Newly diagnosed and scared - Page 2

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Newly diagnosed and scared - Page 2


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Old 10-20-2015, 15:39   #11
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I honestly would...if I believed in luck. What I wish you is; the ability to understand this thing, how to reign it in and live with it...and then pay forward what you learn here.
Thanks, you're absolutely right and i am a great believer in 'paying forward'.

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Old 10-20-2015, 15:49   #12
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So, back from Doc and it didn't go too badly. She is pretty sure that I have type 2 and is not going to test further. I seemed to be telling her things that i have learnt that were news to her (a bit of a worry) She does know me to be pretty sensible though luckily, as she has agreed to let me try to sort this myself with diet and lifestyle changes.

I do however have to attend a course and see the DN. She also gave me test strips for urine which I am not sure are going to be that accurate. My blood pressure was high, cholesterol on the high side too and so i have avoided meds for these conditions too, for the time being anyway. As I am just into diabetes *(Hba1c 6.6/49) i think she is happy to see what happens over the next few months.

One thing that is worrying me too is that my distance eyesight has deteriorated just in the past few days. I can still see with my glasses on fine but i used to be able to strain a bit to see the telly which I now find more difficult. Could it be the effects of the LCHF diet that I have now been on for only a week, or the hours and hours of time I have spent on my ipad since diagnosis???

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Old 10-20-2015, 16:11   #13
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Regretably the urine strips are, as you suspect, virtually useless. The colour change will flag the presence of glucose in your urine far too late to be of real help and in any case will only deliver a result when it reflects a blood sugar way too high for safety. I think you only start to see it when blood glucose is over 10 mmol/L.

If your doctor won't give you a prescription for a meter and adequate strips, I strongly suggest a visit to Boots and look at an AccuChek Aviva meter. And yes, sorry - it's not that cheap.

As you say, your HbA1c at 49 is not too shabby and suggests strongly that you should be able to bring it into a good range (30-40) by changing your way of eating. But, yes, it means you will need to be quite firm with yourself for the rest of your days.

Eyesight. Yes, diabetes can play silly b...gers with focus. I was stupid enough to ignore my (British) optician's comment about blood spots at the back of my eye about a year before I was formally diagnosed here in France. I got away with it but.... Anyway, the thing is as you bring your blood sugar under control, your eyesight issues will improve without help. So, my suggestion here is not to invest in eyesight correction for a few months yet unless it becomes too dangerous to, for instance, drive. Your diet change will help rather than the reverse but to start, confusing? You got it!

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Old 10-20-2015, 19:14   #14
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Regretably the urine strips are, as you suspect, virtually useless. The colour change will flag the presence of glucose in your urine far too late to be of real help and in any case will only deliver a result when it reflects a blood sugar way too high for safety. I think you only start to see it when blood glucose is over 10 mmol/L. If your doctor won't give you a prescription for a meter and adequate strips, I strongly suggest a visit to Boots and look at an AccuChek Aviva meter. And yes, sorry - it's not that cheap. As you say, your HbA1c at 49 is not too shabby and suggests strongly that you should be able to bring it into a good range (30-40) by changing your way of eating. But, yes, it means you will need to be quite firm with yourself for the rest of your days. Eyesight. Yes, diabetes can play silly b...gers with focus. I was stupid enough to ignore my (British) optician's comment about blood spots at the back of my eye about a year before I was formally diagnosed here in France. I got away with it but.... Anyway, the thing is as you bring your blood sugar under control, your eyesight issues will improve without help. So, my suggestion here is not to invest in eyesight correction for a few months yet unless it becomes too dangerous to, for instance, drive. Your diet change will help rather than the reverse but to start, confusing? You got it!
Thank you John. I wont panic about my eyesight for now and will persevere!

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Old 10-20-2015, 22:36   #15
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If a doctor gave me urine strips I think I would gasp and think you got to be kidding me. Meters should be given freely and a prescription for the strips.

