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Hi Everyone

This is long and I am sorry.

I am brand new to the forum and I came here to seek some answers from other partners of pwd if possible.

I am an Australian, married mum of two amazing kids, with a husband who has was dx Type 2 in July last year (2013) after going for a pre-employment medical where the diabetes was suspected and further testing confirmed dx. Prior to this I had VERY limited experience with diabetes other than a girl I used to work with many moons ago.

I have come here to find some help and talk with other people who can sympathise (hopefully) with my situation.

My husband was dx in July last year as I said and with consultation with his Dr, Metformin and Glipizide, along with a change of diet and starting exercise between August 2013 and January 2014 we managed to get his HbA1c from 9.6 down to 6.1. When he was first diagnosed his bs monitor was showing a bs of between 14 & 19 on average. So needless to say we were pretty happy with this as was his GP.

In February of this year, as a family, we made the decision to move to a town 4hrs away by car due to health reasons for our children, but I would stay behind due to work reasons and would join them once I found work in the new town. In that time my husband has pretty much completely stopped looking after his diabetes. I must admit though (my bad) that while we were in the same house I was the driving force MAKING him look after it, and as I was the one preparing the meals he ate what I gave him.

And now for the last 6 months that he has been completely “responsible” for looking after his diabetes, he has deemed it “all too hard” and is doing absolutely ZERO about it. Not taking meds correctly, DEFINTLEY not eating right (think frozen, pies, pizza’s, chicken nuggets, oven baked chips, biscuits, crisps, lollies, chocolate, milk flavouring syrups (6 times what is actually recommended), cordials to which he will add extra sugar and maple syrup - you name it - all without very much FRESH vegetables or any fruit).

Normally… I am of the opinion – his body, his problem (yes I know that this means I will eventually need to become his carer), except at the moment he is the sole carer of our children and I am EXTREMLY concerned that he is going to have a heart attack or stroke or DKA because of his out of control diabetes and our kids are going to be the ones to have to call me (a min 5 ½ hrs away by bus IF the stars are in alignment), and tell me their father is in the hospital or dead.
Something no child should have to do and in this case I believe COMPLETLEY preventable.

His last blood sugar (finger prick) test that was completed at the hospital where he is due to have surgery next week was 23.9mmol. (this has been a sustained high – last one prior to that was about 6-8 weeks ago and was 23.1) and he is STILL doing nothing to rectify this as far as I can tell even after the hospital has told him that they won’t operate if it is over 18 on the day.

Our kids are the ones bearing the brunt of this. Every time I mention something about it he gets VERY defensive and tells me to stop nagging, however for the last 6 months I haven’t said anything except “I’m not surprised” when he told me was his bs reading was last week.

High blood sugar for him means an EXTREMLY BAD temper (not violent but still very confronting and scary if you are on the receiving end), he also has PTSD and Asperger’s which only complicates everything when he gets these mood swings and at times it can be as little as a look which will set him off.

I am at the point of quitting my job (I am the sole supporter of our family) and going there – consequences be damned. Our kids don’t deserve this, they don’t deserve to be walking around on egg shells because he won’t look after himself.

He is sleeping all the time (but is easily roused and will rouse with a bad mood), urinating a lot (I am getting ketone strips for him to check with), has lost about 30kg in the 6 months he has been up there but sees it as being a good thing, very bad memory loss (especially short term), vision is becoming blurred (cause just by old age in his mind), he has pretty much constant reflux, cramps in his legs and I have no doubt already has nerve damage in his legs and feet due to numbness all the classic symptoms of high blood sugar but he won’t acknowledged it, he puts all of his symptoms down to old age or tiredness or something else DEFINTLEY NOT caused by diabetes.

So…. I am here to speak with other partners of pwd who may have experienced something similar and to see if anyone has been successful in getting through to their partners and how did you do it.

Leaving is not an option for me before anyone suggests it.
 

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It almost sounds like intervention time to me. I am wondering if he is depressed without you there and that is turning into not caring for himself.

