The Diabetes Forum Support Community For Diabetics Online banner
1 - 20 of 30 Posts

·
Registered
Joined
·
10 Posts
Discussion Starter · #1 ·
Hi all, I am new here. I guess I should start and tell you my story from the beginning. This is kind of long, sorry, it's just been a really long and tough 9 months.

Last September 09', I began to experience excruciating knee pain/arthritis for 3 months which was eventually found out to be lyme disease. I was put on an oral antibiotic for 1 month in Nov 09' by my doctor and told I would be alright. After about 2.5 weeks of the antibiotic my whole body and digestive system seemed to go out of whack, and has only gotten worse since then. I have been going in circles to try and find out what is wrong with me since then. I have been tested for various autoimmune diseases, been to a gastro, rheumatoligist, 2 infectious disease doctors, neuroligist the list goes on. They all say I am fine, and my blood is fine. I have been concerned though recently because my father's mother (my grandmother) was diagnosed with diabetes in her mid to late 60's, which was 2-3 years ago; but my mother and her side of the family has no history of it, and my father doesn't have diabetes either. My blood glucose levels all throughout from the initial diagnosis of Lymes in 2009 were normal. Fasting were as follows: 100 (almost an hour after eating), 121(~1 hour after eating carbohydrate heavy meal) 91 (fasting 12 hrs), 88 (fasting ~15 hrs or so). But my blood glucose level has not been checked since early January and my symptoms have only seemed to have gotten worse since then. I have also had 2 urinalysis's, 1 in early January '10(normal) and one in early Feb '10 (normal).

The symptoms I have been experiencing sound a lot like it could be diabetes. They are: no appetite what-so-ever, chronic constipation, no energy from any food I eat, no matter how much I eat, (pasta, meat, sweets, anything), no weight gain ; swallowing difficulty, lost 21 pounds since November, fruity taste on breath, sweet smelling urine.

I have bought a glucose meter and been testing my blood sugar, out of curiosity, and the numbers have been very weird. I will wake up in the morning with BG of high 60's, and sometimes low 70's. And then after eating it seems my BG doesn't spike until ~1 hour after eating, which has fluctuated 116- 127, and then sometimes shoot down to 101, 99, 96. And then after like 3-5 hours after eating it will sometimes even go all the way down to 70 or so. Now during these times I seem to urinate more, so I'm thinking the glucose may be being excreted into the urine. But like I said, urinalysis's, blood glucose on lab test's have been "normal".

I guess if I were to be diabetic I would be type 1. I was just sent today for another glucose test this morning, as well as a1c, thyroid, testosterone, cortisol and another urinalysis.

So what I am wondering is it possible that I am diabetic? I mean before this really bad bout of lyme disease I was VERY healthy, exercised 3-5 days a week, weighed 165 pounds, very lean and healthy, ate healthy as heck, no problems at all. I have read that infections can trigger type 1 diabetes and like I said my grandmother was dx'd recently, but other than her my genes are good concerning diabetes. What also worries me is that if I do turn out to be diabetic all these nervous system things I'm experiencing (constipation, stomach issues, erectile problems, tingling/fuzzy/cold) could have been diabetes all along even though my blood and urine has been alright?

I am very worried because if these symptoms are from diabetes, I know they cannot be reversed since I already have them, and that my quality of life will be pretty crappy. If anyone could help or share any information, or personal stories about their diabetes diagnosis and how long it took to be diagnosed it would be much appreciated and helpful.

Thanks for reading this long entry, and for any help/story/info that can be given.

-Sublime
 

·
Registered
Joined
·
11 Posts
Try this website.

What is a Normal Blood Sugar?

The researchers found that people whose one hour glucose tolerance test results were over 155 mg/dl and who had markers for metabolic syndrome--such as a concentration of fat around the belly and high blood pressure were those who were more accurately predicted to be likely to develop diabetes.

