Discussion Starter · #1 ·
I don't have diabetes, but my wife is type 1 brittle diabetic. I have done a lot of reading about it, talked to her doctor about it and have been battling it with her for a long time. What we are encountering is, at best confusing, at worst, irritating. We have been told that even though we are doing what the endocrinologist and the family doctor has told us, we are "doing it wrong". We are getting unsolicited information from neighbors, from clinicians who make the same claims, YET, they don't get it that the unpredictability of this illness is indeed PART of the illness. It is NOT take your insulin, eat like your supposed to (we are on a mediterranean diet),and excercise and you won't have huge spikes and drops. Our own experience is that her sugar will rise and fall, regardless of what she does and at the worst times. I have gotten so irritated that we have switched our primary care physician and I am within an inch of telling off these neighbors because not only have they been aggressive with their opinions, they, in some cases, have been down right nasty and rude (one of them likes to knock on my door when I am working online). My question is whether or not others have had this same experience with people (either in or not in the medical community) and what have you done with people like this. Not only does it affect her diabetes but it has a nasty impact on her depression (and mine). If we have to isolate to avoid what becomes almost confrontation, then we will do that. We are kind people and don't appreciate so-called "experts" telling us we are doing it wrong (NONE of them have any experience with this illness at all). Why not tell US how to do it right (since they know so much...NOT!)? I know this is long and rambling, but I am absolutely frustrated and I don't relish becoming unpleasant with my neighbors or doctors, etc. Any advise would be helpful.