If you can live on your husband's salary for a while, I would strongly consider moving back there... because you'll be living on one salary (yours) soon enough if you don't bring his BG under control. Good luck to you, he is a very lucky man.
 

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It almost sounds like intervention time to me. I am wondering if he is depressed without you there and that is turning into not caring for himself.

If you can live on your husband's salary for a while, I would strongly consider moving back there... because you'll be living on one salary (yours) soon enough if you don't bring his BG under control. Good luck to you, he is a very lucky man.
He isn't working at the moment :-( otherwise I would have been there before now, and I agree about the depression being a possible contributor.

I have have organised an appt with the GP he likes without his knowledge for mid next week when we are in town for his surgery and have been trying to talk to her all this week (at least 4 calls to her office) with no calls returned to discuss my concerns with her prior to the appointment.

I am to the point when I get up there tonight (after getting up at 1.30 am, being at work at 6 am doing a 6 1/2 hr shift and then a 5 1/2 hr bus trip to them), of forcing him to do a bs and ketone test and then literally dragging him to the hospital or calling an ambulance for him. I love my husband and dont want him to die ever let alone from a long, slow, painful death like this.

It truly makes me so angry that we had it so well under control and now he is so much further behind the 8 ball than when we started this journey. It makes me sad as well because he saw his mum die in a nursing home and knows whats in store for him if he continues down this path. Unfortunatley he really doesnt seem to care right now and thats NOT the man I fell in love with and married.
 

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for BlueDolly

G'day from Sydney,

I came back here after a long time, and read your posting.

Reading about your husband's diabetes should make us all wake up to the fact that we MUST take control of our diabetes. It is not easy I know (I was officially diagnosed about 8 months ago).

A big hug for you, for caring what happens to your family, and I wish you well for the future, and pray your husband will seriously take control of this condition.:wave:
 

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G'day from Sydney,

I came back here after a long time, and read your posting.

Reading about your husband's diabetes should make us all wake up to the fact that we MUST take control of our diabetes. It is not easy I know (I was officially diagnosed about 8 months ago).

A big hug for you, for caring what happens to your family, and I wish you well for the future, and pray your husband will seriously take control of this condition.:wave:
Thank you :)

I really dont think that he realizes just how much HIS condition and HIS lack of care about HIS body is affecting the rest of us. I have been so stressed this week I have made so many mistakes its not funny.

Thank goodness I am on my way up there now. Hopefully I can smack him up the back of the head (figuratively of course) enough that he makes some changes.
 

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yI so hate to be a dark cloud on the horizon here. Sometimes nothing we can do as a caregiver will make any difference. I went through this with my late DH. You can suggest/push/argue all the things that would/could help, in the end they make the decision whether take care of themselves or not. My DH ignored any of it, lost his sight, had a leg amputated and passed in my arms. Once i got my dx I swore I would never go down that road!!
 

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Things were better when you were together,and now they are not. So obviously getting back together is a priority.

I'm sure frustration for being out of job is also contributing (to the depression) so that's another area that you need to work on.

Getting him to take care of himself (and by extension the family) while on his own is the third front that has to be acted upon. Usually a heart to heart talk can go miles if both partners are responsive & willing. That not being the case (maybe again due to the depression) you could take the help of family & friends that he would be willing to listen to. Ask him to read bloodsugar101.

These are just some suggestions from continents away. The actual brunt has to be borne by you. Surely something or some way will open up, given your determination. Keep trying.
 

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grammaB is right. If he has chosen to ignore his diabetes, if may be very difficult to turn him around. Do not nag as that is counter productive. Little jabs of asking him to manage his diabetes for the children may help. Also telling him you know he can manage his diabetes and that you will help where he needs you is good.

Little things like asking him if his insurance is paid up to date and if his will is complete and on file may (but be careful with this) jar him into managing his diabetes. He may be lost without your help, but do not force this on him, but be prepared to ask questions and ask if he wants your help.

If he is in denial, then you will need to ask him if this is it. There are no easy solutions for bringing him out of denial, but you may need to talk to the doctor yourself and ask what you may be able to do to help him come out of denial.