Fasting Versus Postload Plasma Glucose Concentration and the Risk for Future Type 2 Diabetes Muhammad A. Abdul-Ghani et al. Diabetes Care 32:281-286, 2009 DOI: 10.2337/dc08-1264[/COLOR]

I hope you don't have it, my guess is you don't. Try and relax. They will know for sure after the test results and if it makes you feel any better, I DO NOT have a crappy quality of life. You deal with it and go on. I've had T1 36 years and feel great. Had babies, run & exercise, travel and done just fine.
 

·
Registered
Joined
·
24,394 Posts
Hello, Sublime . . . welcome to our group. The link provided by Misha is to a very good site - full of excellent information & wisdom about diabetes - so I hope you'll explore that site fully.

As for a crappy quality of life for diabetics, it is just the opposite. Taking responsibility for my diabetes has enabled me to be healthier than I've ever been - feeling stronger and more vigorous than I've felt in years. It may seem like quite a claim to make, but I am a senior citizen, so it IS quite something to feel so young and strong.

I hope you find you are not diabetic, but if you DO get that diagnosis, I urge you to research all the options and take control of the disorder. We can help you if you wish - none of the regulars on this forum are leading a crappy life - as I said before - just the opposite.
 

·
Registered
Joined
·
96 Posts
Hi Sublime,

I agree with Shanny and Misha. You may not have diabetes.
My symptoms were opposite of yours. I was always hungry, gained weight, had a current BG of over 800, and a fasting BG of 350.
And diabetes does not have to mean a crappy life with complications.
Complications are for those people who refuse (or are unable) to eat properly and take care of themselves.
Just like people without diabetes; or any other chronic illness.

Sometimes the biggest hurdle with diabetes (or life in general) is all the nay sayers trying to get us down.

Another website you can investigate is Blood Sugar 101

--ET
 

·
Registered
Joined
·
2,771 Posts
Welcome to Diabetes Forum. Glad to hear that you are testing and that is a really good tool. Diabetes doesn't mean that you will have a crappy life. You have to work around some things and you may have to modify your diet and may need medications. There are so many medications options available. Some people just need a few pills per day along with some exercise. Many diabetes find that these are very reasonable changes. When I take care of my diabetes, I hardly notice that I have diabetes. I need insulin injections and some oral medication but these become part of your daily routine. Keep us posted on your progress!
 

·
Registered
Joined
·
2 Posts
Being tested for Diabetes very worried and concerned

Hello Sublime
I am sorry to hear of your Health problems and notice that you refer back to being treated for Lyme Disease.

Lyme Disease is a very complex emerging disease. I would suggest you read the Burrascano or ILADS Guidelines found at ILADS, International Lyme and Associated Disease Society. Sorry I cannot add a link but Google will find it. There you will find all the symptoms you are struggling with including the possibility of developing diabetes which I believe is not uncommon with chronic illness.

There is considerable controversy over diagnosis and treatment of Lyme Disease.

Most mainstream doctors follow IDSA guidelines which advocate a short course of antibiotics. If after this your symptoms remain they are treated as all in your head or something you will have to live with.

Alternate guidelines are those of ILADS which find for patients with ongoing symptoms longer courses of antibiotics are needed.

Lyme Disease Borrelia is a spyrochetal organism similar to syphillis but far more complex. In fact it is as complex as TB and Leprosy. Who ever heard of treating any of these on just a few weeks antibiotics.

There are a growing number of doctors World wide who are finding that patients respond well to longer courses of antibiotics.

Last year the IDSA were forced by Att Gen Blumenthall into reviewing their guidelines because the guideline authors were found to have significant conflicts of interest in Insurance, Vaccine production and research monies and had failed to consider all the available science and excluded members from the panel who had a divergent view.

The presentations to that review hearing can be found at ILADS - International Lyme And Associated Diseases Society

Steven Phillips presented 25 studies on seronegativity and persistent infection, there were many other presentations supporting ILADS and there were written presentations from many countries in Europe.

