I wonder if anyone is able to help me?
My daughter Cayla (now 14 yrs old) was diagnosed with type 1 diabetes three years ago. She has been on Nova Rapid and Levimir ever since. For the last two and a half years we have been carbohydrate counting and adjusting her Nova Rapid accordingly.
For the first two years things went pretty smoothly, however for the last six months or so, everything we were taught regarding control has gone out the window.
Firstly, Cayla’s Levimir usage dropped quite suddenly from 38 to 12 and then climbed back up to 28. About a month later we found that whilst her usage of Nova Rapid remained the same in the mornings , she needed less and less during the day and at night. We are now at a stage that Cayla needs almost no Nova Rapid after her morning shot. This is despite a very healthy appetite .
Our problem is that, if Cayla’s glucose level is around 6 at evening meal, we need to ensure that she takes in at least 80g to 120g carbohydrates in order not to drop to hypo. Sometimes even that is not enough and she will need further carbs during the night. At other times (like last night Eg.) Cayla was very high at dinner 20, we gave her two clicks of insulin to reduce and two hours later we were once again having to load the carbs as she was again dropping to hypo levels.
As our Diabetic team are unable to give us any explanations or answers, we are getting desperate as Cayla’s overall readings are unacceptably high, yet she has suffered two severe hypo’s and we have little or no control after breakfast. We are now doing readings through the night as there is no predictability to her levels.
Hopefully there is someone out there who as experienced something similar or as some knowledge about our very worrying situation.
My daughter Cayla (now 14 yrs old) was diagnosed with type 1 diabetes three years ago. She has been on Nova Rapid and Levimir ever since. For the last two and a half years we have been carbohydrate counting and adjusting her Nova Rapid accordingly.
For the first two years things went pretty smoothly, however for the last six months or so, everything we were taught regarding control has gone out the window.
Firstly, Cayla’s Levimir usage dropped quite suddenly from 38 to 12 and then climbed back up to 28. About a month later we found that whilst her usage of Nova Rapid remained the same in the mornings , she needed less and less during the day and at night. We are now at a stage that Cayla needs almost no Nova Rapid after her morning shot. This is despite a very healthy appetite .
Our problem is that, if Cayla’s glucose level is around 6 at evening meal, we need to ensure that she takes in at least 80g to 120g carbohydrates in order not to drop to hypo. Sometimes even that is not enough and she will need further carbs during the night. At other times (like last night Eg.) Cayla was very high at dinner 20, we gave her two clicks of insulin to reduce and two hours later we were once again having to load the carbs as she was again dropping to hypo levels.
As our Diabetic team are unable to give us any explanations or answers, we are getting desperate as Cayla’s overall readings are unacceptably high, yet she has suffered two severe hypo’s and we have little or no control after breakfast. We are now doing readings through the night as there is no predictability to her levels.
Hopefully there is someone out there who as experienced something similar or as some knowledge about our very worrying situation.
