[Preemiemommy08]

Hello, I am new. My son is 2. He was a preemie born at 33 weeks. The last 3 months have been quite horrible for us. He had an episode of being low at 47. He was extremely lethargic and shaking so I checked him (my mother is type 1, grew up wathing her and knew the signs). After eating he shot up to 288 (1.5 hours after eating) so we rushed to the ER. They checked his BS and it was 183 after three hours of eating. They also found acetone in his urine but sent us home and dismissed us as if we were stupid. Luckily our pediatrician knew better and referred us to an endocrinologist. His A1c at the time came back at 5.9%. Good for his age. Since he has had more and more high episodes. Recently his fasting was 244. The next day his fasting was 191, then 146 the next day and then 121 was a really good one. Previously his fasting would be 70-110.
Anyway, his endocrinologist thinks he is in the early stages of diabetes. They are ordering an antibodies test and his 3rd A1c.

Any thoughts or experiences to share with me? Is there another cause for high BS other than diabetes?

 

[Shanny]

Welcome, preemiemommy . . . I think you're right on top of things and with your mother's history, it wouldn't be surprising that this could happen.

Shame on the ER staff and thank heaven for your pediatrician! The antibodies test should tell them what they need to know, and you'll be able to adjust for his needs.

I have a young niece who was diagnosed before her first birthday. The whole family learned how to take care of her - test her blood, count her carbs, provide her meals/snacks on time, give her injections & watch for lows, so wherever she happened to be, some one of us knew the drill. She is 11 years old now, and has been pumping insulin for several years.

Stay in touch with us . . . we'll help you all we can through this. It's a little scary, but it can be controlled and you can handle it.

take care & hurry back,

 

[Richard157]

I agree with the endocrinologist. You will find very little help on this site with your situation. I do not think any other members here are parents of young diabetic children. I am going to refer you to a site that was especially created for people like you. Here is the link:

children with DIABETES Online Community

Good luck to you and your child.

Richard

 

[Preemiemommy08]

Thank you so much Richard!

 

[deafmack]

Thank you so much Richard!

As Richard says, children with DIABETES Online Community is a very good site. It is good your doctor's child was on top of this.
Unfortunately, most doctors don't know about diabetes and what they do know is very little.
I will look for you over on CWD. I am sure Richard will also.

 

[jeremiahtren]

not that i know of.i have a 7 yr old daughter that was diagnosed on monday.She was also a premmie.32 weeks.Iam also a 25 yr old type 1.I have 2 younger kids ages 2 and 3 and both are in the pre diabetic stage.