Steven Phillips pointed out that on 18 occassions the authors of the 2006 guidelines were actually involved in those studies on Seronegativity and persistent infection. At the end of the Hearing Steer was asked to comment his response was opinion. OPINION is what is driving these guidelines.

The decision of the IDSA was to exclude all the science presented to them because they were not Randomised Placebo Controlled Trials. What madness when the only 4 RPCT that had been done if anything actually indicated that patients did improve on longer treatments of antibiotics although they deteriorated when antibiotics stopped. The longest trial was 6 months it took much longer than that for me to regain my health.

I fear IDSA had their own agenda which was clear at the outset that they resented being pressed into this review.

So with all this controversy you to see a Lyme Literate Medical Doctor who is interested in considering iLADS guidelines. They can be found through many of the charities or ILADS themselves.

If you want to follow some more links there are many on my blog, Looking at Lyme Disease again you will find in google.

I come from the UK where we also have problems because our health Authroities follow IDSA Guidelines.

I was lucky to have a GP who treated me following ILADS guidelines and after a 7 year illness I am nearly 100% I have no pain and no disability I can cycle and garden although I had been retired early from the Civil Service on the grounds of Ill Health. At my worst I had difficulty standing and walking across a room and for 31/2 years I was unable to walk up or down stairs properly.

Do some research and good luck in finding something to help you.
 

·
Registered
Joined
·
3,024 Posts
Misha, thanks so much for that excellent link. I had not seen that , it is very good!
 

·
Registered
Joined
·
24,394 Posts
Thank you, Joanne, for such a comprehensive update on Lyme Disease. Coming into tick season over here, and every bit of good information helps!
 

·
Registered
Joined
·
10 Posts
Discussion Starter · #9 ·
Thanks to all who replied, all your stories and info have been very helpful in calming me down for, at least, until I get the lab test results from yesterday's blood work. I am hoping it isn't diabetes, but if it is, then I am going to have to push through it. I will keep you all up to date; as soon as I get the results back.

And Joanne I have read your post about Lymes and have researched the disease up and down thoroughly the past 7 or so months since I have been diagnosed. I do believe I was not correctly treated for Lymes, as, like I told you, when I was officially diagnosed my primary care doctor treated me with only 1 month of oral doxycycline, even though my knee was swollen to the size of a basketball, and I couldn't bear any weight on it, bend it, anything. My blood work was: WBC was 11,000, high protein count, excessively high neutrophil count, anemic and a Lyme titer through the roof. I believe I should of had at least 1 month, if not 2 on an intravenous course of antibiotics. If I had had that, I don't believe I would be running in circles with no answers right now.

I have read that Lymes can cause some of the stuff I am experiencing, but it is uncommon. So I am just so confused. Joanne, you have had Lymes? Would you be able to tell me any info about what your symptoms were? And how you were treated and what not?
 

·
Registered
Joined
·
2 Posts
Being tested for diabetes, very worried and concerned

Shanny

Thank you. I am sorry to gate crash this Diabetes forum but there were so many Red Flags for chronic Lyme disease in Sublime's post.

Sublime

It is so difficult to know where to start, there are so many charities with information on Lyme disease but the Burrascano Guidelines are the most detailed information you should read first. In there there is a symptom list.

Stomach problems looseing weight and weight gain both extremes are not uncommon with Lyme Disease. It was not one of my symptoms but I am in touch with many others through a chatline Eurolyme, where a number have your stomach problems.

However two points, one some antibiotics are known to upset the digestive system and whenever anyone takes antibiotics for whatever reason a good probiotic, or yoghurt are recommended at least an hour away from the antibiotic.

The second point is that with Lyme a short time after starting antibiotics there can usualy be an adverse reaction, accacerbation of symptoms, it is known as a Jaresh Herxhimer Reaction and is explained in Burrascano Guidelines. Often patients and their doctors think it is an allergic reaction to the antibiotic but that is rarely the case.

