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Discussion Starter · #1 ·
I can't believe it, but I do...... Dx'd at T2 this past July with a 6.8 A1c. Three months later, I had lost 20 pounds and was at A1 5.5 so I thought I was doing pretty good.

Well, my toes are failing fast, and I am looking for others who have issues with their toes/feet to learn what they do about it. I have a dr appt in a few days, but from what I can glean off the net, and at the library, there is nothing that can be done to stop it, only to make it so I can live with it. Cold toes, and sore from the ball of the big toe, forward. When I walk with shoes and socks on, it feels like I am walking barefoot on concrete. Same shoes and socks as always, and I am not sure I can connect the cold toes, and the lack of what feel like a cushion on the balls of my feet. Could be two different things


Yesterday I absolutely could not get my toes warm. It took half the night in bed with socks on, and the electric blanket to get them to be as warm as the rest of me. Paranoia may feel a slight tingle. I don't know, I stress out pretty easy over this stuff, lacking insurance to go and see a specialist, especially when the consensus is, there is no cure, and the only way to make it better is keep BG real tight. I haven't been over 130 in months (that I know of, don't test every hour, but most meals)

I massage them, I warm them in front of a radiant heater, carefully, the shoes I wear every day, I have worn for a year, very comfortable and not at all tight.

Don't have any cuts, or infections or anything like that. Just started about three days ago, to get cold, and the toes are not really all that pink, but I never really noticed. Didn't occur to me that such a thing could come on so fast, so early on, although who knows how long I was diabetic in the first place. Still, my last A1c was 5.0. Not gonna get much tighter than that <shrug>

Anyway, I am trying to walk my way out of it, meaning staying on the treadmill and hoping the exercise increases the circulation. I was off for about a week with a bad cold. I hope that is the right approach.

Can't go outside, as the cold ground comes through my shoes pretty quick, and I can feel the toes getting cold which scares the living hell out of me, trapped inside until summer time.

I am massaging, soaking, keeping my BG tight, and gonna exercise through it. Anyone been here before that can share what you are doing about it. I suspect that the doctor will not have much beyond that to offer, and as I said, research shows me that there is not much one can do to increase circulation. Imagine being dx'd that low, and six months later, I have major feet/toe issues? Happy days all around.

No insurance, so a specialist is out, unless I can get myself convinced that there is something they really could do, which so far, I am not.

Would love to hear from someone who is going through it.

Thanks

John
 

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Discussion Starter · #2 ·
Hey, I just realized I probably put this in the wrong forum. Those who know how to move it, would you mind?

Thanks

John
 

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John, you are experiencing a complication and so this is the right forum. Which forum were you thinking about?

I have had cold feet ever since I started having good control, many years ago. That is a very common thing among diabetics of all types. If I have an occasional high like 140 or above, my feet and toes become very warm. If I drop below 90 they are very cold. I usually stay 80-120 and then they are moderately cold, even in the summer time. I do not think of this as a complication at all. My doctor is not concerned either.

If you think this is something different from what so many of us experience then you can see a specialist. A neurologist could give you an EMG test to see if it is neuropathy or some other nerve problem. A podiatrist might have some input. Your endo would probably tell you this is very common and nothing to worry about.
 

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Discussion Starter · #4 ·
If you think this is something different from what so many of us experience then you can see a specialist. A neurologist could give you an EMG test to see if it is neuropathy or some other nerve problem. A podiatrist might have some input. Your endo would probably tell you this is very common and nothing to worry about.
Thanks Richard. No endo, no insurance, no money, and a lot of foot pain...... Pain might be the wrong word. Perhaps discomfort at a high level would be more descriptive. I can live with cold feet, but I cannot walk on marbles the rest of my life. :) that is what it feels like up under the joints where the toe meets the foot, and on the ball of each foot. Not numb, and no tingling or anything. Hard to judge color.

Came on way too fast for me to believe its plain old neuropathy. It started with just the toes feeling cold, and by the end of the day, over the weekend, my feet were in major distress. The crappy thing about it is, when I walk funny, my knees and back take a beating and now they are all messed up. I am used to that, been like it since forever, but it doesn't help my outlook.

I haven't come across anyone who has said they have neuropathy, with the extreme discomfort which feels like I am walking on bare bone, with marbles in the front of my feet. Hoping it will get better. The cold may have to stay, and so be it, but not being able to walk is a real downer emotionally. From what I read, there is no way to increase the blood flow to the feet/toes but for massages but who can sit around all day and rub their feet? That job doesn't pay much :)

I have soaked them in the old Dr Sholes foot bath/vibrator, use the small vibrator that comes in those neck massagers, rubbed em, and never have ever walked around barefoot, and it helps for a bit. Early in the day, its tolerable. By evening, I can't wait to go to bed and get off them.

