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Old 04-12-2020, 03:15   #1
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Join Date: Apr 2020
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Type 2
Diagnosed in 2019

Default Hello everyone.

Hello. My name is Rachel and I was diagnosed with type 2 in October of 2019.

I'm currently on 12 units per day Basaglar. I'm mostly joining because I'm so confused and frustrated. Since diagnosis, I've changed my entire diet. I've been restricting carbs to ideally less than 20 per meal. I generally eat twice a day so it comes out to about 40 a day.

I do pretty well on my diet and really don't cheat. When I eat carbs, I make sure they're healthy like whole grains. I've completed cut added sugar. In essence, I'm really trying. I'm trying so hard and I feel like my blood sugar levels make no rational sense!

I can eat the same thing every day for weeks and then suddenly one day it spikes me to 200. Without any changes in diet, foods, exercise level, or stress. Just BOOM.

For example, I was having 20 carbs worth of oatmeal for breakfast every single day for over a month. Then suddenly one day I spike to 207 after the same exact oatmeal. No other changes, I hadn't eaten anything too carby the day before.

I feel like I don't know what to eat or what to do. I get so frustrated that I avoid meals altogether because I feel like I don't know what good choices even are.

My fasting this morning was 98 and I was so happy, then tonight when I tested after dinner I was at 193. The offending dinner? A bowl of homemade creamed spinach with a few tortilla chips.

Please tell me I'm not the only one? I don't understand my body! I don't see how upping insulin would help either since my levels fly around so dramatically. I feel like that'd put me at risk of dropping too low.

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Old 04-12-2020, 03:52   #2
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Hi, Rachel. Welcome to the forum!

As a non-insulin-dependent T2, I don't know a lot about the various types of insulin out there. I'm sure other posters here will help fill in what I don't know. So you're saying that, as you test after meals, some days you'll see spikes up to 190-200 and other days, with the same foods, activity, etc., you'll test lower? That is odd. What is your usual level two hours after eating? I can understand your frustration -- the inconsistent problems are the hardest to track down.

Let's see what some of the other folks here can suggest. In the meantime, please take a look around some of the forums here and see if there's other information that can help you.

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Old 04-12-2020, 04:19   #3
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Originally Posted by itissteve View Post
Hi, Rachel. Welcome to the forum!

As a non-insulin-dependent T2, I don't know a lot about the various types of insulin out there. I'm sure other posters here will help fill in what I don't know. So you're saying that, as you test after meals, some days you'll see spikes up to 190-200 and other days, with the same foods, activity, etc., you'll test lower? That is odd. What is your usual level two hours after eating? I can understand your frustration -- the inconsistent problems are the hardest to track down.

Let's see what some of the other folks here can suggest. In the meantime, please take a look around some of the forums here and see if there's other information that can help you.
Thanks! It's so inconsistent and that's what's driving me mad. My insulin is a once daily long acting. It feels like my levels have little to do with what I eat! I can eat really carefully and be around 200 or I can eat like garbage and be sitting at 110-130.

I feel like I'll be great for weeks, sitting between 110-140 2 hours after meals, then without changing my general diet or activity level, it'll go all out of whack and fly around between 100-200 with seemingly no rhyme or reason.

My fasting levels are pretty consistently good. Usually 95-120 and rarely over 130.

It'd be one thing if I ate half a pizza and then tested high, but it's beyond maddening to eat a bowl of spinach and my levels looking like I just ate half a pizza.

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Old 04-12-2020, 18:50   #4
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Hi Rachel!!

Type 2 can be very confusing at first, and no you aren't the only one. We were all where you are.

When you were diagnosed were you tested for Type 1 antibodies? Late onset Type 1 (LADA or Type 1) are misdiagnosed as Type 2 early on. They still produce insulin, but it can be very sporadic and inconsistent. Not saying that is what it is, just mentioning the possibility. That could explain big swings in numbers.

Another possibility is maybe you are eating more carbs than you think. They are pretty sneaky at hiding. Looking at food nutrition labels requires not only looking at the carb count, but also the list of ingredients, because there may be something else added that can affect your blood sugar. What was in the creamed spinach? The chips have carbs. So do those "healthy whole grains" and I try to avoid them like the plague.

How often do you test? Do you test before a meal to know what your BG is going into the meal and then after eating to see how that meal affected you BG?

Your insulin is a slow, long acting insulin. It will lower overall BG but is not made to counter the carbs you eat or treat spikes in your BG. I, like itissteve, am not taking insulin. There are a lot of Type 2 members here that do and can offer more help on that than I can. Someone should be by soon that can address much more on that subject.

