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New Member Introductions Please start by introducing yourself to the rest of our community. We would be grateful if you could tell us a little bit about yourself and your experiences with Diabetes. The main aim of our community is to share experiences, knowledge and help increase the understanding and awareness of Diabetes. The introductions forum is a great place to start with the community. ■ RulesGetting Started With DiabetesForum.com


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Old 03-01-2014, 00:44   #1
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Default And there I was! Here!

I am a 61 year old male and have been battling diabetes for about ten years give or take. Generally with diet at first. Then, in May 2009 I was fortunate enough to be stricken by Influenza A/H1N1 (the killer flu). My first sign was simply a mild fever perhaps and some aches and pains. The entire family had it and for all of us it went away completely. Except ME. It went away for me as well but a week later I was wheezing and paid a visit to my GP who took a chest X-ray which was all white. The clinic was in a hurry to close after the X-ray and decided to mail the x-ray to my doctor. TOO LATE. DUH? Next night I was wheezing slightly at dinner and at 7 a.m. my wife found me sitting in the armchair in the downstairs hallway, turning from blue to grey. I was dying from acute bacterial pneumonia, a present left by the flu. Long story short... she screamed for the kids to dial 911 as tell them I had a heart attack. The ambulance with paramedics was actually on our block and just pulled into our driveway less than 30 seconds later. They took one look and listened to me and knew my problem immediately. I don't remember much of this. I remember being plunked onto a stretcher and awakening for a moment while I was being bounced down the front steps to the awaiting ambulance with someone inside tearing open a bag with a green balloon in it to force air into my lungs. The hospital is two blocks away and I was immediately put on a respirator and into critical care, where I remained INTUBATED and in a coma for three weeks. I beat the grim reaper twice code blue during that time and made it to a room where I stayed for three months and then home. It took me a year to be able to roll over in bed on my own. Subsequently I was diagnosed with Atrial Fibrillation (severe/constant), Obstructive Sleep Apnea, a bazillion allergies, full blown diabetes now, and a host of other maladies which they overlooked while they were saving my life. I was unable to even swallow unless the water was ice cold so my throat could feel it. It has been a long and arduous road to recovery but I am getting there.... just about there.
Recently my diabetes, at first controlled by diet alone (vegetarian) then with Metformin and when the doctors started messing around with other medications my sugars flew out of control totally. I am now on Lantus and Lantus is not really doing the job. I take it in the evening, am at 46 units, wake up with BG in the 14 - 22 range (mmol/L) and by bedtime am in the 22 range for sure. It does not last 24 hours. I want to try Lantus on awakening and in the evening and am looking for experience on this forum.

I enjoy travel (hard to travel without insurance though - pre-existing conditions not covered), shooting sports, fishing, photography, flying, Masonry, Shriners, OES, and so on.

Two kids both in University; one studying Engineering and the other starting her Masters Degree in Human Kinetics/Anatomy looking towards medical school if possible.

So there you have it. That's me. I hope to be able to learn and share with my fellow board members. Thanks for looking.

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Old 03-01-2014, 01:16   #2
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Wow, that's some steep blood sugar even with 46 units of lantus. How's your carb control? Do you watch your carbs at all?

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Old 03-01-2014, 01:33   #3
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Hi Toronto Guy! Welcome! I was diagnosed about a month ago and finding this forum has been one of the bright spots since then. Lots of friendly and welcoming people here. Heck - I only registered a little more than a week ago and already am posting like crazy. Hmmm.. maybe posting too much? Nope, don't think so. The forum is a great outlet to help me deal with my diabetes, and I'm sure it will be for you to!

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Old 03-01-2014, 06:07   #4
 
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Hello, Guy. You have had your battles, but obviously are a survivor.

I am curious to know if you are a vegetarian because you are cutting down on fat, thinking that it will help you avoid further heart problems. If that is the case, I hope you will read the articles at the links below. I normally would offer only one link on the subject to a new member, but since you posted in another thread that you are a scientist, I thought you might want to do more reading on the subject than most.

What if bad fat isnít so bad? No one's ever proved that saturated fat clogs arteries, causes heart disease.

Sweden Becomes First Western Nation to Reject Low-fat Diet Dogma in Favor of Low-carb High-fat Nutrition

In a revolutionary reversal, more cardiologists now say unprocessed saturated fat is healthy and has been wrongly blamed for causing heart disease, obesity and other degenerative illnesses.

This item is from the U.S. National Library of Medicine, National Institutes of Health.

Welcome aboard.

