Um, hi, is this thing on?

Go Back   The Diabetes Forum Support Community For Diabetics Online > Diabetes Forum Start Here > New Member Introductions

New Member Introductions Please start by introducing yourself to the rest of our community. We would be grateful if you could tell us a little bit about yourself and your experiences with Diabetes. The main aim of our community is to share experiences, knowledge and help increase the understanding and awareness of Diabetes. The introductions forum is a great place to start with the community. ■ RulesGetting Started With DiabetesForum.com


Like Tree33Likes

Um, hi, is this thing on?


Closed Thread
 
Shared Thread Thread Tools
Old 05-24-2013, 20:35   #1
Active Member
 
Join Date: May 2013
Posts: 24

Member Type
Type Pre
Diagnosed in 2012

16 likes received
8 likes given
Default Um, hi, is this thing on?

So, I'm Megan. I'm 28 years old, tall, with a normal BMI and blood glucose readings all freaking over the place. I'm not really looking for an answer or a diagnosis here - my PCP kinda sorta diagnosed me with pre, but then redacted that statement after a normal A1C. Uh, I'll just post my story and numbers and get on with it.

I've got an autoimmune disorder that sent me to the hospital for a week a while back. Typical treatment for my autoimmune disorder is crazy amounts of steroids. Steroids increase blood sugar, so hospital tested and I was above normal, but nothing too crazy.

I later go back to my doctor feeling kinda crappy, he runs some blood tests (I'm not on steroids), A1C is 6.1, he calls and says, "you probably have pre-diabetes".
I then go to my autoimmune disorder specialist (a neurologist), he's like, "I don't think you have pre-diabetes" and orders another A1C and a OGTT. Here are the results (I'm not on steroids at this point, either):

A1C: 5.6
OGTT:
- fasting: 99
- 1 hour: 171
- 2 hour: 200

PCP calls me after this (I go to a hospital because it's just easier to have all my doctors working together in one place), and says, "you don't even have pre-diabetes, you're fine," based on my A1C, when my OGTT clearly shows something's up.

In the meantime, I've gotten a cheap glucose meter, my morning fasting results generally range from 100-110, and during the day, 2 hours post-meal, my numbers are generally normalish (120 or so). After dinner, however, things get kind of crazier. I'll have numbers well into 180 range two hours post-meal, even if the meal wasn't very carb heavy. I brought this up to my PCP and he said, "So long as it's under 200, you're good".

Last night, about an hour after a work-out, my blood sugar was 78. I've had blood sugar readings lower than that, too, as low as in the 60s.

None of this sits right. This doesn't seem right. I don't know what the deal is, but I guess I just wanted to vent and see if anyone has any ideas.

I don't really trust my PCP (he also diagnosed me with ringworm without scraping it to test for fungus, and when I went to a real dermatologist who did scrape it "just to make sure", I was actually diagnosed with mild psoriasis), but I don't know, maybe he is right?

Sorry for the TL;DR

foxl, MCS and Steve3129 like this.
Megan085 is offline  
Old 05-24-2013, 20:54   #2
Senior Member
 
Join Date: Dec 2009
Posts: 24,394

Member Type
Type 2
Diagnosed in 2009

23929 likes received
32255 likes given
Default

Your instincts, Megan, are far better than your doctor's limited knowledge of diabetes. He is following the standard ADA propaganda, and any conscientious diabetic can tell you that is hogwash.

Our go-to expert is a woman named Jenny Ruhl, who owns the website BloodSugar101. This is our diabetes 'bible', so to speak. She is usually spot-on, and also cites the studies upon which she bases her conclusions, so we get a chance to do the research ourselves if we wish. Spend a few days prowling around her site & you'll learn things you never knew you ever needed to know!

Continue using your meter and testing foods so you can determine how they affect you - in essence compiling a personalized list of 'safe' foods which you know don't raise your blood sugar (Eat-to-your-meter). And consider yourself diabetic, whether you have an official diagnosis or not.

