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Hearts Jounrey Hearts Jounrey is offline

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  1. etherea
    11-24-2018 22:58 - permalink
    etherea
    Just checking on you as I haven't seen you around lately. Hope you're doing well--miss your posts.

About Me

  • About Hearts Jounrey
    Biography
    I am a IT professional who has a passion for music, writing, medicine, exercising, animals, and helping others.

    My favorite quote is:

    The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not just happen.
    Your Location
    California
    Your experiences with diabetes
    Diabetes has reset my priorities from being someone who was a carefree and an undisciplined tiger pup to a life of becoming much more disciplined and pro active about my health and managing this insidious disease.

    I was diagnosed with type 1 on Sept 12 1977 while in college and in 6 years developed hypoglycemic unawareness episodes which led to some paramedic assistance, seizures & ER trips. Then in 2001 I required open heart surgery to bypass 3 main coronary arteries due to diabetes for 24 yrs and elevated lipids. While I was very active, my A1C levels were usually 7.0 to 7.3. In looking back these levels were to high.

    I then had two organ pancreas transplants to attempt to become insulin independent. The first time I was called for a pancreas at Univ of Minn on June 7 2001 and 6 days after the transplant, I lost the pancreas due to a blood clot. The organ was removed and I went back on insulin. On June 27 2004 at Univ of Calif San Fransisco, I had another pancreas and this one lasted 11 years until last June 10 2015.

    In Feb 2008 I was diagnosed with cancer and had surgery to remove tumor but 6 months later the cancer recurred but this time it was stage 3b and I required 2 months of chemotherapy which included 3 chemo meds totaling 39 individual infusions.

    And this past June 2015, I lost my transplanted pancreas from 2004 due to autoimmunity recurrence.

    Today I am on insulin again and am looking into the chances of receiving approval for an islet cell transplant.

    I get my A1c's checked every 2 months and in the last 2 & half years (Feb 2016 to July 2018) my a1c's have been between 5.0 to 5.5. I lost my transplanted pancreas in june 2015 and at that time my A1c was 7.0.

    Over the years I have supported and mentored others with diabetes beginning in 2001 on different diabetes forums. I also spent 5 years on cancer support forums supporting cancer survivors and learning what I can from listening and communicating with others.

    I currently have excellent control of my diabetes but it took me 8 months of daily adjustments from last summer (2015) when I lost the transplanted pancreas to reach my goals. I do extensive research on diabetes, treatments, causes, complications, transplants, trial based studies, and medicine in general.
    Diabetes Types
    1
    Diagnosis Year
    1977
    Height
    5'8"
    Weight
    151 pds
    Gender
    Male
  • Signature
    Diagnosed with Type 1 diabetes Sept 12 1977
    Developed Hypoglycemic Unawareness Dec 83
    8 grandmal seizures requiring paramedics + ER
    Dx heart disease in 2000; triple bypass surgery
    2 pancreas organ transplants 2001+2004 at Univ Minn & Univ Calif San Francisco med ctr
    Dx with cancer twice 2007 & 2008, stage 2 & 3
    Lost 2 transplanted pancreas; 6/2001 & 6/2015
    Longtime advocate & member of diabetes & cancer support forums for 15 yrs. A1c 5.0

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General Information
  • Last Activity: 07-16-2019 06:30
  • Join Date: 04-18-2016
  • Referrals: 0

Friends

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Mentions

08-26-2016
03:12 - VeeJay mentioned Hearts Jounrey in post Only July 21, FDA approved DEXCOM CGM for insulin Dosing
Hearts Jounrey Please supply a lin...

Quotes

07-13-2019
09:01 - Winomaster quoted Hearts Jounrey in post Do you know how you got diabetes?
HIGH-FRUCTOSE CORN SYRUP In 1967 ...
06-17-2019
20:46 - Ronnie quoted Hearts Jounrey in post Diabetes, Ketones, & DKA
I spoke with Ronnie's endocrinologi...
01-07-2019
03:47 - T-Dynamo quoted Hearts Jounrey in post Why Do YOU Feel So Many More People Are Being Diagnosed With Diabetes?
i admire your life long qualities l...
09-30-2018
09:53 - Lily B quoted Hearts Jounrey in post Type 1 diet only
good news. right now as of today is...
08-30-2018
18:23 - Snowynight708 quoted Hearts Jounrey in post New and have some Questions
You just found the answer to your p...
15:43 - Snowynight708 quoted Hearts Jounrey in post New and have some Questions
After reading your posts, first let...
08-27-2018
09:39 - Lily B quoted Hearts Jounrey in post Son's GAD test results
At this point, he can be: A. non...
08-26-2018
10:34 - Lily B quoted Hearts Jounrey in post Son's GAD test results
The biggest difference is an autoim...
08-23-2018
14:04 - Lily B quoted Hearts Jounrey in post Son's GAD test results
.... Great explanation Hearts Jounrey ��
08-22-2018
22:31 - Lily B quoted Hearts Jounrey in post Son's GAD test results
c peptide should have a value som...
22:15 - Lily B quoted Hearts Jounrey in post Son's GAD test results
...elop type 1 Hi Hearts Jounrey C peptide test don...
08-19-2018
20:25 - Lily B quoted Hearts Jounrey in post Geoff Evans
... amount of time Hi Hearts Jounrey NO...my son is away ...
13:45 - mbuster quoted Hearts Jounrey in post Insulin Resistance in Type 2.
what % of type 2 (30 million ) are ...
08-17-2018
17:09 - Cricket quoted Hearts Jounrey in post The Path to Gaining Full Control of Diabetes Isn't Always Straight
How many weeks ago did you go to am...
08-16-2018
22:15 - Lily B quoted Hearts Jounrey in post Type 1 diet only
Lilly no type 1 can exist without i...
20:32 - Cricket quoted Hearts Jounrey in post The Path to Gaining Full Control of Diabetes Isn't Always Straight
go back to taking metformin at nigh...
15:34 - Cricket quoted Hearts Jounrey in post The Path to Gaining Full Control of Diabetes Isn't Always Straight
Imagine if your blood sugar doubles...
08-14-2018
21:44 - Lily B quoted Hearts Jounrey in post Son's GAD test results
Just think Lilly, in retrospect you...
08-13-2018
21:15 - alamogirl quoted Hearts Jounrey in post Eye Floaters
i cured my eye floaters by working ...
08-04-2018
20:56 - Lily B quoted Hearts Jounrey in post Son's GAD test results
...iabetes. Thank you Hearts Jounrey your information and...

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