Dr appt on thursday. Just my family doctor as he gives me a nice break for paying cash. I will let him tell me where he thinks I should go next, and then decide if I can afford it, or it is worth it. From what I have researched, neuropathy has no cure, so I will have to decide if there is good cause to pay a specialist out of my pocket for what I can only imagine will be a really big bill.....

Hey, for all I know, I have always had cold feet in the winter. Its Utah, its cold, I keep (kept) the heat down due to costs, so I am just out here trying to decide the best course of action. Maybe my doctor can help me find that.

Thanks for the input. Always good to hear from you.

John
 

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Now that I have heard more about the problem, I am wondering if it may be the beginning stages of gout. I have had three gout attacks and ghey always start off this way. Gout is caused by excessive uric acid in the joints. The most common joint is in the big toes. In the more advanced stages the pain increases, there is swelling, reddness and the affected area feel very warm to the touch. My last attack was in early Nov. The inflammation eventually set in and the area (back of my heel) was as almost fire engine red. I use Allipurinol for gout and I used an anti-inflammatory med too. I was walking funny too and developed pain in my opposite leg and hip. Gout is more common among diabetics but my gout may not have been diabetes related.
 
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Foot Problems..

If you ask my wife she'll tell you I have a B I G foot problem. It seems like I keep on putting it in my mouth.. and sometimes I end up with both of them there! :laugh:

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Discussion Starter · #7 ·
Okay, here goes.... if anyone has been reading my adventure regarding stupid doctors and my feet. you may be interested. I told half a dozen "specialists" that my feet simply erupted in pain, in a matter of minutes, all the sametime in both feet. Big toe one right hurt, so did the L one. If small toes was flaring up, so was the other one. Not a one of them listened to me, and in fact, told me I was wrong, that it cannot be the same in both feet. Doctors are stupid, ignorant people who never listen to what we tell them. They are too busy thinking of what pill they can sell us.

The feet erupted in Dec 2009. In Julyof 2020 I sufffered a massive stroke that by all regards, should have killed me. It wa almost 20 hours from when it started to where I got some medical help. When you have a stroke, your brain is turned off, so you don't think anything is wrong.

Two hours on blood thinners, and my feet began to feel bettter, and by morning they were completely normal.

The thing every doctor overlooked because they thought I was stupid, was that in dec, I had had mini stroke, a precursor to the massive one. That is why it hit fast and hard, and identical on both feet.

Today, I am alive, but have no use of my left hand and little for my right hand....By all standards, I should be dead, and every doctor has said the same thing.

Bottom line, if the dopey doctors were not so interested in giving me pills or orthopedic shoes and anti depressants, they might could have thought a bit and considered some kind of mini stroke. Meanwhile, 6 months later, it was a massive stroke that should have killed me....'

Medical care is a joke. The total cost to this uniinsured person for the inability of a doctor to think on his own and take my word, exceeds $180,000

So long as medical care is a for profit endeavor, there is no 'care' involved.

Doctors?? Screw them, they don't care about anything more tha n money.
 

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Okay, here goes.... if anyone has been reading my adventure regarding stupid doctors and my feet. you may be interested. I told half a dozen "specialists" that my feet simply erupted in pain, in a matter of minutes, all the sametime in both feet. Big toe one right hurt, so did the L one. If small toes was flaring up, so was the other one. Not a one of them listened to me, and in fact, told me I was wrong, that it cannot be the same in both feet. Doctors are stupid, ignorant people who never listen to what we tell them. They are too busy thinking of what pill they can sell us.

The feet erupted in Dec 2009. In Julyof 2020 I sufffered a massive stroke that by all regards, should have killed me. It wa almost 20 hours from when it started to where I got some medical help. When you have a stroke, your brain is turned off, so you don't think anything is wrong.

Two hours on blood thinners, and my feet began to feel bettter, and by morning they were completely normal.

The thing every doctor overlooked because they thought I was stupid, was that in dec, I had had mini stroke, a precursor to the massive one. That is why it hit fast and hard, and identical on both feet.

Today, I am alive, but have no use of my left hand and little for my right hand....By all standards, I should be dead, and every doctor has said the same thing.

Bottom line, if the dopey doctors were not so interested in giving me pills or orthopedic shoes and anti depressants, they might could have thought a bit and considered some kind of mini stroke. Meanwhile, 6 months later, it was a massive stroke that should have killed me....'

Medical care is a joke. The total cost to this uniinsured person for the inability of a doctor to think on his own and take my word, exceeds $180,000

So long as medical care is a for profit endeavor, there is no 'care' involved.

