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New Member Introductions Please start by introducing yourself to the rest of our community. We would be grateful if you could tell us a little bit about yourself and your experiences with Diabetes. The main aim of our community is to share experiences, knowledge and help increase the understanding and awareness of Diabetes. The introductions forum is a great place to start with the community. ■ RulesGetting Started With DiabetesForum.com


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Old 05-30-2014, 23:30   #1
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Join Date: May 2014
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Diagnosed in 2014

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Hi all

My daughter, who is 7, just got diagnosed with Type 1 diabetes.

My wife and I are still a little shocked, if I'm honest. Neither of us has diabetes, and it isn't in our families, but our education about diabetes is just beginning, including that it appears that nobody is quite sure of what causes it...

Is there anything I should ask for with regards to the diagnosis and testing? We have both notices a quite lackadaisical approach to many things within our health system here unfortunately.

I need to make sure I ask the right questions at the beginning, as I wouldn't be a fit dad to my little girl if I didn't. She is our only child after many miscarriages. We are now too old to provide her with a brother or sister.

Regards and best wishes to all.

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Old 05-30-2014, 23:40   #2
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Join Date: Feb 2014
Location: Bay Area, CA, USA
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Diagnosed in 2013

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Take a deep breath. Welcome to the forum, and I hope your daughter will be come here on her own one day.

There are several T1's and parents of T1's who can probably help you get a grip around the information you need. And moderators who can supply you with useful links to web pages and to books that can help your family understand what is happening.

And the single note we all sing, is Your Mileage May Vary. This disease behaves differently for EACH of us, and what works for one does not work for all.

Most of us have landed here because the medical teams we have worked with have been inadequate, and have learned we need to take control of how we want to treat ourselves, and find doctors who will support us, or we find new doctors.

Everything will be OK.

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Never anger a Dragon, for you are crunchy and go well with brie.

Stats:
Dx 10/2013 : 12/2013 : 4/2014 : 10/2014 :5/2015
A1c 8.0 : 5.6 : 5.5 : 5.5 : 5.5
FBG 180 : 97 : 109 : 97
TCh 196 : 146 : 208 : 211
Tri 220 : 107 : 108 : 96
HDL 48 : 47 : 58 : 61
LDL 104 : 78 : 128 : 130
LDL Pattern A!

LCHF and striving for ketosis since Feb 2014.
Next testing due 11/2015.

Dosing with:
2000mg Metformin
Daily mulitvitamin
Daily antihistamine
Nightly magnesium
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Old 05-30-2014, 23:54   #3
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Join Date: May 2014
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Diagnosed in 2014

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Thanks for the welcome, Jademuffin.

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Old 05-31-2014, 01:54   #4
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Hello Wilhelm and welcome the club no one wants to join.

I encourage you to spend some time reading on Blood Sugar 101. It explains a lot. And, in How To Lower Your Blood Sugar, the description of how and when to test blood glucose is fundamental to attaining and maintaining control...and recognizing it if things go out of control.

Please tell us more about your daughter - is she on any medications? How was she diagnosed? Do you know what her BG levels were when she was diagnosed? What is happening now?

More T1s will be along to ask more questions. And you are going to get all kinds of good advice and encouragement. Even if the causes are as myriad and different as the wind, control and good health is possible. (This means, do not worry about 'cause'. Concentrate on 'now, what do we do about this'.)

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- Nancy

wf, 63yo, 5'4", 110 lbs
LCHF diet-controlled T2
DXd myself with PP BG over 270
DX 12/13 with A1C 5.9
8/26/14 HbA1c 5.5
avg BG: 90 - 95 before meals, 100 - 110 one hour PP, 95 2 hours PP
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Old 05-31-2014, 04:54   #5
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My eldest grand daughter was dx'd at about the same age, a bit younger. I know you are scared, sad, and confused and don't know quite what to do right now. Other T1s will have more input for you on that than I can. I live in MT and they are in CA so I don't know a lot about her day to day management, but she is almost 15 now and has almost finished her first year at a private high school that trains skiers for the Olympics. She wins or comes in 2nd in almost all or her races. She is very healthy and extremely active. It may seem like the worst news right now, but it can be overcome and your daughter can live a long and healthy life.

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Old 05-31-2014, 06:43   #6
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Hello and welcome, Wilhelm. I'm sorry you had to come looking for us, but am very glad you found us.

You're already discovering the mystery of this disease, and we may not be able to answer your questions about causes, etc., but we have a firm grip on how to control it. My grandniece was diagnosed before her first birthday and what a sick little baby she was. But today she is a thriving 15-year-old who's been pumping since before she started kindergarten.

So take a deep breath and try not to worry . . . we may be able to answer questions you haven't found words to articulate. Lean on us - we're here to help.




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Old 06-02-2014, 02:46   #7
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Wilhelm? I just wanted you to see our grandniece, happy, thriving and relaxing this weekend on our porch.



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Old 06-03-2014, 17:14   #8
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Hello Wilhelm, welcome! There is a support group for parents of type 1 children at :

children with DIABETES Online Community

You can talk to many parents there, and get your questions answered. There are also many great support groups on Facebook for parents.

I was diagnosed in 1945 when I was 6. After 68 years of type 1, I have good diabetes health, and no diabetes related complications except for mild nerve damage. With good diabetes management your daughter can have a long, healthy life.

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Old 06-04-2014, 02:02   #9
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Hi again Wilhelm!

This is a picture of my T1 grand daughter from last year. And she is still going strong!! Everything is possible with good control.

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Old 06-04-2014, 08:47   #10
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Shanny, your grand niece is beautiful! Isn't it wonderful to see these young people taking control and thriving?

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