Intro to MODY, a distant cousin to Types 1, 1.5 & 2

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Intro to MODY, a distant cousin to Types 1, 1.5 & 2

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Old 02-24-2018, 06:31   #1
Senior Member
Join Date: Apr 2016
Location: California
Posts: 495

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Type 1
Diagnosed in 1977

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Default Intro to MODY, a distant cousin to Types 1, 1.5 & 2

Just curious if anyone on this forum has been diagnosed with MODY or knows of someone. Also wanted to share the article below so others can be aware of its existance

What is maturity onset diabetes of the young (MODY)?

Summary is below from url above

Maturity Onset Diabetes of the Young (MODY) is an inherited form of diabetes mellitus. It is caused by a change in one of eleven genes. Up to 5% of all diabetes cases may be due to MODY. Just like other people with diabetes, people with MODY have trouble regulating their blood sugar levels. MODY is more likely to affect adolescents and young adults, but it can occur at any age.

Just like other forms of diabetes, MODY can cause complications throughout the body, including increased risk of heart and vascular disease, kidney disease, and blindness.

There are eleven different types of MODY caused by changes in eleven different genes. Treatment varies, depending on the type of MODY. For example, MODY 2 can usually be managed by eating right and exercising regularly. MODY 1, 3, and 4 can usually be managed with a type of medicine called sulfonylurea therapy. MODY 5 often needs a variety of treatments because it may cause other medical problems unrelated to the blood sugar level.

MODY is a dominant genetic condition, which means that people who inherit one copy of the gene mutation that causes MODY from either their mother or father will be affected. Affected people also have a 50% chance of passing along the gene mutation to each of their children.

Diagnosed with Type 1 diabetes Sept 12 1977
Developed Hypoglycemic Unawareness Dec 83
8 grandmal seizures requiring paramedics + ER
Dx heart disease in 2000; triple bypass surgery
2 pancreas organ transplants 2001+2004 at Univ Minn & Univ Calif San Francisco med ctr
Dx with cancer twice 2007 & 2008, stage 2 & 3
Lost 2 transplanted pancreas; 6/2001 & 6/2015
Longtime advocate & member of diabetes & cancer support forums for 15 yrs. A1c 5.0
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