Like others have said, do not be afraid to ask us questions!
 

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Discussion Starter · #9 ·
yI so hate to be a dark cloud on the horizon here. Sometimes nothing we can do as a caregiver will make any difference. I went through this with my late DH. You can suggest/push/argue all the things that would/could help, in the end they make the decision whether take care of themselves or not. My DH ignored any of it, lost his sight, had a leg amputated and passed in my arms. Once i got my dx I swore I would never go down that road!!
Thank you for your reply. I do realise that I cannot MAKE him do anything but I am the type of person who NEEDS to feel as if I have done everything possible in a bad situation. ... as long as I feel like that I can sleep soundly at night with myself. Right now I dont feel like that but I dont know what else to do.

I am on my way to him now and will be having one more heart to heart with him, if this doesn't work then at least I can say I TRIED EVERYTHING possible to get him to take responsibility for his health.

Its all I can do :-(
 

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Thank you for your reply. .. I do know that he feels overwhelmed by having to look after the kids by himself which I feel is definitely contributing to the depression.

I am working on getting to them as fast as possible - in fact I wrote my letter of resignation this morning and will be talking to a potential employer about a job that I really doesn't really have enough hours or really pay enough but it will be enough to get me up there. That combined with my long service leave pay out MIGHT be enough for a little while....
 

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Discussion Starter · #11 ·
grammaB is right. If he has chosen to ignore his diabetes, if may be very difficult to turn him around. Do not nag as that is counter productive. Little jabs of asking him to manage his diabetes for the children may help. Also telling him you know he can manage his diabetes and that you will help where he needs you is good.

Little things like asking him if his insurance is paid up to date and if his will is complete and on file may (but be careful with this) jar him into managing his diabetes. He may be lost without your help, but do not force this on him, but be prepared to ask questions and ask if he wants your help.

If he is in denial, then you will need to ask him if this is it. There are no easy solutions for bringing him out of denial, but you may need to talk to the doctor yourself and ask what you may be able to do to help him come out of denial.

Like others have said, do not be afraid to ask us questions!
Thabk your for your time and thoughts.... I actually plan on signing him up for a funeral plan this week if I dont see an improvement soon.

I think I am going to be spending quite a bit of time here in the future. I am aure I will have many questions as well as vents.
 

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Oh my dear! Big ((hug)) of sympathy.

How old are your children? Are they old enough to deal with a DKA or other medical emergency? Do they know who to call or what to do if your DH loses consciousness or falls and cannot get up?

His medical condition is obviously complicated and seems to self-reinforce unhealthy behavior. What a disaster!

Is the move helping the health of your child? If not, would moving the family back to the place you work be do-able? If the move is helping your child, how long are you with the family each week? Is there time to go job hunting? Can you take vacation and go job hunting there?
 

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Thabk your for your time and thoughts.... I actually plan on signing him up for a funeral plan this week if I dont see an improvement soon.

I think I am going to be spending quite a bit of time here in the future. I am aure I will have many questions as well as vents.
My mother didn't like seeing a headstone with her name on it. I think it can be an eye opening situation.
 

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Oh my dear! Big ((hug)) of sympathy.

How old are your children? Are they old enough to deal with a DKA or other medical emergency? Do they know who to call or what to do if your DH loses consciousness or falls and cannot get up?

His medical condition is obviously complicated and seems to self-reinforce unhealthy behavior. What a disaster!

Is the move helping the health of your child? If not, would moving the family back to the place you work be do-able? If the move is helping your child, how long are you with the family each week? Is there time to go job hunting? Can you take vacation and go job hunting there?
The has actually helped both of our childrens health which is fantastic. Our children are 15 and 8 so they qre both more than capable of calling for an ambulance and i have taught our daughter the signs to look out for. Thankfully we live literally about 2 mins from the hospital which is good.

Unfortunately though I am only here every other weekend but I have come up for a week due to my husbands (hopeful) surgery this week and I will be doing a kot of job hunting while here so hopefully things turn around.
 
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