Son's GAD test results - Page 3

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Son's GAD test results - Page 3


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Old 08-04-2018, 14:05   #21
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From everything you have said and i have read, your son continues to have good readings over the recent months. You mentioned his fasting of 4, 2 hours after breakfast 5, then 2 hrs after lunch 5 and dinner 6 and all without any insulin or oral meds. He is negative for pancreatitis, has not been on corticosteroids, and has no issue with eating foods high in carbs. I suspect his drinking binge contributed to his hyperglycemia and ketones and temporarily induced insulin resistance back in April.

Knowledge is power and getting a GAD and C-peptide test (post meal is a better indicator than fasting) which Dr already ordered/will order will at very least provide a baseline for comparison in the future and if normal will give you and son peace of mind. I wouldnt be surprised if he has no GAD autoantibodies and more than sufficient production of c-peptide. Good idea to get a hemoglobin A1c test to measure blood sugar levels over last 2 to 3 months. A reading of 5.7 and under is what you want. a 5.7 to 6.4 reading is pre diabetic range and 6.5 and over is classified as diabetes.

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Diagnosed with Type 1 diabetes Sept 12 1977
Developed Hypoglycemic Unawareness Dec 83
8 grandmal seizures requiring paramedics + ER
Dx heart disease in 2000; triple bypass surgery
2 pancreas organ transplants 2001+2004 at Univ Minn & Univ Calif San Francisco med ctr
Dx with cancer twice 2007 & 2008, stage 2 & 3
Lost 2 transplanted pancreas; 6/2001 & 6/2015
Longtime advocate & member of diabetes & cancer support forums for 15 yrs. A1c 5.0
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Old 08-04-2018, 15:56   #22
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Quote:
Originally Posted by Hearts Jounrey View Post
From everything you have said and i have read, your son continues to have good readings over the recent months. You mentioned his fasting of 4, 2 hours after breakfast 5, then 2 hrs after lunch 5 and dinner 6 and all without any insulin or oral meds. He is negative for pancreatitis, has not been on corticosteroids, and has no issue with eating foods high in carbs. I suspect his drinking binge contributed to his hyperglycemia and ketones and temporarily induced insulin resistance back in April.

Knowledge is power and getting a GAD and C-peptide test (post meal is a better indicator than fasting) which Dr already ordered/will order will at very least provide a baseline for comparison in the future and if normal will give you and son peace of mind. I wouldnt be surprised if he has no GAD autoantibodies and more than sufficient production of c-peptide. Good idea to get a hemoglobin A1c test to measure blood sugar levels over last 2 to 3 months. A reading of 5.7 and under is what you want. a 5.7 to 6.4 reading is pre diabetic range and 6.5 and over is classified as diabetes.
Thank you for your valuable information HJ
My son had a hemoglobin A1c done back in May and his specialist said she was pleased with his readings, they were normal, around 5.4
That's when he had his first GAD test done, he then got a abnormal reading from that, so had to have the 2nd GAD test done, which seems to have gone missing....he is waiting for a follow up appointment with her

I've very confused as surely they can't have misdiagnosed him?
I know they said originally his weight (tall and very slim) and age 30 had low ketones in his blood......They assumed he was type 1

My son said he feels something isn't right with his diagnose as he feels great, and looks great too, he seems to be able to eat more or less what he wants, no different tomhow he was before his spike that weekend really.
From your experience on this forum, is there anyone you know of that has had this happen to them, and eventually got soreted one way or the other 🤗x

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Old 08-04-2018, 16:09   #23
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DR's are not infallible and they do not always make the correct diagnoses. An a1c 5.4 is great (in Apr). Hopefully Dr's dont assume a disease or condition without running tests and getting measurable evidence. When a Dr is not sure they can refer a patient to a specialist or talk to another Dr(s). Just because patient had high glucose levels (was 17 mmol or 305) that night in April doesnt mean he has diabetes.

__________________
Diagnosed with Type 1 diabetes Sept 12 1977
Developed Hypoglycemic Unawareness Dec 83
8 grandmal seizures requiring paramedics + ER
Dx heart disease in 2000; triple bypass surgery
2 pancreas organ transplants 2001+2004 at Univ Minn & Univ Calif San Francisco med ctr
Dx with cancer twice 2007 & 2008, stage 2 & 3
Lost 2 transplanted pancreas; 6/2001 & 6/2015
Longtime advocate & member of diabetes & cancer support forums for 15 yrs. A1c 5.0
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Old 08-04-2018, 20:56   #24
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Quote:
Originally Posted by Hearts Jounrey View Post
DR's are not infallible and they do not always make the correct diagnoses. An a1c 5.4 is great (in Apr). Hopefully Dr's dont assume a disease or condition without running tests and getting measurable evidence. When a Dr is not sure they can refer a patient to a specialist or talk to another Dr(s). Just because patient had high glucose levels (was 17 mmol or 305) that night in April doesnt mean he has diabetes.
Thank you Hearts Jounrey your information and help has been very helpful, I totally agree Drs, they go by the text books most of the time.
When my son went to hospital that morning I had a feeling he wasn't diabetic
And on return and what he said just didn't sit right with me, and now he has been as normal as you can be we've decided to pay for a private C-petdide test by the time we get this result hopefully the hospital (NHS) will have his GAD Test result ...
I will keep you fully informed...thank you xx

PS I would love to speak to anyone who has had this experience (no insulin, no meds with no raised BG) with type 1

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Old 08-10-2018, 20:46   #25
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Hospital still haven't got the results for my sons GAD test, he is still eating normal and having no problems with his BG readings, this last week he had increased his carbs and still got good BG readings

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Old 08-10-2018, 21:05   #26
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That is good news on your sons glucose control to date. Didnt he get an C-peptide done that was going to be paid for privately? Ive had GAD test completed in 3 days and that was 10 yrs ago.

__________________
Diagnosed with Type 1 diabetes Sept 12 1977
Developed Hypoglycemic Unawareness Dec 83
8 grandmal seizures requiring paramedics + ER
Dx heart disease in 2000; triple bypass surgery
2 pancreas organ transplants 2001+2004 at Univ Minn & Univ Calif San Francisco med ctr
Dx with cancer twice 2007 & 2008, stage 2 & 3
Lost 2 transplanted pancreas; 6/2001 & 6/2015
Longtime advocate & member of diabetes & cancer support forums for 15 yrs. A1c 5.0
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Old 08-11-2018, 17:19   #27
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I am not a doctor and dont play one on this website but my opinion is that he was misdiagnosed.

I hope you get the results soon so you can rest easy.

hang in there

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Here are some good starting points to read

Blood Sugar 101 - VERY informative and accurate
http://www.diabetesforum.com/diabete...ng-method.html a tried and true testing method
https://www.dietdoctor.com/low-carb lists foods for LCHF

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Old 08-12-2018, 16:20   #28
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Thank you htfmrock we will deal with the out come .....I will keep you fully informed x

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Old 08-12-2018, 16:22   #29
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Hi Hearts Jounrey, yes we have asked our son to arrange it....we are away in Italy until Thursday so hoping when we return he will have arranged it .
When I say still no results I mean from the UK hospital (NHS) x

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Old 08-12-2018, 16:27   #30
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htfmrock I do feel he could have been misdiagnosed, but we read a lot about the "honeymoon period" but folk in this, still state they have a lot of spikes and need a small amount of insulin....my son has been nearly 5 months without at end of this month, with his readings been perfect, as with Hearts Jounrey thank you for your reply x

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