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New Member Introductions Please start by introducing yourself to the rest of our community. We would be grateful if you could tell us a little bit about yourself and your experiences with Diabetes. The main aim of our community is to share experiences, knowledge and help increase the understanding and awareness of Diabetes. The introductions forum is a great place to start with the community. ■ RulesGetting Started With DiabetesForum.com


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It's nice to be here!


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Old 12-16-2016, 15:21   #1
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Hi,

I would like to introduce you to me. This is a departure for me, I haven't belonged to a diabetes forum ye where I didn't just read posts to gain information. However in reading and seeing how thing are set up here, I really think this is he Community I need. I suppose a little background is in order to help flesh out who I am. My children are grown and doing great, 2 sons.

I am an artist/writer. I model 3D characters that are the type used in movies or commercials, along with their clothing, hair and expressions. My work also includes items that go into the scene such as furniture, backdrops, homes, etc. I love it. None of my work has made it to Disney :-) but I have a series of stores online that I an others supply the models that the public want and need for their own projects. As for writing, I have done work for publishers and other writers and finally I am writing one of my own. Sounds like a fun life, but it hasn't been for some time now.

Fifteen years ago I was sidelined by an accident and have been in a motorized chair since. I hated it since a a youngster and young mother I was super active, but I kept my sense of humor. about 6 years ago I ended up in bed flat on my back for 4 months. Husband worked and cared for me when home...what a time that was for us both. My hard headed-ness wouldn't let me give up and I have worked myself back up to my electric chair through a bucket load of pain and to the point of walking 6 steps with a walked. I start physical therapy after the first of the year. This all sounds great but it soon changed. About 4 years ago or so the house of cards that was me began to tremble.

I got a call one morning from my Doctor's office ordering me in immediately and telling me NOT to drive. A routine blood workup had shown my glucose level to be over 700. I was a type 2 diabetic. We started on shot of Novalog and Levemir and later they switched me to a pump which did a lot better. But I had trouble with diet and my husband ran the insertion of the tube and I hated that part. My A1C's weren't horrible at 6 or so but they steadily got wore. I was insulin resistant and everyone was telling me different times that I should e testing. Then depression set in. My eyesight started to diminish. Awhile back the pump company called me and said that my old one (which had quit and I was back on shots) was now out of warranty and I could get a new one just out that would control my blood easier and much better with new programmable settings. It sounded like a reprieve from the Governor but first I had to take a blood test. I did and they called with the news...I couldn't have it paid for by my really good insurance because my numbers were too high. I was in desperate need of the pump, but because I needed help and my numbers were too high, I was out. We will try again in January she said. I thought no we won't I have had it. That last silly-ness threw me further into depression. And finally (thanks for hanging i there if you did) he we are. Stupid self pity and then hopeless. Hopeless is a good word for it. Some days I ignore it and don't do anything to help. I eat what I want and conveniently forget to take my shots. My glucose is hanging around 300, just under or over and I swear I don't want to leave this earth yet. I have too many things I want to model and write. But I feel like I am running in mud. I am so sorry this has been a book. It won't happen again, I just wanted you to hear it all and to admit it and get it off of my chest, And being a writer, sometimes I don't know when to be quiet. It is really nice to find a Community though.

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Old 12-16-2016, 15:50   #2
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SadDamz...Welcome aboard! You are correct, you have just surrounded yourself with a very large group of people who have been dealing with diabetes for some time. Many of our senior members have had this disease for in excess of 10+ years, including me. I am also a type 2, but only found this website in April of 2015.

At that time, like you I had been fighting this disease with increases in both the amount of medications I used and by adding different medications to what I was already taking. Those changes helped, but over the long run my A1c's continue to trend up. Before I joined this website and changed how I managed my diabetes, my A1c had progressed to 7.9!! I was worried and my feet were starting to burn and go numb all at the same time, especially at night. I weighed 320 at 6'1" and had blood pressure at 135/90 (borderline high)...So I was scared!

When I found this site I spent a couple of weeks doing the recommended reading starting with www.bloodsugar101.com and LCHF for Beginners - DietDoctor.com. Most senior people told me to get the knowledge to understand how we on this website learn how to change what we eat, not dieting, but actually change to eating very low carb intake coupled with increasing our intake of fats, YEP all kinds of fats.....We refer to this as Low Carb High Fat or LCHF for short. After doing the research I started following this lifestyle on 5/1/2015....

Within 6 months I had dropped 50lbs.! My blood pressure was normalized at 120/80, and my A1c was at 5.8! What's not to like about that? I never felt hungry because I was not eating less, I was just eating differently avoiding carbs and giving my body some extra fat to supplement for the lower carb intake.

It has been almost two years now (Come May 2017) and my weight is still within 2 lbs.+- of 270. My blood sugar has stayed between 6.2 and 5.8, my Cholesterol is within normal range, and my blood pressure is 120/75....my doctor refers to me as his "Poster Child" for retired overweight guys.....