I mention Eurolyme which a google will find easily it is a chat line mainly people from the UK a few from Europe and a few from USA, infact the USA people are very knowledgeable about Lyme generally and contribute good information to the group.

I also look at UK charity Lyme disease action add wwwdot to the beginning and then a dot org dot uk at the end or google. Sorry I am not allowed to add a link as I am new to the forum.

Eurolyme and Lyme Disease Action are both highly regarded by the leading doctors specialising in Lyme Disease World wide and there are doctors who do pop by Eurolyme now and then.

I would recommend you join but use a seperate e mail because there are many daily posts. i think it is probably better than some of the US chatlines for Lyme, easier to follow and so much information in the files.

If you were treated after 3 months for Lyme that is then past the initial period of infection and would definitely need more than a few weeks antibiotics if you have symptoms. Burrascano recommends to treat until all symptoms resolve and then 2 more months.

IV antibiotics are generally only used in extreme cases and are very difficult to get Insurance to cover for in USA. In UK it is nearly impossible to get IV for chronic lyme and privately it is too expensive for most.

Interesting you mention Knee arthritis -I had arthritis in virtually every joint over a period of several years still progressed whilst on antibiotics to new areas but responded to a different antibiotic.

You also mentioned weakness, I am not sure if you mean fatigue or weakness of muscles. Both associated with Lyme and both were my symptoms. I think the fatigue was more to do with the fact that the body was trying to fight off the infection and as I improved the fatigue eventually went. It was not Chronic Fatigue as in ME/CFS although there again there are many who suffer with that and Lyme.

The other weakness that of Muscle weakness was horrific I had difficulty holding a magazine with two hands and I had difficulty stepping up curbs even.

Is see you mention seeing a Neurologist and although many have symptoms similar to MS in my case they were peripheral Neuropathies affecting my extremities mainly. Twitching and tingling however the worst symptom was swallowing problems very scary!

If someone has so many different systems affected that would be a red flag for Lyme Disease but if that person had previously been healthy before a diagnosis of lyme Disease I think that is a high probability that it is the Lyme causing your symptoms.

If you type http : // and then lookingatlyme.and then
blogspot. com /

Hopefully that will get over me not being able to give you a link. If not as I say google and it should come up at the top Looking at Lyme Disease.

You will find so many interesting links including USA and Canadian on the right hand side and lower down my lyme Story so like so many other peoples struggles in fact many thousands in the USA and again in Europe.

Remember that wherever the infection goes then that will result in a specific symptom ie heart, nervous system, brain, joints, muscles etc.

I am so sorry to be so long winded if anyone wants to learn more then I would suggest you follow some of the links, in USA, figures are higher than HIV plus West nile virus. It is according to CDC of epidemic proportions. Estimated about 200,000 cases a year.

My final link is to wwwdot under our skin dot com view the trailer and also see the many other exerts found through the links at the top.

The more people who are really aware of not just Lyme Disease but also the politics that are denying thousands of people World wide treatment leaving them to struggle with Chronic ill health when there are alternatives available, then the better we can protect our selves and seek adequate treatment to regain our health.

Good luck Sublime, if you want to e mail me direct look in my complete profile on my blog for an address.
 

·
Registered
Joined
·
10 Posts
Discussion Starter · #11 ·
Hey everyone, I know I'm posting 1 week + since originally posting, but I only just got my lab blood work results from the doctor just now.

He ordered a CBC, complete metabolic panel, Hemoglobin A1C, TSH (thyroid), testosterone, cortisol, Epstein Barr Virus, and a urinalysis. I don't know if anyone knows too much about the testosterone and cortisol levels but if anyone one does any input is greatly appreciated.

