Newly Diagnosed with Type 1 at age 46

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Newly Diagnosed with Type 1 at age 46


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Old 02-28-2016, 13:28   #1
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Default Newly Diagnosed with Type 1 at age 46

Good Morning from Canada,

How I define myself: I am a woman with a strong faith in God, a wife and mother of one. My son is about to be 23; fortunately, he is still at home for a bit longer as he completes his University degree this April. I am a Inclusive Learning Facilitator and Literacy Specialist who works with exceptional little people from kindergarten to grade 4. My hobbies include quilting, knitting, and hiking. I am also a CFL and American College football fan.

Now, I have a new way of defining myself - a Type 1 diabetic.

I was just diagnosed 3 weeks ago. My symptoms came on quite suddenly; crazy thirst, frequent urination, blurry vision, dizzy, all over body rash, tired, fuzzy-minded thinking. I went to the dr and she suggested blood tests; a week later when I went to get the results I was in bad shape. My fasting blood sugar was 13 mmol/l. They did more tests and my blood sugar was 25.5 mmol/l and I had 4+ keytones and had ketoacidosis. My A1C was 9, so the dr believes I have been diabetic for at least 3 months. I was sent to emergency and admitted right away. I ended up having to stay in the hospital for a week. The first couple of days I was on an insulin and a potassium drip (my levels were very acidic and they had to get me leveled out) and had numerous more tests. I quickly learned how little I knew about diabetes. Luckily, the dr, pharmacist, dietician and nurses took time to provide me with information on how to care for this new life style. It is so overwhelming! I thought I was a healthy eater who understood nutrition labels - how sorely wrong I was. Now I am learning to understand food labels, count carbs, and eat a balance of carbs/protein/fats. I take Apidra 3x a day with meals and Lantus at bedtime. My numbers are still not in range, but they are coming down. With the pharmacists support, I am learning the ratios of carbs/insulin that work best. He says it takes time. I record everything I eat and do. I am off work and spend my time reading about diabetes.

My family, friends, and colleagues have been very supportive, and like me they are shocked to hear the diagnosis. I really thought this was an illness for young people.

I am trying to stay positive as that is how I function best. To be honest though, I often find myself feeling alone, sad, and overwhelmed by it all. This life has brought new meaning to routine. I am scared too. Some things I read about having diabetes make me feel like this is a fight that I won't be able to manage. I am determined to do my best, but would love to hear from others who have faced this and learned to live a "normal" life.

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Old 02-28-2016, 14:03   #2
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Hi Steph. Welcome to the forum.

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Old 02-28-2016, 14:03   #3
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Welcome Steph

We're glad you found us. This is a great bunch of diabetics to hang around with because we are determined to beat this thing and get and maintain good blood glucose (BG) levels.

I'm here to tell you that you can do this, and we can give you some additional tools to reach your goal.

If you'd like to let us know a bit about your insulin regimen and what your BG levels are when you test, some of the T1 members here can address this specifically for you. These folks have been where you are now and have been successful.

One of the tools that both T1s and T2 have is diet. Since carbohydrates raise BG it makes sense to greatly reduce the consumption of this food group, and one of the best ways to do this is to follow a low-carb/high-fat lifestyle. Here's a link for this way of eating Low Carb for Beginners

There are several book resources written by T1 diabetics that can guide you in insulin usage. One of these written by Dr. Bernstein has much of it available on-line Read Online - Dr. Bernstein's Diabetes Solution. A Complete Guide to Achieving Normal Blood Sugars. Official Web Site As you read through pay attention to the section "Law of Small Numbers" which is an excellent way to manage insulin dosing and reduce the highs and lows.

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My low-carb recipe collection on Pinterest
https://www.pinterest.com/VRStudio1/...light-recipes/
70 yrs. Dx May 2010
Diet controlled: VLC/HF
BG steady with no highs or lows.
A1C in the 5% range.
____________________________________
Gluten intolerant, sensitive to dairy & eggs.
Eat no grains
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Old 02-28-2016, 14:04   #4
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Hi Steph, welcome to the forum.

Read and research all you can. Diabetes can be more easily managed knowing more about it. I am just guessing your doctor did testing for GAD antibodies and c-peptide to determine your type. There is a Type 1.5 where you could be still producing some insulin off and on for a time frame that does make taking insulin injections "what the heck" during what they call a honeymoon period.

Thee are several insulin users here that can offer you great advice if you need it.

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Think I've had this since 2003. Told I was Type 2 lean on 2/13/12.
a1c 8.8 (8/2011) 5.2 (07/2019)
TC 183 LDL 102 HDL 65 TG 52 (02/20/2020)
Supplemental vitamins and electrolytes
64 YY Love the LCHF diet. The cheese goes well with my whine

updated 02//20
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Old 02-28-2016, 14:25   #5
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Thank you

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Old 02-28-2016, 14:26   #6
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thanks for the info and the links. will definitely look into the low carb for beginners

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Old 02-28-2016, 14:28   #7
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Hello Steph and welcome to the forum. Please take some time to read the links that VeeJay has given you as these links have proven to be most heplful to most of us here on the forum.

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Old 02-28-2016, 14:32   #8
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Hi Steph, welcome!

The feelings of sadness and being overwhelmed by it all are totally normal, in my opinion. I can definitely relate to the shock of diagnosis.

As others have said, you CAN do this! It is a learning experience but as you go on about your daily routine and it becomes more of a routine over the next span of days, you will realize that you've got this

We're all here to support and help in any way we can.

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Old 02-28-2016, 16:04   #9
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Hi, Steph - I'm a few weeks "ahead" of you with rapid onset type 1 at age 54 - hospitalized with ketoacidosis. I relate to everything you have posted. There is a lot to learn. There is also fabulous support and information here. Take your time, read and re-read through all of the links and information that everyone is sharing. I just wanted to reach out to you, to say "hello" and to offer to learn together, if you want.

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Old 02-28-2016, 20:30   #10
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Hi Michelle

Wow! It sounds like we have a lot in common. Thank you for reaching out. I think this new event in my life will be a lot easier with support from people who understand and are living with the same experience.

How are you doing? Have you been able to level out your BG #s? I am so hoping that I can mine stabilized sooner than later. Have you started the low carb high fat method of eating? I think it sounds so interesting and something I would like to try.

The one big change I have made is formally exercising. In the past week I have walked 2 miles three times in the 30 minutes. I hope to increase that to a part of every day.

Looking forward to getting to know you and learn more

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