So start out by doing the reading and gaining the knowledge of how and why this all works....for me it was easy to do, just took time to learn who to eat differently and find enough recipes, on this website, so I had a long term meal plan....I can do this for the rest of my life. I forgot to mention another advantage, when I started I was taking a daily dose of slow acting insulin of 126units....that is a ton of insulin.....as my weight and blood sugar improved I was able to continually drop my insulin intake. I now take 25u daily....how cool is that, and with the price of the insulin, it saved me tons of money....

Come on in the water is fine.....!

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Last edited by div2live; 12-16-2016 at 15:55.
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Old 12-16-2016, 18:47   #3
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Thank you so much for telling your story. What a remarkable one it is. You have grit, I'll say that, even if you often don't feel that you do.

I'm puzzled why your pump wouldn't be covered due to high numbers? This comes from ignorance as I don't know how these things work.

You already know that "eat whatever I want" is a pretty bad diabetes plan The most important thing you could do right now is to reduce your carbs. And maybe we could help if you tell us what your diet is like - by suggesting alternatives.

For example, today I'm making a cauliflower dish: steamed and lightly mashed cauliflower, topped with lots of bacon, chives, cheese, and baked. With sour cream on top when served, it really is as close to a loaded baked potato as you can get.

I do realize it's tough, on top of your other challenges, to add changing diet to the list. Does your husband do the cooking?

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Dx'ed Feb 2011 w/ BS > 600
A1C: . . . . . . . . . . . . . . . Other Stuff
2/13/11 .. 14.7 . . . . . . Trig/HDL ratio .. 5.5 to 2.2 in 6 mo
5/23/11 .. 6.2 . . . . . . . Low-carb/high healthy-fat diet
9/8/11 .... 5.6 . . . . . . . No meds, No statin
2/24/16 .... basal/bolus insulin 2-3 days/wk due to steroids

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Old 12-16-2016, 19:25   #4
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Hi SadDamz, welcome. Sorry to hear about all the bad things plaguing you right now, but it sounds like you have coped with it far better than I could/would have.

"Coming out" or "venting" or "getting it off your chest" or however it is referred to is welcome here, sometimes it is very therapeutic in itself.

I've had minimal dealings with insulin, took fast acting a few days after a steroid injection and then took slow acting while healing from quad bypass surgery to keep my overall daily BG lower to help with healing up from the surgery. I have had no dealings with pumps, but can't imagine why anyone having higher BG would not be more in need and eligible for a pump. Do not give up on the effort to get it, make your doctor work hard and earn her money to get it. I assume your insurance company is the one imposing a BG level limit, again makes no sense to me since a pump seems to be far better at controlling BG if properly programmed.

I have had dealings with working with my diet to control my BG and have to tell you forthright that you have to quit eating "what you want" if what you want contains a lot of carbs. I tried following ADA recommendations, low glycemic index diets, portion control diets, non of them worked or even really put a dent in my BG control until I started cutting carbs. I had already cut out a lot of very starchy items as well as deserts and candy, so it was not as big of a shock when I did make change to low carb. For me it takes around 30 grams or less per day to keep my BG in my target range, but I could probably eat more and stay out of the levels that causes damage. Although it sounds like one has to severely limit food choices when eating low carb, I eat a lot more variety now days than I did before diabetes.

It is not hopeless, and although with the other negative circumstances you are currently saddled with, you have many other important things to be hopeful for. A supportive husband, kids, grandkids (future), a very interesting job (and it sounds like you love it). Hang in there and don't ever give up and anytime you want to "let it out", we are here to listen and will help in any way we can.

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Think I've had this since 2003. Told I was Type 2 lean on 2/13/12.
a1c 8.8 (8/2011) 5.2 (07/2019)
TC 183 LDL 102 HDL 65 TG 52 (02/20/2020)
Supplemental vitamins and electrolytes
64 YY Love the LCHF diet. The cheese goes well with my whine

updated 02//20

Last edited by mbuster; 12-16-2016 at 19:29. Reason: because I can't spel good - borrowed that from Bounty
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Old 12-16-2016, 23:20   #5
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Well looks like I was correct, this is wonderful to hear from some of you already and I can feel the support. It feels good. We both cook and a lot of times we each cook since a lot of meals we eat different things. He has had two major strokes that almost killed him and claims I pulled him through since he knew he couldn't leave me to fend for myself. He should eat better also but is stubborn. I have seen him change in the past 6 months and eat more carefully though, so that is nice.

I really can't imagine the thinking behind the rules for the new pump. It sounds a bit sadistic to me..."So you need a pump to live huh??? Well, I think not." Sounds like an old Frankenstein movie to me. Thank you all for being so welcoming and I will definitely get going on the reading you recommended. As for what I eat I do have a diet planned out that involves low carb tortillas with a sliced tomato, some low fat beef strips, pepper and onion strips and Mozzarella cheese on top. 2.30 min. in the microwave and its delicious. low fat meat (sounds like I may need fat) salads, broccoli, green beans, Brussels sprouts etc.