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Old 03-01-2014, 06:41   #5
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I'd like to hear more about what you are eating. I have a feeling it is high carb and low fat which is pretty much the opposite of what most of us would advocate.

I was taking as much Lantus as you are, more in fact, and lots of Novolog too. For quite some time. And Avandia at the same time. And I still got wildly out of control. I no longer require any type insulin or Avandia at all. Only the Met. That is entirely due to a low carb, high fat diet. The majority of which is animal rather than vegetable.

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Old 03-02-2014, 20:33   #6
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I am beginning to watch my carb intake. Had steak for supper last night for the first time in a long time. Mmmmmm.

Well, I have split my LANTUS into AM and PM dosing; past two days have been around 36 units on awakening and 36 units 12 hours later, regardless of when that turns out to be. And guess what? My 20+ mmol/L readings have dropped to 15 mmol/L and seem to be rock steady on awakening, prior to eating, two hours after eating and at bedtime. NOTHING ELSE being ingested in the way of diabetic meds. Not even Metformin and I shudder to think what Metformin might do at this point. I was on EVERYTHING... you name it I was taking it at one point or another. Now it is just LANTUS 12 hours apart b.i.d. and so far so good. I am going to continue to cut down on all carbs (I have been bad as of late with the carbs due to major family issues outside our home and a very sick doggy). I intend to continue to titrate the LANTUS upwards b.i.d. to see what will happen and am headed to the grocery store to pick up some groceries and a 6 pack of Coca-Cola and pasteurized orange juice in case of emergency.

What truly ticks me off is that my BG was 7-8 mmol/L ALL THE TIME with Metformin alone and on a vegetarian diet that was aFib/heart/health related. I think I will return to that diet; it was healthy and it worked for me. Lots of legumes, no dairy and TONS of veggies to my heart's content. East to follow and cheap and cheerful.

I will keep everyone posted. I would love to set up a thread with a survey to see how many are finding that they need to split their LANTUS b.i.d. every 12 hours and how it has worked for them.... get some real life info on dosing being taken. When I get to 50IU twice a day I think it will be time to see my MD again and have a 'heart to heart' with him. We have a friend on Lantus that is taking 100 units a day and having excellent results. I have not yet come across any concrete information on what the max dosage is (in fact, splitting the dosing to twice a day is only anecdotal and LANTUS was approved for once a day usage).

I am wondering what length of needle I should be using as well. I am presently using a 6mm needle; we also have a fine 12mm needle both of which simply screw onto the end of the LANTUS pen. Funny thing is that we are totally covered for the test strips up to 3,000 per year and we are totally covered for the LANTUS (at $6 a ml.) but the damn needles we have to pay for out of our pocket. Go figure. I heard that Walmart is cheap at about $15 for a box of 100. Four boxes gives me a full year's supply for $60 so I shouldn't complain.

Thanks for all of the input. It is appreciated.

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Old 03-02-2014, 20:35   #7
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Default LANTUS: Twice a day?

Trying to change the title of my thread to make it more appropriate.

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Old 03-02-2014, 21:03   #8
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To answer your question about splitting lantus, I'll tell you what my doc told me.

When I started this D journey I was on 80u a day split into 2 40u doses, one with breakfast and one at bedtime.

My doctor told me this was his reasoning. He was part of the clinical trials of lantus. While it is/was advertised as a "once daily" insulin his trials showed that on average the actual effectiveness was about 14 hours when daily doses started to exceed 20u. He said that when that level was reached not only did splitting doses help even out the peak and maintain effective a over the 24 hour period, but also allowed many people to reduce their total daily lantus amount.

Hope that helped a bit.

Now why not take metformin? I've been having some technical issues where I see a person make a comment but no post shows...so I think I missed you're explanation.

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Old 03-02-2014, 21:06   #9
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Quote:
Originally Posted by torontodiabeticguy View Post
I shudder to think what Metformin might do at this point...
What truly ticks me off is that my BG was 7-8 mmol/L ALL THE TIME with Metformin alone and on a vegetarian diet...
I am not sure where you're going with the Metformin comments. Unless it's being mixed with other diabetes meds, Metformin alone doesn't cause lows. Also, it likely wasn't effective for you before because your carbs were too high. It's already been proven that Metformin works most effectively with a LCHF way of eating.

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Old 03-02-2014, 21:11   #10
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Quote:
Originally Posted by torontodiabeticguy View Post
Trying to change the title of my thread to make it more appropriate.
What do you want it changed to?




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