Education matters

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Education matters


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Old 07-11-2017, 08:49   #1
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Default Education matters

So further to my last- 'family tries' I want to ask your opinion oh fellow forum-ers. I come from a close family, I am one of four girls, all grown up now, and love taking care of my nephews whose ages range between 4 and 10, the off spring of the eldest of us girls (I am the third). My sisters all know that I have diabetes (I was only diagnosed in Jan last year and there is no family history). As I was trying to get used to it myself I didnt test or inject in public, instead going to a quiet corner. Not out of embarrasment or shyness but simply because I needed the headspace to do the maths etc. With confidence came the ability to inject by lifting a small part of my shirt and testing on my lap, so not excusing myself completely.
On my sisters request though, I don't do either of these in front of the boys. Mr 10 and Mr 8 know what diabetes is and that I have diabetes but they can't distinguish between T1 and T2. I am not slim by any means and the boys have come to the belief that I have diabetes because I eat too much. I have spoken to their mum and emphasised that she needs to explain T1. However to compound issues further, the boys see me take my red 'lunch box' into another room before we eat. They dont know that I am testing etc, they only see me disappearing with a lunch box. In their minds it is like I am having two meals, one sneaky one out of a lunch box and then the one at the table. I would like to explain to the two oldest what I am doing (not necessarily do it in front of them) and show them what is in my red box but I am not sure how to approach this with my sister. Any suggestions?

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Old 07-11-2017, 14:25   #2
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I will express my opinion but I will caution that this is my opinion and mine alone. the following is not an opinion of this site or any other member.

The first thing that struck me here is this statement



Quote:
Mr 10 and Mr 8 know what diabetes is and that I have diabetes but they can't distinguish between T1 and T2. I am not slim by any means and the boys have come to the belief that I have diabetes because I eat too much. I have spoken to their mum and emphasised that she needs to explain T1.
If I am understanding this correctly you are implying that type 2 is a fat person disease and not type 1. If I read this right, you should educate yourself on type 2 before discussing type 1 to the nephews. it is not a fat person disease nor should it be implied. if they think this or you think this, they (or you) definitely need to be educated entirely




Finally to the matter in which you posted. I believe education is critical and you say they know what diabetes is. do they truly know? do they know that your pancreas is damaged? In the same way an arm cant function properly if its broken, your pancreas is broken and it cant be fixed. sugar from foods stay in your blood and can hurt you badly if you don't get it removed and the shots help get the sugar removed.

I believe if you show them whats happening and why, they will fully understand. there are videos online (cartoon type too) to explain it clearly and give them an understanding so they don't think you are just eating too much. once you explain it, then you can tell them that in the 'lunch box' is the medicine you have to take and you cant take a pill like when they are sick. you have to give yourself a shot like they get at a doctor.

your sister(s) should be fully on board with this because all you are doing is teaching them about something that is very common in the world now.



again, just one persons opinion with respect.

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Here are some good starting points to read

Blood Sugar 101 - VERY informative and accurate
http://www.diabetesforum.com/diabete...ng-method.html a tried and true testing method
https://www.dietdoctor.com/low-carb lists foods for LCHF

""You take the blue pill, the story ends. You wake up in your bed and believe whatever the doctors want you to believe. You take the red pill, you stay in Wonderland, and I show you how deep the rabbit hole goes." "
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Old 07-11-2017, 14:43   #3
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Thanks, I didn't realise that I had given that impression regarding type 2. Definitely not what I was hoping for. I know that it is the misunderstanding the boys have and that is the stereotype they think I fit. Thanks for bringing this to my attention. I could have worded that so much better. I apologise from the very bottom of my heart.

Thanks for the suggestions on how to work with my nephews. I will definitely have a look at those ideas.

Again I am sorry that it appeared that I stereotyped type 2. Diabetes is hideous regardless of its prefix.

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Old 07-11-2017, 15:01   #4
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no apologies ever needed.

its all good. We are a family here too and you can count on us. no judgments here.

We stand together!