Welcome aboard and thank you for joining us.




foxl, MCS, Daytona and 1 others like this.
Shanny is offline  
Old 05-24-2013, 20:54   #3
MCS
WHAT, I got D
 
Join Date: Jul 2010
Location: HOTSVILLE USA
Posts: 3,849

Member Type
Type 2
Diagnosed in 1565

3991 likes received
5218 likes given
Default

Megan to be honest I wouldn't trust either of them two doctors. You definitely have a glucose management problem. Doesn't matter what your A1C is a reading of 200 gets the D sticker, sorry bout that. But you really got a lot of on board insulin, a mere change of diet and exercise will change everything I am sure. Your lucky you caught this early most of us waited till, well we were really sick.

Also if I had to guess about things your probably having trouble sleeping at night or your going to bed really late and sleeping late into the morning. Having your glucose spike in the evening is indication your cortisol curve is out of whack, which can be expected due to all of the steroids you've been on.

Check out our Low Carb forum, there are some really meals and recipe in there.

foxl, canadiandude and silvertiger like this.
__________________
Control is with Diet modification, exercise, supps.
A1C, Dxed 11, 5.6, 4.8, 4.6
MCS is offline  
 
Old 05-24-2013, 20:58   #4
Senior Member
 
Join Date: Apr 2011
Location: United States
Posts: 8,795

Member Type
Type Undiagnosed
Diagnosed in 2010

6333 likes received
12139 likes given
Default

Sounds like your body has lost/is loosing the ability to handle carbs normally. Were I you, I'd go see an endocrinologist and have the full workup to find out what's going on. You could be LADA, so ask for the full battery of tests and be sure that this isn't autoimmune which it could be.

In any case go further...and watch your carb consumption. Blood Sugar 101 is a great site to dig around in.

Good luck,




foxl and donnaB like this.
__________________

View Patdart's full Diabetes Forum profile here.
Patdart is offline  
Old 05-24-2013, 21:01   #5
Active Member
 
Join Date: May 2013
Posts: 24

Member Type
Type Pre
Diagnosed in 2012

16 likes received
8 likes given
Default

I do go to sleep late at night, but I don't sleep in in the morning (a combination of a night-owl boyfriend, who happens to be T1, and a 9-5 job). I should be getting more sleep, but I guess that's how it goes.

I'm seeing an endocrinologist next week, though I'm not real optimistic. I'm generally (except autoimmune funkiness) healthy with a healthy weight, exercise 5 days a week, and blood pressure/cholesterol are really good, so doctors haven't been taking me seriously with this glucose stuff.

I don't know. I love cooking, so I'll definitely check out the low carb recipes

Megan085 is offline  
Old 05-24-2013, 21:09   #6
Senior Member
 
grammaB's Avatar
 
Join Date: Feb 2012
Location: Beautiful Big Sky Montana, USA
Posts: 7,783

Member Type
Type 2
Diagnosed in 2012

7323 likes received
13044 likes given
Default

HI Megan and welcome!

You did absolutely the right thing in coming here! As most of us quickly discovered at dx, our drs really knew little and shared even less with us about how to really take care of ourselves. Blood Sugar 101 as mentioned by Shanny is a really important read for any diabetic. Time spent reading there is time well spent. You are lucky as you caught this really early, you can get control with some work and live a long and complication free life.

Diet is an important component to management/control. Check ourt our Diet and Nutrition subforum and also check out The Diet Doctor a site run by Dr Andreas Eenfeldt. It will give you a good overview on what the low carb/high fat way of eating is all about. Many of us here have had amazing results eating this way!

A good thing to do in the beginning is to write down every thing you eat and the readings you get from it. You will quickly compile a list of safe foods and as you do, it will become easier and easier to plan meals and snacks. Always check new foods out with your meter, and periodically check things that have tested safe because things can occasionally change.

If you are able to exercise, something as simple as walking can also help you gain control and bring your numbers down.

Glad you found us and best of luck to you!!

__________________

View grammaB's full Diabetes Forum profile here.
grammaB is offline  
Old 05-24-2013, 21:15   #7
Senior Member
 
Join Date: Apr 2011
Location: United States
Posts: 8,795

Member Type
Type Undiagnosed
Diagnosed in 2010

6333 likes received
12139 likes given
Default

At the moment I'm baking a version of MCS's yeast rolls with plans for a BLT soon! Some really good things are hiding in there. I'm using Stewchi's version this time, without a bread machine.

I'm so glad you are seeing an endocrinologist soon. Good for you! Be sure to report to us. We are nosy!




