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New Member Introductions Please start by introducing yourself to the rest of our community. We would be grateful if you could tell us a little bit about yourself and your experiences with Diabetes. The main aim of our community is to share experiences, knowledge and help increase the understanding and awareness of Diabetes. The introductions forum is a great place to start with the community. ■ RulesGetting Started With DiabetesForum.com


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Old 02-18-2017, 06:15   #1
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Hi, my name is Lisa, I am a 53 years old female and was resently discharged from the hospital with diabetes 1. My A1c was 12. my blood sugar was 780. My whole life has changed, knowing that my life span has been cut short. Most people assume that you aquire adolescent diabetes when you are young. This was not my case. I had assumed the hot flashes were caused by menopause. prior to finding out I was a diabetic I recall a cut that took months to heal. Prior to being admitted to the hospital my symptoms felt like I had a bad case of the flu. In addition, to the diabetes discovery I contantly got UTI infections, and intimate relationships became impossible for me. My physician never checked for diabetes, due to the fact that I am slim and very healthy looking. I still struggle knowing that I have to take injections 4 times a day and it has only been a week since this discovery. I write this post to let other men or women know that you can get diabetes 1 in your earily fifties. I look forward to learning more about diabetes and this forum seemed like a good place to start.

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Old 02-18-2017, 10:20   #2
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Hi LisaB, welcome to the forum. Unfortunately diabetes is still looked at so stereotypically, first thought, fat people are diabetics and skinny people are not. That is oh so wrong and is dangerous for the patients.

This forum is a good place to find out many things that diabetics, type 1 and 2, are not told about by their medical team. The majority of those teams are still treating diabetes from learnings they have had for many years. Fortunately, many here have learned what works and doesn't work for them and gladly share their experiences. As you read through the threads and have questions, ask away. Someone here will be able to answer your question or guide you to a source that does answer it.

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Think I've had this since 2003. Told I was Type 2 lean on 2/13/12.
a1c 8.8 (8/2011) 5.2 (07/2019)
TC 183 LDL 102 HDL 65 TG 52 (02/20/2020)
Supplemental vitamins and electrolytes
64 YY Love the LCHF diet. The cheese goes well with my whine

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Old 02-18-2017, 23:16   #3
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Originally Posted by mbuster View Post
Hi LisaB, welcome to the forum. Unfortunately diabetes is still looked at so stereotypically, first thought, fat people are diabetics and skinny people are not. That is oh so wrong and is dangerous for the patients.

This forum is a good place to find out many things that diabetics, type 1 and 2, are not told about by their medical team. The majority of those teams are still treating diabetes from learnings they have had for many years. Fortunately, many here have learned what works and doesn't work for them and gladly share their experiences. As you read through the threads and have questions, ask away. Someone here will be able to answer your question or guide you to a source that does answer it.
Thank you, I agree with what you said about the medical team. My physician instructed me to inject 20 units of Lantus in the morning. When I did that, my morning readings were 300. When I experimented and took 10 units in the morning and 10 units at night, my morning readings were 125. One has to factor in the absorption rates which my be different for each person. I have mixed feeling about using the pen, because I read that some people draw blood in their insulin pen and it ruins the pen. Then I also have mixed feelings about the insulin pump. My fear was it could malfunction. What I am planning on getting is a glucose monitor, that I can get reading every 5 minutes, and those reading can be viewed on a Apple watch or I phone. I will post how that goes once I know it is covered my insurance company. I will post the pro and cons of the units.

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Old 02-20-2017, 13:15   #4
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Lisa - what a rude awakening it was for you to find out you're T1 diabetic and to have to go immediately to an insulin regimine. You aren't alone in this as there have been many T1 (1.5 or LADA) members across the years.

As you begin this journey of the management of your blood sugars involve, you might want to get one of these books. There's lots of good information in each one of them, and it can greatly help fill in the gaps.

Diabetes Solution by Dr. Richard Bernstein. Much of his book is on his website Read Online - Diabetes Solution - Dr. Bernstein's Diabetes Solution. A Complete Guide to Achieving Normal Blood Sugars. Official Web Site

Using Insulin by John Walsh

Think Like a Pancreas by Gary Scheiner

I think everyone new to insulin is apprehensive at first. The internet is full of horror stories. But in the years I've been on the forum, I haven't heard of anything bad reported about pens. In fact, most who inject manually like them a lot.

I am curious why your doctor only has you on Lantus - a basal insulin. Since you have diminished pancreatic function, I would have thought he's be wanting you to count carbs and inject a bolus to cover the carbs in your meals. Of course, I do understand how important it is to get the basal dosing correct so maybe that's what his strategy is.

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Old 02-20-2017, 16:07   #5
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Hi Lisa!

I am on insulin, started out with Levemir (slow acting insulin) and Novolog (fast acting insulin) using pens and now I use a pump. Please feel free to ask me questions.