Good luck and let us know how it goes. it might be useful for others that might be in the same situation

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Here are some good starting points to read

Blood Sugar 101 - VERY informative and accurate
http://www.diabetesforum.com/diabete...ng-method.html a tried and true testing method
https://www.dietdoctor.com/low-carb lists foods for LCHF

""You take the blue pill, the story ends. You wake up in your bed and believe whatever the doctors want you to believe. You take the red pill, you stay in Wonderland, and I show you how deep the rabbit hole goes." "
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Old 07-11-2017, 15:33   #5
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From my perspective, it appears your sister is trying to shield her sons from anything unpleasant. And in doing so, she is keeping them from learning a life lesson - this is not a perfect world and things go wrong. The lesson should be that one works with problems and finds solutions. The problem of T1 diabetes is treated with injecting insulin. It can be presented as not such a big deal (even though it is). They won't be traumatized by this knowledge. I'm sure they see worse things on TV and the internet. An 8 and 10 year old can handle it. They would probably be very excited to watch you test.

What may be worse, IMO, is that they are getting the wrong impression about diabetes. Plus, they are getting the wrong impression about you and your sister is doing you a disservice in keeping them ignorant, and in allowing them to think you are a secret eater - and what happens if they should witness you giving yourself insulin - will they think you are a drug user?????

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Old 07-11-2017, 17:08   #6
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Interesting post here, I think! Good comments by all.....

My perspective is that this disease is generally said to be related to genetics. Even if your parents or Grandparents were not 'diagnosed' with diabetes does not necessarily say they did not have it. My father was told he was 'prediabetic' but never was treated for diabetes. He died at 69 of heart related problems...looking back with what I know now, he was diabetic! He lost lots of weight the last few years, drank tons of water, etc.

So, you might warn your sisters that since you have it, they too and their kids may have to deal with this disease. As you say, education is critical to recognize the symptoms and also, if diagnosed later on, they will already know it is not a death sentence.....

So you have an opportunity here to 'Educate' those who may need it most!

Good Luck

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Old 07-11-2017, 18:02   #7
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Quote:
Originally Posted by div2live View Post
Interesting post here, I think! Good comments by all.....

My perspective is that this disease is generally said to be related to genetics. Even if your parents or Grandparents were not 'diagnosed' with diabetes does not necessarily say they did not have it. My father was told he was 'prediabetic' but never was treated for diabetes. He died at 69 of heart related problems...looking back with what I know now, he was diabetic! He lost lots of weight the last few years, drank tons of water, etc.

So, you might warn your sisters that since you have it, they too and their kids may have to deal with this disease. As you say, education is critical to recognize the symptoms and also, if diagnosed later on, they will already know it is not a death sentence.....

So you have an opportunity here to 'Educate' those who may need it most!

Good Luck
You took the words right out of my mouth. My doctor told me that if one sibling has diabetes, then it runs in the family. Since my diagnosis, I've been breaking the news to family and close friends a little at a time. Just about every time, someone will tell me that they were diagnosed being "pre" diabetic, but since no one else in their family is diabetic, they have been ignoring the diagnosis!

My Mom was diabetic and so was one of her sisters. The other two sisters got lucky. Their Mom (my Grandma) was diabetic. My Dad was diabetic, and I didn't know my paternal Grandparents; however, my 1st cousin on Dad's side died last year of complications of diabetes, and her sister was recently diagnosed with diabetes.

@swervin, it's very important that you educate your sisters and your nephews.

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Old 07-12-2017, 02:47   #8
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I'm a big fan of calling things what they are.

In some (oversimplified) ways, DM (especially Type 1) is like the serious allergies that some kids have these days. Your nephews probably have a friend or classmate with an extreme allergy to peanuts or wheat or such and they know that little Mason has to be careful around certain foods and carries an epinephrine injector (Epi-Pen) at all times in case he needs to treat himself. I don't see this as much different. I think they will understand. Certainly knowledge of such a classmate can be what opens the door to your discussion.

I don't know as you need to invite them to see you test, but if they ask I would not withhold the display.

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Old 07-15-2017, 17:56   #9
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I would ask your sister WHY she wants you to go into another room. Kids of 8 to 10 are VERY interested in that sort of stuff. You'd be amazed when that stuff comes in handy. Show them your medical ID necklace or bracelet (you have one, right?). Explain the different stuff and what it does. You'd keep them busy for over an hour while sis is making dinner.

The thing to explain to your sister is that if you let them see the activity and treat it as no big deal, the kids too will treat it as no big deal.

Quote:
My doctor told me that if one sibling has diabetes, then it runs in the family.
Alamogirl, while true of type 2, this is generally not true of type 1. While it can be an inherited trait, in most cases, someone with type 1 will be the only one in the extended family to have it. Now, if you are of Nordic origin, there is a higher risk of having more than one family member with type 1 but only because we, as a group, seem to have a far higher rate of immune system disorders.

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