The results are as follows ( I *asterisk abnormal results in here):
CBC w/ Complete Metabolic Panel
::Fasting::
Glucose: 83
Creatinine: 1.15 (Normal Range: 0.80-1.30)(it is within range but towards the higher end, whereas on previous urinalysis's it was usually .98)
**Calcium: 10.5 (normal 8.6-10.2) High
**Albumin: 5.3 (normal 3.6-5.1) High
**Monocytes: 179 (normal 200-950) Low

Urinalysis:
Glucose: Negative
Bilirubin: Negative
**Ketones: Trace
Specific Gravity: 1.010 (range 1.001-1.035)
Blood: Negative
PH: 6.5 (range 5.0-8.0)
Protein: negative
Nitrite: Negative
Leukocyte Esterase: negative

Hemoglobin A1C:
Hemoglobin A1C: 5.6
(as you all know I'm sure, Normal Range >5.7 Non-diabetic, 5.7-6.4 (Increased risk of diabetes) > or = 6.5% Consistent with Diabetes)

Cortisol:
**Cortisol, Total, Serum: 24.5 (normal range Cortisol AM: 4.0-22.0) High

Testosterone:
Testosterone, Total: 108 (Normal Range: 241-827) Low

Epstein Barr Virus:
Negative

So there are my results. I am worried about the fact that there were ketones in my urine, as well as the other abnormalities as well; naturally.

I am making an appointment with an endocrinologist asap, but if anyone could shed any insight or light on these results here I would be very grateful.

Once again thanks for your time reading this long post and helping; it really helps calm my concerns about all that has been going on with me the past few months, and is very, very appreciated.

-Sublime
 

·
Registered
Joined
·
3,024 Posts
Hello and welcome to our webste. Your report looks very good, you should be pleased with it. A trace of ketones will not hurt you as long as it does not remain that way for a long time. Your blood sugar and A1c are fantastic! I have been a diabetic for 64 years and I have no complications, but I always have some items a little bit out of line. They will frequently be improved with the next lab report. If you are having occasional high blood sugar and you happened to have a high recently, before the day your blood was tested, that could account for the trace of ketones. It was probably very temporary.

Richard
 

·
Registered
Joined
·
2,771 Posts
Hey everyone, I know I'm posting 1 week + since originally posting, but I only just got my lab blood work results from the doctor just now.

He ordered a CBC, complete metabolic panel, Hemoglobin A1C, TSH (thyroid), testosterone, cortisol, Epstein Barr Virus, and a urinalysis. I don't know if anyone knows too much about the testosterone and cortisol levels but if anyone one does any input is greatly appreciated.

The results are as follows ( I *asterisk abnormal results in here):
CBC w/ Complete Metabolic Panel
::Fasting::
Glucose: 83
Creatinine: 1.15 (Normal Range: 0.80-1.30)(it is within range but towards the higher end, whereas on previous urinalysis's it was usually .98)
**Calcium: 10.5 (normal 8.6-10.2) High
**Albumin: 5.3 (normal 3.6-5.1) High
**Monocytes: 179 (normal 200-950) Low

Urinalysis:
Glucose: Negative
Bilirubin: Negative
**Ketones: Trace
Specific Gravity: 1.010 (range 1.001-1.035)
Blood: Negative
PH: 6.5 (range 5.0-8.0)
Protein: negative
Nitrite: Negative
Leukocyte Esterase: negative

Hemoglobin A1C:
Hemoglobin A1C: 5.6
(as you all know I'm sure, Normal Range >5.7 Non-diabetic, 5.7-6.4 (Increased risk of diabetes) > or = 6.5% Consistent with Diabetes)

Cortisol:
**Cortisol, Total, Serum: 24.5 (normal range Cortisol AM: 4.0-22.0) High

Testosterone:
Testosterone, Total: 108 (Normal Range: 241-827) Low

Epstein Barr Virus:
Negative

So there are my results. I am worried about the fact that there were ketones in my urine, as well as the other abnormalities as well; naturally.

I am making an appointment with an endocrinologist asap, but if anyone could shed any insight or light on these results here I would be very grateful.