The pens only go in one direction and can't draw-up, so I would not worry when an injection site bleeds. It won't ruin the pen or the insulin in it.

There are a lot of pumps out there, but before you get one it's pretty common to learn how to use insulin first. Sounds like you are only using Lantus (slow acting) insulin right now? The first step would be to start taking fast acting insulin with your meals. This is how all pumps work actually. They only have fast acting insulin in them, and let out a very small amount every 5 minutes to keep your blood sugar steady, then you tell it to give you more when you eat.

I have a Tandem t:slim pump, and I really like that it does the math for me. I look at my Dexcom, a continuous blood glucose meter to see what my blood sugar is. Then I type that number into the pump, and tell it how much food I am about to eat, and it gives me the right amount of insulin. It also keeps track of how much insulin that I have taken.

Are you seeing an endocrinologist? With an A1c of 12, you should have been referred to one, and the standard of care is to start out on a "basal / bolus" plan where you take a slow acting insulin 1-2 times a day (basal), and then use the fast acting insulin before meals and to fix high blood sugar (bolus). If that did not happen, I recommend finding an endocrinologist immediately.

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Old 02-20-2017, 16:51   #6
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I assumed with 4 injections a day (first post), she was on basal and bolus insulins.

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Think I've had this since 2003. Told I was Type 2 lean on 2/13/12.
a1c 8.8 (8/2011) 5.2 (07/2019)
TC 183 LDL 102 HDL 65 TG 52 (02/20/2020)
Supplemental vitamins and electrolytes
64 YY Love the LCHF diet. The cheese goes well with my whine

updated 02//20
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Old 02-20-2017, 22:01   #7
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Thank you, for the information on those books, I will check into them. I try reading as much as i can on the forum, and learn from other diabetics.The information on this forum has been very helpful. I am on a sliding scale chart. Lantus 20 units daily and Humalog for the short acting insulin based on my meter reading. I also have been adding 3 tablespoons of coconut oil after each meal and my blood sugar is running 100-112. Yes it was a shock to wake up in the hospital, in DKA not knowing what happened to you, thinking you just had a bad case of the flu. I do feel better now after reading what some of the member wrote on this forum, many have given me hope. I am now looking for a back up plan, and checking out the OTC Walmart insulin, in case of emergency, but I need to find a conversion chart. I also fear dropping my bottles of insulin, so I ordered a protective case for the bottles. Ok, perhaps I will give the pen a try since that is what the physician suggested.

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Old 02-20-2017, 22:23   #8
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Hi Daytona, thank you for your reply. Well, the soonest appointment with the endocrinologist is May 1, 2017, therefore I am seeing my primary physician until then. I think I will try the pen first. The concern I had about the pump was malfunction, in addition to not being able to take my baths because I was hooked up to a pump. However you answered a question, I had it is for fast acting insulin. This is all so new to me, I think I will first try the pen, and later when I understand more and feel more confident I will check into that pump that you mentioned. I do like the fact that i can see my reading in real time. I don't know if this is true, but someone on youtube mentioned that without insulin a diabetic 1 could die within 48 hours.

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Old 02-20-2017, 22:36   #9
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A pump doesn't stop you from going swimming or taking a bath. If it's a pump with tubing, you just unplug the tubing first, leaving the little infusion site (which is just a soft fabric patch with a bit of plastic). The other kind, the Omnipod, is a self-contained pod that stays on your skin, and can go in the water.

Thanks for clarifying, I didn't realize you are on Humalog too. I had to wait 2 months to get to see an endo, and I ended up reading "Think Like a Pancreas" which helped me get by until then. Actually those books taught me a bunch more than the endo did, but she's the one with the prescription pad!

As for how long you can go without insulin, that very much depends on the person. Some type 1's continue to make a tiny bit of insulin forever, and could go a few days. Others who are newly diagnosed can go months, just with very high blood sugar. And yeah, some people would be in the hospital the next day.

It's not an instant thing for most people, you'd notice that you forgot a shot, or if there was a problem with the pump, realize your blood sugar was high, and fix the problem.

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Old 02-20-2017, 22:37   #10
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Being LADA may mean you are still producing some insulin and may make figuring out bolus dosing a little more complicated.

Don't stress yourself out over having no insulin for 48 hours, it is not likely you would be that far away from having some available unless you are living in a very remote location. I know insulin pens come with more than one pen when you get a script for them, not sure how a script for vials comes.

I have to defer to others about any advice on using insulin.

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Think I've had this since 2003. Told I was Type 2 lean on 2/13/12.
a1c 8.8 (8/2011) 5.2 (07/2019)
TC 183 LDL 102 HDL 65 TG 52 (02/20/2020)
Supplemental vitamins and electrolytes
64 YY Love the LCHF diet. The cheese goes well with my whine

updated 02//20
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