Everyday feels like a battle to me. I am over the blood tests, the complications, being in hospital and being judged as an uncontrolled diabetic by those who do not know my complete history. I am not talking about anyone in here, I am talking about when you see a new Doctor, or nurse or specialist. All diabetics are unique and each will have to be medicated to suit their own individual lifestyle and needs.
Does everyday feel like a battle to you?
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37 Posts
Hi Starsee Glad to have another QLDer on board
Yes we are all unique but explain why people judge you to be uncontrolable??? What complications do you have??? How old were you when you were diagnosed. I do have days when I am some what over the blood tests carb counting etc but I know if I'm going to live to be a pain to my kid's I have to do it as I want to have all my limbs, eyesight, kidneys intact when I die. Had my yearly scan of artries and hubby's upset............Dr said I'll live till I'm around 90+
So yes we can have a long fruitful life and I think us Type 1's have a greater ease of control than those who are Type 2 as we know our pancreas is completely shotHi Starsee Glad to have another QLDer on board
Had my yearly scan of artries and hubby's upset............Dr said I'll live till I'm around 90+
I have been type I for 36 years, I am on a pump. The complications I have are, retinopathy (had it for 12 years and now classed as legally blind) have been on a pancreas and kidney transplant list for 12 years. Have kidney disease, gastro pres???? (can't spell it), reflux disease, underactive thyroid, heart disease, neuropathy (can't spell it either), the tendons in my hands are contracting (yes from diabetes), and the biggest and latest blow is that my blood cells on the surface start to shut down if my blood sugar goes 15 or above. Which is what happens when you haved DKA. Muy body does what it wants when it wants. I was going hypo the other day my BSl was 2.6 had a honey sandwich, glass of creaming soda, and 12 raspberry lollies. 30 minutes later my blood sugar was 2.5. Yes my pump was working fine, I was laying on the bed when this all happened, so exercise was not a factor. I was in hospital recently for DKA they thought they had it under controll. Insulin infusion, saline infusion, had to have two pic lines put in. 4 hours later while having bloodtests every hour and a nurse by my bed constantly my blood sugar shot up to 27. No reason to explain it. Another time I was sedated before I had to have open heart sugary. Once again on insulin infusion being monitored every hour, I am out to it and my blood sugar went to 19. Nothing to do with me, I was practically unconcious. My Doctor was surprised though that the nurse seemed to think it was my fault. Have a lot of these stories. If I am in air conditioning and walk outside into the heat 5 mimutes later i will be hypo. Sorry to go on and on. I am just so frustrated with my body. I do all the right things, but it has a mind of it's own. Thank you for your time and understanding.
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633 Posts
Have your Doctors ever perfomed any addrenal function tests on you. Just wondering as your addrenal glands play a huge roll in maintaining proper glucose levels. If they don't work right, and they too are sucseptable to autoimune diseases, it is nearly impossible to maintain consistant glucose levels. Good luck and hang in there nobody asked for ithis it just comes and stays without asking just like a bad mother inlaw.
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6,163 Posts
Starsee - all I can say is: wow. I will never complain about anything ever again never. Your story is humbling. You've been through so much while my biggest problem is wishing I could eat fruit.
Wish I had something to offer besides all good thoughts and energy, but I do give you those.
Glad you're here.
Wish I had something to offer besides all good thoughts and energy, but I do give you those.
Glad you're here.
G
Guest
·ah not fair for you Starsee :hug: You certainly have been through the wars with all that going on. I was going to say that your BGLs are probably skyrocketing on their own from the stress your body is going through. I'm type 2 on insulin and I think it's given me better control than oral meds... not that I have a choice anymore though as my pancreas isn't producing enough insulin anyhow. But one thing I find is the unpredictability that can happen too... I've been having night hypos a lot. I've noticed that temperature changes your insulin sensitivity too... as you mentioned about going from air con to outdoors. That is I think the reason I'm having problems myself at the moment. One thing about hospitals though is that you tend to have to tell your story to way too many docs and nurses... I often wonder what it is they are writing down. You'd think they would look up your medical record for themselves and then look into what needs to be done from there.... but it appears they don't even bother.
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Hello, Starsee ...
All I can say is, Welcome! Very glad you found us. :grouphug:
It seems to me that something must be going on in addition to your diabetes. I know nothing of adrenal issues, but Adjitater's suggestion is well worth checking out.
Like Mep, I've noticed that temperature changes can be a factor, and I'd also check into that. But with your spikes in the hospital, there's definitely something else going on as well.
We care. Please visit often, and keep us posted!
All I can say is, Welcome! Very glad you found us. :grouphug:
It seems to me that something must be going on in addition to your diabetes. I know nothing of adrenal issues, but Adjitater's suggestion is well worth checking out.
Like Mep, I've noticed that temperature changes can be a factor, and I'd also check into that. But with your spikes in the hospital, there's definitely something else going on as well.
We care. Please visit often, and keep us posted!
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37 Posts
Definitely a brittle diabetic
I will apologise to the forum for sometimes being jaded and yes I am a Diabetic Educator, who decided on a career change 4 years ago My heart goes out to you. I am lucky that I have no complications had some laser back in 86 on my right eye but nothing since and no tell tale signs of repth or cataracts
Gastroparesis is a battlefield for bgl control. If you can PM me I'll send you some info on a few conditions which could also be a underlying cause of your erratic bsl's. Disappointed that the nurse thought it was your fault
Hoping you find a great understanding management team as this is half the battle. We are all here to support you and we need to set up a rant forum thread to blow off steam about the frustating issues we have with diabetes
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716 Posts
Who eats half a Bun.
Yes everyday is a battle. Here is a good example as to why. Wife bought these little buns Multi-grain that said 20 grams of carbs and she thought that was pretty good. I go to have one for lunch and thought 20 is not to bad. Then I look at the portion and it's per half bun WTF all this to market the bun - who eats half a bun and these ones are really small. Society is so corrupt and it's all about the $. I think it's time for another 40 days of rain.
Yes everyday is a battle. Here is a good example as to why. Wife bought these little buns Multi-grain that said 20 grams of carbs and she thought that was pretty good. I go to have one for lunch and thought 20 is not to bad. Then I look at the portion and it's per half bun WTF all this to market the bun - who eats half a bun and these ones are really small. Society is so corrupt and it's all about the $. I think it's time for another 40 days of rain.
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93 Posts
Starsee, I am so sorry you have had to go through so much not just with your body but with your medical team.
Good bedside manner is a lost art when it comes to some doctors but little do they know just a little with some compassion goes a long way.
I'm early in my journey with diabetes and have not had too many issues but my heart goes out to you. This community is great, many listening ears, wonderful advice and no judgment.
I thank whatever gods may be For my unconquerable soul.
Good bedside manner is a lost art when it comes to some doctors but little do they know just a little with some compassion goes a long way.
I'm early in my journey with diabetes and have not had too many issues but my heart goes out to you. This community is great, many listening ears, wonderful advice and no judgment.
I thank whatever gods may be For my unconquerable soul.
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