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Numbness in my feet has gotten worse lately; not just at night. Toes in both feet are pretty numb now. Going to endo shortly. Blood sugar is ok but I'm afraid damage is done. Internet searches don't reveal much - a lot of cremes for sale and you just have to live with it. Any words of positivity here or short or long term remedies or treatments?
 

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Please try to get to a vascular specialist. He may also send you to a neurologist who specializes in neuropathy. Some hospitals have specialized neuropathy clinics. They will do testing on the nerves in the legs.

I am sorry you are having to deal with this.
 

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Even Tight Sugars Didn't Help

First of all, I'm terribly sorry to hear of your struggle with neuropathy. As a person who's had the same problem for at least ten years now, I can atest to this: tight sugar control is great for the A1c test results, but, in my case it hasn't put a dent in the pain I have from neuropathy. I don't want to dash any hopes you have of controlling this painful condition, but everyone I know, including your's truly, just couldn't find success. And I have a Neurologist and Endocrinologist, to boot! :blabla::blabla:

I currently take 1 Gabapetten daily (used to take 8), one 30mg Morphine Sulphate (used to be 2 a day), and for "break through pain. I can take up to three 15mg Morphine Immediate Release tablets a day. For those times when my feet are not responding to the meds, I pull out my tube of Zolstrik cream, and that helps. :eek:

Other than this, I can't say keeping my sugars tight has helped.

Good luck, and remember, the pain will eventually become manageable. That is why I'm no longer on higher doses of Morphine and Gabapetten.

Pastor Paul
 

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I'm curious why you decided to cut back on the gabapentin vs try a higher dosage (not to be mistaken for a pill-pusher or anything) ...
I take 1800 mg a day for pain and sleep and for me it's a wonderful med.

I was on a neurontin mailing list years ago before it went generic here and some people took up to 4600 mg for pain and there were remarkable success stories with it. Since it's not narcotic, there are not those issues. My rheumatologist said it's best to keep a steady blood level for efficacy.

Would pregabalin be worth a try? In some studies it was shown to be more effective than gabapentin, but as with all things I'm sure it depends on the person and application.
 

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First of all, I'm terribly sorry to hear of your struggle with neuropathy. As a person who's had the same problem for at least ten years now, I can atest to this: tight sugar control is great for the A1c test results, but, in my case it hasn't put a dent in the pain I have from neuropathy. I don't want to dash any hopes you have of controlling this painful condition, but everyone I know, including your's truly, just couldn't find success. And I have a Neurologist and Endocrinologist, to boot! :blabla::blabla:

I currently take 1 Gabapetten daily (used to take 8), one 30mg Morphine Sulphate (used to be 2 a day), and for "break through pain. I can take up to three 15mg Morphine Immediate Release tablets a day. For those times when my feet are not responding to the meds, I pull out my tube of Zolstrik cream, and that helps. :eek:

Other than this, I can't say keeping my sugars tight has helped.

Good luck, and remember, the pain will eventually become manageable. That is why I'm no longer on higher doses of Morphine and Gabapetten.

Pastor Paul
One thing I just noticed is that you say tight BG control hasn't helped with the neuropathy pain. Have you looked at other reasons for the neuropathy pain besides your diabetes? There are other causes such as Vitamin B levels being too high or too low. And another thing can be food allergies. And of course there are other reasons as well. I think it is well worth looking into other reasons for your neuropathy.
 

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Yes I Have!

One thing I just noticed is that you say tight BG control hasn't helped with the neuropathy pain. Have you looked at other reasons for the neuropathy pain besides your diabetes? There are other causes such as Vitamin B levels being too high or too low. And another thing can be food allergies. And of course there are other reasons as well. I think it is well worth looking into other reasons for your neuropathy.
According to my neurologist, I have diabetic neuropathy. This also the conclusion of my endo. Thanks for the suggestion. I wish it was only as simple as vitamin B shots!:D
 

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I Was Once On a HIgh Dose

I'm curious why you decided to cut back on the gabapentin vs try a higher dosage (not to be mistaken for a pill-pusher or anything) ...
I take 1800 mg a day for pain and sleep and for me it's a wonderful med.

I was on a neurontin mailing list years ago before it went generic here and some people took up to 4600 mg for pain and there were remarkable success stories with it. Since it's not narcotic, there are not those issues. My rheumatologist said it's best to keep a steady blood level for efficacy.

Would pregabalin be worth a try? In some studies it was shown to be more effective than gabapentin, but as with all things I'm sure it depends on the person and application.
As I shared in my post, the Gabapetten didn't work for me. It is great for some folks, as is Cymbalta, and Lyrica. In my case, I've tried numerous meds over the years, and morphine is all I can get some relief from. Thanks for your thoughts!
 

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According to my neurologist, I have diabetic neuropathy. This also the conclusion of my endo. Thanks for the suggestion. I wish it was only as simple as vitamin B shots!:D
I am definitely not saying it is as simple as Vitamin B shots. I am just saying there is more than one cause of neuropathy. And for what it is worth most of us who have off B levels don't take shots anymore although some do need to. I am sorry that you are having a hard time and that you are finding it hard to deal with the pain of neuropathy. I do understand. The reason for me is that I was increasing my gabapentin exponentially and it was being increased at a weekly rate. It wasn't till I found out that if I avoided corn my neuropathy symptoms decreased considerably and so did my use of pain meds and gabapentin. Now I am not saying the same is true for you. It is just a thought.
 
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