Doctors?? Screw them, they don't care about anything more tha n money.
I am so sorry that you had to go through all of this. I have been complaining to my doctor about the pain in my left hand and have had carpal tunnel surgery and that really did not help and then went for a 2nd EMG on the left hand and now I am being told that I need a cubital tunnel release? And I had to tell the orthopedic surgeon that I was living on pain medication in order for him to agree to do the cubital tunnel release. These doctors have no clue as to what the problem is, but I will not give up. I just hope that it is not something serious that is being overlooked.
 

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John,

I am SO sorry to hear that, but so glad that the stroke was not worse. You are very lucky, and I am sure you hear that all of the time. I am so sorry that your doctors were not of better help. How are your feet doing now? I hope you haven't had anymore strokes or anything like that.
 

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So long as medical care is a for profit endeavor, there is no 'care' involved.
Well hello, John - good to have you back! And I do agree with much of what you say. We patients have to know our stuff and stand up to the docs, many of whom would as soon brush us off as look at us.

You have every reason to be mad as hell, having survived a debilitating stoke that could very possibly have been averted.

Now don't be a stranger, okay?
 

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Re

Sometimes it may cause due to irregular routine also if one has to stand for long with out taking break then he must have the problem of having foot pain.
 

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John, that is a terrible experience you have been through. I wish I could offer some suggestion that would help, but I cannot. Good luck to you in the months ahead, and please let us know of any changes that occur.

Richard
 

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I can't believe it, but I do...... Dx'd at T2 this past July with a 6.8 A1c. Three months later, I had lost 20 pounds and was at A1 5.5 so I thought I was doing pretty good.

Well, my toes are failing fast, and I am looking for others who have issues with their toes/feet to learn what they do about it. I have a dr appt in a few days, but from what I can glean off the net, and at the library, there is nothing that can be done to stop it, only to make it so I can live with it. Cold toes, and sore from the ball of the big toe, forward. When I walk with shoes and socks on, it feels like I am walking barefoot on concrete. Same shoes and socks as always, and I am not sure I can connect the cold toes, and the lack of what feel like a cushion on the balls of my feet. Could be two different things


Yesterday I absolutely could not get my toes warm. It took half the night in bed with socks on, and the electric blanket to get them to be as warm as the rest of me. Paranoia may feel a slight tingle. I don't know, I stress out pretty easy over this stuff, lacking insurance to go and see a specialist, especially when the consensus is, there is no cure, and the only way to make it better is keep BG real tight. I haven't been over 130 in months (that I know of, don't test every hour, but most meals)

I massage them, I warm them in front of a radiant heater, carefully, the shoes I wear every day, I have worn for a year, very comfortable and not at all tight.

Don't have any cuts, or infections or anything like that. Just started about three days ago, to get cold, and the toes are not really all that pink, but I never really noticed. Didn't occur to me that such a thing could come on so fast, so early on, although who knows how long I was diabetic in the first place. Still, my last A1c was 5.0. Not gonna get much tighter than that <shrug>

Anyway, I am trying to walk my way out of it, meaning staying on the treadmill and hoping the exercise increases the circulation. I was off for about a week with a bad cold. I hope that is the right approach.

Can't go outside, as the cold ground comes through my shoes pretty quick, and I can feel the toes getting cold which scares the living hell out of me, trapped inside until summer time.

I am massaging, soaking, keeping my BG tight, and gonna exercise through it. Anyone been here before that can share what you are doing about it. I suspect that the doctor will not have much beyond that to offer, and as I said, research shows me that there is not much one can do to increase circulation. Imagine being dx'd that low, and six months later, I have major feet/toe issues? Happy days all around.

No insurance, so a specialist is out, unless I can get myself convinced that there is something they really could do, which so far, I am not.

Would love to hear from someone who is going through it.

Thanks

John
I am sorry you are going though this.. I don't have insurance either and I am sure it does although no one admits it. And even so like Shanny says, we do have to stand up to our doctors. The last time I met with my doctor she tried to tell my American Sign Language interprete to leave and my Interpreter stuck up for me. If this doctor
tries that again I will ask for a new doctor. And also she told me that Robaxin which I take for muscle spasms will make my muscles weak.
When I came home I got on the internet and looked up side effects
of Robaxin and in no place does it say that. Where this doctor gets her ideas I will never know. But I do know that there is no way that doctors can stay updated on all things medically today so I don't expect them to but they can at least read up on what they are treating and be a bit more informed than they are.
At the same time, I think you should have your vitamin b levels checked because if they are low that could be contributing to your symptoms and your vitamin b levels might be a reason for the symptoms. Here is wishing you the best.
Just thought of another thing do your toes change color like become purple or have a dirty look to them? That could be Raynaud's but your regular doctor should be able to help with the symptoms.
Again there can be several reasons for the symptoms and your regular doctor should be able to help with that.
 

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My feet feel cold but when I hold them they are warm but feel that way. Turns out it is my circulation, not neuropathy, but circulation causing that.

Just a hint...touch them when they feel cold,
 
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