Once again thanks for your time reading this long post and helping; it really helps calm my concerns about all that has been going on with me the past few months, and is very, very appreciated.

-Sublime
Your glucose and A1C looks good. There are a few tests that are a little out of range, but your doctor will look at other tests and the out of line ranges might not be a big problem. Be sure to ask your doctor about the out of range tests. Some doctor's won't even discuss a slightly out of range test unless it is something very serious. That is great that you got a copy of your test results. I always ask and now my doctor always brings in a copy of my test results when I have an appointment.
 

·
Registered
Joined
·
10 Posts
Discussion Starter · #15 ·
Hey everyone, just an update-- I went to an endocrinologist yesterday and at first said that she did not believe it was diabetes, but wanted to check again and do some other blood work. She sent me for a bunch of stuff, like 10 or 11 things all together. Most of the stuff has to do with hormones and testosterone and a few thyroid things, I also got a 24 hour urine Cortisol test I have to do.

Back to the diabetes test she is sending me for; they are the H1AC test again, C-Peptide test, and something like a Deoxy-gluscose-acid or something like that?

I sure hope that these results come back OK, but with the way I have been feeling lately and the more research I do the more I think it is Diabetes, Type 1 specifically.

And just a little note: I went out and bought one of the AccuCheck Aviva BG monitors to test my blood sugar at meals and throughout the day to see what it looks like.

Here is what happened:
I only at some glazed pecans for breakfast yesterday, chicken caesar salad for lunch, and a yogurt parfait for dinner yesterday as I did not feel very hungry at all- pretty crappy really- very, very tired, foggy, unwell,absolutely no energy or strength. I tested my sugar 3 hours after eating the yogurt parfait and it was 91 (10 PM). ::Since I had to fast for the blood work I figured I would check my blood work continuously::. I then woke up in the middle of the night feeling very queasy and uneasy and checked my blood sugar and it was 64 (2 AM, this morning). I then went back to bed and checked my BG when waking up at 7:10 AM this morning, it was 70.

After getting back from my blood work I checked it before starting eating and it was very low at 58. The weird thing is though, that I did not really feel that bad, definitely not as bad as I did in the middle of the night when my BG was 64.

Then I decided to eat a high carbohydrate meal and check my BG at time intervals of :30, 1 hour, 2 hour and right before posting this message at 12:00 PM so I could see how my body is handling the glucose. Here is what my meal consisted of 2 eggs, 2 slices rye bread w/butter, about 1 1/2 cups of home fries, 2 sausage logs, and about 2 tbsp. of ketchup on the side, and a cup of tea w/ 1tsp. sugar.

The Blood Glucose readings are as follows:
:30- 89
1 hour: 118
2 hour: 115
2 hour 40 minutes: 111

Don't these numbers seem a little weird and out of whack to you? I mean for it to jump so high from :30 to 1 hour seems very odd to me. And add these to all of my other symptoms I outlined in my first original post, and the following one, it just seems to me to be diabetes. Does anyone else think I am on to something here? Or am I looking to much into it?

Thanks,
Sublime
 

·
Registered
Joined
·
1,590 Posts
I sure hope that these results come back OK, but with the way I have been feeling lately and the more research I do the more I think it is Diabetes, Type 1 specifically.


Then I decided to eat a high carbohydrate meal and check my BG at time intervals of :30, 1 hour, 2 hour and right before posting this message at 12:00 PM so I could see how my body is handling the glucose. Here is what my meal consisted of 2 eggs, 2 slices rye bread w/butter, about 1 1/2 cups of home fries, 2 sausage logs, and about 2 tbsp. of ketchup on the side, and a cup of tea w/ 1tsp. sugar.

The Blood Glucose readings are as follows:
:30- 89
1 hour: 118
2 hour: 115
2 hour 40 minutes: 111

Don't these numbers seem a little weird and out of whack to you? I mean for it to jump so high from :30 to 1 hour seems very odd to me. And add these to all of my other symptoms I outlined in my first original post, and the following one, it just seems to me to be diabetes. Does anyone else think I am on to something here? Or am I looking to much into it?