I think I would find me a new doctor if all possible

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Old 10-21-2015, 00:32   #16
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If a doctor gave me urine strips I think I would gasp and think you got to be kidding me. Meters should be given freely and a prescription for the strips. I think I would find me a new doctor if all possible
IT does make me wonder and I am dreading the course she's got me booked into. I wonder what will happen if I just don't go. I've ordered my own BG monitor

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Old 10-21-2015, 08:51   #17
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Kazz, Unfortunately the NHS is wedded to the concept that "type 2s don't need to test", so the guidelines to doctors effectively preclude them prescribing meters. It's much the same over the channel in France but I was "lucky" (if you can call it luck) that my first meeting with diabetes was linked to a kidney infection such that initially, despite my age, the hospital thought I was type 1. So I got a meter. But getting strips? Again, following the rules, my doctor is limited to offering no more than 200 strips per year. Basically that would allow one test every other day. Any more than that, I should have to buy the strips myself.

However, thanks to my firm control, I was able to cut a deal. No medication, so he allows me one box of 100 per quarter. If I was using insulin on the other hand, I can have as many as I want. Crazy logic - get control and they take away the tools you need. Lose control - and cost the system a fortune in medication!

So, the only option we have is to - as you have done - get our own meter and do our own thing. It works. My HbA1c at the start was 66. It's now 31 and I'm keeping it there even if I do have to buy my own strips.

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Old 10-21-2015, 21:45   #18
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Kazz, Unfortunately the NHS is wedded to the concept that "type 2s don't need to test", so the guidelines to doctors effectively preclude them prescribing meters. It's much the same over the channel in France but I was "lucky" (if you can call it luck) that my first meeting with diabetes was linked to a kidney infection such that initially, despite my age, the hospital thought I was type 1. So I got a meter. But getting strips? Again, following the rules, my doctor is limited to offering no more than 200 strips per year. Basically that would allow one test every other day. Any more than that, I should have to buy the strips myself. However, thanks to my firm control, I was able to cut a deal. No medication, so he allows me one box of 100 per quarter. If I was using insulin on the other hand, I can have as many as I want. Crazy logic - get control and they take away the tools you need. Lose control - and cost the system a fortune in medication! So, the only option we have is to - as you have done - get our own meter and do our own thing. It works. My HbA1c at the start was 66. It's now 31 and I'm keeping it there even if I do have to buy my own strips.
It does seem crazy John, but I am finding a lot of crazy stuff since bering diagnosed! I am beginning to feel like I am in some kind of dystopian futuristic movie. I am now faced with an NHS course on how to live with diabetes which will invariably involve advising a low fat diet complete with carbs! I really don't want to go but suspect that the DN and my GP will take a dim view.

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Old 10-21-2015, 21:47   #19
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Originally Posted by John.in.France View Post
Kazz, Unfortunately the NHS is wedded to the concept that "type 2s don't need to test", so the guidelines to doctors effectively preclude them prescribing meters. It's much the same over the channel in France but I was "lucky" (if you can call it luck) that my first meeting with diabetes was linked to a kidney infection such that initially, despite my age, the hospital thought I was type 1. So I got a meter. But getting strips? Again, following the rules, my doctor is limited to offering no more than 200 strips per year. Basically that would allow one test every other day. Any more than that, I should have to buy the strips myself. However, thanks to my firm control, I was able to cut a deal. No medication, so he allows me one box of 100 per quarter. If I was using insulin on the other hand, I can have as many as I want. Crazy logic - get control and they take away the tools you need. Lose control - and cost the system a fortune in medication! So, the only option we have is to - as you have done - get our own meter and do our own thing. It works. My HbA1c at the start was 66. It's now 31 and I'm keeping it there even if I do have to buy my own strips.
Oh and well done for cutting a deal!! Makes perfect sense

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Old 10-21-2015, 21:48   #20
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Just do what others do. Nod and smile. They aren't going to listen or approve of anything other than what they are teaching. To argue is fruitless.
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