I do pretty well but all the time that mean little guy is sort of growling in my stomach and taste buds and then one day I fall and pasta and ice cold milk are my name. After that you might as well wait a day or two while I have some noodles in chicken broth, Spanish rice and for breakfast a big bowl of Raisin Bran. Then I look the other way when I pass the insulin and shot kit. It maddens me because I am smarter than this. I am not a spoiled child. I am an intelligent woman (who is feeling and acting like a spoiled child) I don't know if its the fact it seems unfair to have all of these things fall on me and of course one thing affects the next. Whatever the excuses or the causes I need to get my act together and I really will appreciate all of your help and suggestions. I forgot to add, my sorry excuse for an A1C number varies between 8-9.5. My blood pressure is 125/70, I do have neuropathy in both hands and feet and water retention from the knees down. I am sure that being sedentary for so long doesn't help. I am almost 6 ft tall and weight just over 200 lbs. my highest. My normal weight all of my life until the chair was 150. OK..done now.

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Old 12-17-2016, 05:17   #6
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Quote:
Originally Posted by SadDamz View Post
low fat meat (sounds like I may need fat)
Exactly right. And the great benefit will be a major reduction in carb cravings. There are carbs, protein and fat. If you eat low-fat, you by necessity up your carbs and protein, which ends up being defeating.

I was a serious carb addict, and when dx'ed had a very high bg and 14.7 A1c. Slashed carbs, something I never could have imagined doing, and brought my bg into normal range pretty quickly.

Now, when I wade into too-many carbs territory, I do feel cravings return and realize how dangerous it would be to give into them in a pasta-rice-bread-oh-boy sorta way.

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Dx'ed Feb 2011 w/ BS > 600
A1C: . . . . . . . . . . . . . . . Other Stuff
2/13/11 .. 14.7 . . . . . . Trig/HDL ratio .. 5.5 to 2.2 in 6 mo
5/23/11 .. 6.2 . . . . . . . Low-carb/high healthy-fat diet
9/8/11 .... 5.6 . . . . . . . No meds, No statin
2/24/16 .... basal/bolus insulin 2-3 days/wk due to steroids

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Old 12-18-2016, 06:37   #7
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Thank you again for the tips and encouragement. I really am starting to get excited about learning to eat differently and losing the cravings. Like you I felt I just couldn't get in the right mood or mode to realize that it could happen for me too. I had a long day of modeling a bedroom with furniture.. Sometimes it takes me well into the night and I don't mind. But there again up by yourself at night working is an accident waiting to happen with snacking. I smile when these things arise. L.ike the fat issue and I find I am starting to recognize my traps and things that trigger them. I think this could work and that is a far cry from a week ago, Thank you all.

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Old 12-18-2016, 07:11   #8
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A great activity when up at night thinking about food and trying to resist, might be to peruse the recipe section here, as well as the long sticky threads about what people eat for breakfast, lunch and dinner. You can find them in the Diet and Nutrition section. That can be a good time for printing off recipes and making shopping lists

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Dx'ed Feb 2011 w/ BS > 600
A1C: . . . . . . . . . . . . . . . Other Stuff
2/13/11 .. 14.7 . . . . . . Trig/HDL ratio .. 5.5 to 2.2 in 6 mo
5/23/11 .. 6.2 . . . . . . . Low-carb/high healthy-fat diet
9/8/11 .... 5.6 . . . . . . . No meds, No statin
2/24/16 .... basal/bolus insulin 2-3 days/wk due to steroids

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Old 12-18-2016, 13:45   #9
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I fry up a pound of (fatty) bacon and freeze the slices - which are very good munchy foods for when the "snack attack" hits.

I too am up very late now and then. It helps if I have some of my paper crafts already started to get engrossed in - then I'm not trying to raid the refrigerator.

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Old 12-20-2016, 01:13   #10
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Hi there!

I'm on insulin as well and am getting my first pump (Tandem) this week. I had to pay for my CGM myself because my insurance only pays for CGMs for Type 1 diabetics, not Type 2. So I've driven myself crazy too trying to get insurance to pay for things because of silly rules.

One thought is to have your doctor write a letter of medical necessity for the pump. Your doctor can also do a phone call with the insurance company's physician to make it clear that you need one.

If you have a regular physician instead of an endocrinologist, you may want to consider seeing an endo. Not only do they have a lot more training and experience with diabetes but they also are much better at making insurance pay for things. I started going to one this year and am getting much better care now.

What has helped me the most though is the book "Think Like a Pancreas". I was put on insulin with no guidance on how much to take, when to take it, how to know when I need to change my basal, or adjust my meal-time bolus based on what I was going to eat. I cannot recommend the book enough.

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Last edited by Daytona; 12-20-2016 at 01:17.
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