a 6.2% and my C-PEPTIDE is a 0.96.

My endocrinologist and nurse practitioner have never seen a C-PEPTIDE level increase the way mine has.

They still label me as a T-1 because of the GAD antibody levels I have and wrote me a script to have them checked again.
it sounds strange but I am very happy to know your C-PEPTIDE number is in the normal range.

it sounds like you are producing insulin on your own.

its really confusing and I don't want to guide you in the wrong direction. Type 1 is different than type 2 but it you are type 1.5 or even misdiagnosed and you are type 2, there are ways of treating diabetes better than type 1 (obviously).

Maybe a second opinion might help.

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Here are some good starting points to read

Blood Sugar 101 - VERY informative and accurate
http://www.diabetesforum.com/diabete...ng-method.html a tried and true testing method
https://www.dietdoctor.com/low-carb lists foods for LCHF

""You take the blue pill, the story ends. You wake up in your bed and believe whatever the doctors want you to believe. You take the red pill, you stay in Wonderland, and I show you how deep the rabbit hole goes." "
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