Steve3129 likes this.
__________________

View Patdart's full Diabetes Forum profile here.

Last edited by Patdart; 05-24-2013 at 21:21.
Patdart is offline  
Old 05-24-2013, 21:24   #8
Senior Member
 
Join Date: May 2013
Location: Texas
Posts: 141

Member Type
Type 2
Diagnosed in 2013

101 likes received
32 likes given
Default

Very nice to meet you megan, read bloodsugar101 as everyone else has pointed out. Everyone here is great in answering questions.

I think we're all on the Low Carb High Fat diet.

Start a chronological journal of everything.
Food you eat
BG readings from your meter, both fasting(morning) and 2hrs after meals.
Exersize
Wieght

You can then refer back to your journal to see the results of what you ate. Did it raise or lower your BG reading?

ELIMINATE Carbs

foxl likes this.
__________________
DX'd April 2013
AGE: 47
A1c 10 (25 Apr), A1c 7,(2 June)
BG 295(25 Apr) 83 (4 June)
jcullen24 is offline  
Old 05-24-2013, 21:54   #9
Senior Member
 
canadiandude's Avatar
 
Join Date: Apr 2011
Location: Stockholm, Sweden
Posts: 2,232

Member Type
Type 2
Diagnosed in 2011

3398 likes received
2647 likes given
Default

Hi Megan and welcome to the forums! You're situation is very similar to mine when i was first diagnosed. I was told that I was Pre as well with an A1C of 7.1 and a fbg of 211. I'm also a night owl and tend to be up until 1-2 am. With that said, I really dislike the term "Pre-diabetes" (as everyone here knows). For myself, I know that I can maintain decent numbers in the 90s at all times as long as I avoid carbs but that I can shoot up to 200+ if I eat a heavy carb meal. "Pre" to me gives the impression that you can be rid of this condition by one means or another but I don't really believe that to be the case. I believe that once your system had begun to show signs of diabetes, then there is no turning back. However, I also believe that you can put off any and all complications by staying in good control of your numbers and, as a result, diabetes doesn't have to be this life-threatening, neuropathy-ridden disease that gets people to start writing their wills.

P.S. Now I'm always going to associate you with the term "autoimmune funkiness".

silvertiger, Mary, and Megan085 like this.
__________________

View canadiandude's full Diabetes Forum profile here.
canadiandude is offline  
Old 05-24-2013, 22:12   #10
Active Member
 
Join Date: May 2013
Posts: 24

Member Type
Type Pre
Diagnosed in 2012

16 likes received
8 likes given
Default

Quote:
Originally Posted by canadiandude View Post

P.S. Now I'm always going to associate you with the term "autoimmune funkiness".
I'm quite alright with that For those interested, I've got Neuromyelitis Optica, and am considered a medical Zebra since this is a pretty rare condition. It's like MS, but not quite. Funkiness is the best I can describe it without cursing it

foxl likes this.
Megan085 is offline  
Closed Thread

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Best thing! marshagolightly Diabetes Forum Lounge 5 01-01-2013 13:27
No such thing, as control... Dwayne Diabetes Symptoms 10 10-10-2012 09:56
Most upsetting thing about new Dx. PhoenixWing Diabetes Forum Lounge 24 02-27-2012 01:42
Hello? Is this thing on? aurora7795 New Member Introductions 2 10-07-2011 23:55
New here... well new to the whole thing Cordy New Member Introductions 3 02-26-2010 19:39

LEGAL NOTICE
By using this Website, you agree to abide by our Terms and Conditions (the "Terms"). This notice does not replace our Terms, which you must read in full as they contain important information. You must not post any defamatory, unlawful or undesirable content, or any content copied from a third party, on the Website. You must not copy material from the Website except in accordance with the Terms. This Website gives users an opportunity to share information only and is not intended to contain any advice which you should rely upon. It does not replace the need to take professional or other advice. We have no liability to you or any other person in respect of any content on this Website.


All times are GMT +1. The time now is 11:49.




Powered by vBulletin®
Copyright ©2000 - 2020, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO
vBulletin Security provided by vBSecurity v2.2.2 (Pro) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
User Alert System provided by Advanced User Tagging v3.1.0 (Pro) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.