In the meantime, a good place to read more about diabetes and how to manage your BG is at Bloodsugar 101.

Welcome to the forum, sorry you had to find us though.

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Think I've had this since 2003. Told I was Type 2 lean on 2/13/12.
a1c 8.8 (8/2011) 5.2 (02/2020)
TC 183 LDL 102 HDL 65 TG 52 (02/20/2020)
Supplemental vitamins and electrolytes
65 YY Love the LCHF diet. The cheese goes well with my whine

updated 10/12/2020
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Old 04-12-2020, 19:02   #5
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Originally Posted by mbuster View Post
Hi Rachel!!

Type 2 can be very confusing at first, and no you aren't the only one. We were all where you are.

When you were diagnosed were you tested for Type 1 antibodies? Late onset Type 1 (LADA or Type 1) are misdiagnosed as Type 2 early on. They still produce insulin, but it can be very sporadic and inconsistent. Not saying that is what it is, just mentioning the possibility. That could explain big swings in numbers.

Another possibility is maybe you are eating more carbs than you think. They are pretty sneaky at hiding. Looking at food nutrition labels requires not only looking at the carb count, but also the list of ingredients, because there may be something else added that can affect your blood sugar. What was in the creamed spinach? The chips have carbs. So do those "healthy whole grains" and I try to avoid them like the plague.

How often do you test? Do you test before a meal to know what your BG is going into the meal and then after eating to see how that meal affected you BG?

Your insulin is a slow, long acting insulin. It will lower overall BG but is not made to counter the carbs you eat or treat spikes in your BG. I, like itissteve, am not taking insulin. There are a lot of Type 2 members here that do and can offer more help on that than I can. Someone should be by soon that can address much more on that subject.

Welcome to the forum, sorry you had to find us though.


I'm not sure if they did test for any of that, I'll definitely ask about it! Thanks for the suggestion.

The rough thing is that it feels like a lot of the time if I don't have any or enough carbs, I'll dip too low and end up feeling woozy. When I was first diagnosed I was staying under about 10 a day and I was feeling like garbage.

I make 99% of my food from scratch so I'm super aware of what's going into it. I read labels and calculate like crazy. The creamed spinach was a block of frozen spinach, about one or two tablespoons of whole milk so maybe 2 carbs max there, cheddar cheese, and a dollop of sour cream. It's something I make often, sometimes including the chips (about 15 carbs worth) and it's never spiked my blood sugar before.

I test fasting every day and one other time which is normally after dinner. That was what my doctor directed. But I think maybe you're right. I'm going to try to test one day before and after every meal and see what's actually happening.

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Old 04-12-2020, 19:12   #6
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In Blood Sugar 101, you'll find it recommended to test frequently at first to see how things affect you and as you learn what can and can't be tolerated, testing can be backed off until something new is tried or just to see if something is still tolerable later on. We are all different and are affected differently. Test before meal and then at 1 and 2 hours after. You should see a peek around an hour and back down to where you were by 2 hours, but there are many things that affect how fast things metabolize and some carbs may not give you a big spike but will drag out how long your BG is up.

I try to eat 30 or less grams of carbs per day and have been for several years. The secret to going very low carb is to make up the lost calories with healthy fats. Lots of info searching for Keto diets.

__________________
Think I've had this since 2003. Told I was Type 2 lean on 2/13/12.
a1c 8.8 (8/2011) 5.2 (02/2020)
TC 183 LDL 102 HDL 65 TG 52 (02/20/2020)
Supplemental vitamins and electrolytes
65 YY Love the LCHF diet. The cheese goes well with my whine

updated 10/12/2020

Last edited by mbuster; 04-12-2020 at 19:16.
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Old 04-12-2020, 19:16   #7
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Quote:
Originally Posted by mbuster View Post
In Blood Sugar 101, you'll find it recommended to test frequently at first to see how things affect you and as you learn what can and can't be tolerated, testing can be backed off until something new is tried or just to see if something is still tolerable later on. We are all different and are affected differently.

I try to eat 30 or less grams of carbs per day and have been for several years. The secret to going very low carb is to make up the lost calories with healthy fats. Lots of info searching for Keto diets.
I'll give that a read. I feel like my doctor gave me little to no valuable information when I was diagnosed, just sort of said watch your carbs and test twice a day and then chucked me in the deep end.

I do a lot of keto recipes as well. Right now I'm having to be less picky because of quarantine. Not a ton of access to food shopping so I'm trying my best!

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