Thanks,
Sublime
Actually these numbers look pretty good to me. You ate a *lot* of carbs and your blood sugar looks good considering what you ate. I am curious as to what makes you think you have type 1 diabetes? Honestly, your blood sugar would be through the roof if you did.
 

·
Registered
Joined
·
10 Posts
Discussion Starter · #17 ·
Actually these numbers look pretty good to me. You ate a *lot* of carbs and your blood sugar looks good considering what you ate. I am curious as to what makes you think you have type 1 diabetes? Honestly, your blood sugar would be through the roof if you did.
Hey, onaughmae. Thanks for taking the time to read my post and respond. The reason I believe I *may* have type 1 diabetes is because for the past 6-7 months ever since being diagnosed, and supposedly "treated" I still feel terrible. Loss of appetite, lost 26 pounds in about 3 or so months, chronically tired, can't sleep, no appetite, and even when I do eat, and eat a lot to just try and put some weight on, I can't put any weight on. Also, I read that certain infections can trigger type 1 diabetes, and I thought lyme disease, type 1, could it be?

All my bloodwork I get back constantly comes back all over the place. I have just been concerned about what's going on with me, as before last September of '09, and lyme disease, I was healthy as a horse. Exercised 3 + days a week weights and cardio, eat very, very clean; no sugary things or desserts, just a very healthy and balanced diet. But yet I feel worse now actually, then I did when I was dx'd with lymes.
 

·
Registered
Joined
·
10 Posts
Discussion Starter · #18 ·
Hey, onaughmae. Thanks for taking the time to read my post and respond. The reason I believe I *may* have type 1 diabetes is because for the past 6-7 months ever since being diagnosed, and supposedly "treated" I still feel terrible. Loss of appetite, lost 26 pounds in about 3 or so months, chronically tired, can't sleep, no appetite, and even when I do eat, and eat a lot to just try and put some weight on, I can't put any weight on. Also, I read that certain infections can trigger type 1 diabetes, and I thought lyme disease, type 1, could it be?

All my bloodwork I get back constantly comes back all over the place. I have just been concerned about what's going on with me, as before last September of '09, and lyme disease, I was healthy as a horse. Exercised 3 + days a week weights and cardio, eat very, very clean; no sugary things or desserts, just a very healthy and balanced diet. But yet I feel worse now actually, then I did when I was dx'd with lymes.
Forgot to add that I have read the one site, and many other sites that talk about "normal" blood sugar levels and what they should be in a "normal" person (i.e. blood sugar 101) and according to those numbers I am nowhere near them.
 

·
Registered
Joined
·
710 Posts
If T1 diabetes were your problem, you would have very high blood sugar and would not be able to control it without insulin. Your readings seem to be fine. A few lows may indicate some pancreatic challenge, but lack of insulin production doesn't seem to be the problem. Perhaps your thyroid is the culprit. Hope the Endo can clear up the mystery!
Jen
 

·
Registered
Joined
·
24,394 Posts
Welcome back, sublime . . . you need a good medical workup, that's for sure. I hope the endo finds some clues to put this puzzle together. I don't know what the deoxyglucose test is for, but the C-peptide will show how much pancreas function you have - how much insulin is being produced. Not sure what another A1c is going to prove either, since it really isn't the best diagnostic tool in the world - it's better at showing control.

In my opinion, your postprandial blood levels would be a lot higher if you were diabetic - especially if you were type 1 producing no insulin whatever. Non-diabetic people will stay under 120 regardless of what they eat, and with your test breakfast, you stayed under.

I wonder what are the symptoms of hypoglycemia? I think the treatment is a lot the same as for diabetes, but since you're having more trouble with lows than you are highs - maybe it's something to think about.
 
1 - 20 of 30 Posts
Top