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Discussion Starter · #1 ·
The Endo today says I don't have Type 2 like I've been told and treated for. She says it's Type 1, rare in my age group but not unheard of. Guess that explains the roller coaster I've been on for the past year with the previous insulin therapy.
 

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I don't know how old you are, but I was diagnosed T1 just about two months shy of my 53rd birthday. I actually bypassed the T2 age-based misdiagnosis - it's the one thing my then-Endo was good about. There are lots of us out here!

What insulins have you been prescribed? I highly recommend that you pick up Think Like a Pancreas by Gary Scheiner and/or Using Insulin by John Walsh. They'll take a lot of the mystery and possible anxiety out of the whole process.

Jen
 

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After what you've been through the past ten years, nothing would surprise me. Did they finally test you for GAD antibodies? Have they done a c-peptide? What concrete facts is the doc basing her diagnosis on? Enquiring minds want to know . . . :D :D :D And I truly hope you'll be given proper treatment now . . . I think you were originally diagnosed in DKA, right?
 

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Hi, Aimster -- I am also in KC -- who do you see for your D? I go to St. Lukes endo on the Plaza.

LADA is NOT RARE -- About 20% of Australians dx'd as Type 2 turn out to have it, and I imagine Americans are about the same ... If you cannot tell by my knowing this, I have it, too.

What do you eat? What meds / insulin do you take?
 

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Discussion Starter · #5 ·
Hi Fox! Glad to see someone close by me. I live between Rockhurst University and UMKC.
I started out at the KC Free Health Clinic ( I get all my medications and supplies free through them, I almost sheet at the cost when I had to buy my first vial of Lantus) and they finally referred me to the Endo at Truman Hospital.
I'm taking Lantus and Apidra (just started the Apidra, she took me off of the other fast acting and replaced it with that) and Metformin for Diabetes.

Shanny...I don't have the answers to those questions. :eek:
It's like they throw stuff at me so fast I can't think of anything to ask them when they ask if I have any questions. That's why I love this place you all are sooo educational and now I know what to ask next time.

And Jen I'm 47.


Hi, Aimster -- I am also in KC -- who do you see for your D? I go to St. Lukes endo on the Plaza.

LADA is NOT RARE -- About 20% of Australians dx'd as Type 2 turn out to have it, and I imagine Americans are about the same ... If you cannot tell by my knowing this, I have it, too.

What do you eat? What meds / insulin do you take?
 

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Wow -- I used to live right there!

I work next door to TMC -- so you probably see Dr. W? I have heard great things about her! I considered going to her; the fact she re-dx'd you is GREAT!
 

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Discussion Starter · #7 ·
Yes that's my Doc! Small world isn't it.
Maybe we can hook for coffee or something one day.
I go back to her in 2 weeks and from a personal stand point I really like her.

I was also diagnosed with Gastroparesis recently but they didn't run any tests. The other Dr. just assumed from my symptoms that's what it was and prescribed. (blind faith on my part??)
So the first thing Dr. W did was take me off of the Reglan until they actually perform Gastro testing, which will be next Monday. She said it could have some real nasty side effects and until she's sure she doesn't want me to take it.


Wow -- I used to live right there!

I work next door to TMC -- so you probably see Dr. W? I have heard great things about her! I considered going to her; the fact she re-dx'd you is GREAT!
 

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Yes, Reglan can be nasty -- a person I know got CRYING JAGS from being on it! Ick.

Two coworkers recommended Dr. W to me when I first tested myself (and freaked out -- 447!), I considered seeing her but wanted my internist to coordinate w/ my Endo ... so stayed at St. Luke's. It would have saved me a lot of grief to go to her, I suspect!
 

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Discussion Starter · #9 ·
It's the permanent twitch I hear about that worries me.....:eek:


Yes, Reglan can be nasty -- a person I know got CRYING JAGS from being on it! Ick.

Two coworkers recommended Dr. W to me when I first tested myself (and freaked out -- 447!), I considered seeing her but wanted my internist to coordinate w/ my Endo ... so stayed at St. Luke's. It would have saved me a lot of grief to go to her, I suspect!
 
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glad you got an answer Amy :D I'm also on Apidra and Lantus. My functional dyspepsia diagnosis was last week... I didn't have gastroparesis testing either. There is only 1 hospital here that does it and there's a long waiting list.
 

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Discussion Starter · #12 ·
I have an appt. Monday for the Gastric emptying test. Less than a week from when my Doc ordered it. Not looking forward to that but am looking forward to a concrete answer for something with testing to back it up.

The medical profession has shaken my confidence of late. I don't like that feeling.

glad you got an answer Amy :D I'm also on Apidra and Lantus. My functional dyspepsia diagnosis was last week... I didn't have gastroparesis testing either. There is only 1 hospital here that does it and there's a long waiting list.
 
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I have an appt. Monday for the Gastric emptying test. Less than a week from when my Doc ordered it. Not looking forward to that but am looking forward to a concrete answer for something with testing to back it up.

The medical profession has shaken my confidence of late. I don't like that feeling.
was going to ask... it's that test where you have to drink that thick shake stuff and they xray you over several hours right? that's the one here that one hospital does. Waiting list I heard is now 12 months. I asked my specialist if I needed further testing for that... and he reckons he doesn't need to do that as already knows what functional dyspepsia does (it's pretty similar to gastroparesis from the sounds of it... but just your stomach being unpredictable).
 

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Typically a "milkshake" with technitium in it, then you sit still for a gamma camera for 45 min or more. Not bad, I did it for a research study, once!
 
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