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Discussion Starter · #1 ·
Mary Ann, the young, cute blonde who trained me is actually the dietitian at the hospital's diabetes education center in Poughkeepsie. I don't think she has trained many on the CGMS before but she knew a lot of the important facts. I sat close so she could put the CGM/sensor in place. ;) She has beautiful blue eyes. .........oh, yes, where was I? My wife, the personification of stark reality, was sitting three feet away. I couldn't daydream very long at a time. Lol! Mary Ann seemed nervous when she wanted to know where I wanted the sensor placed on my body. She said "How about your love handle?"......er....well....OK. She had to do it two times to get it in place properly but she did well. She explained many things and I played dumb. I didn't know nuttin. "Oh, thank you Mary Ann! You are a great help!" Lol! :rolleyes: We left her office after one hour and went to the hospital's cafeteria. They have fixins for great salads. I estimated 15 carbs and bolused. I got a high BG alarm in one hour after eating. I think the salad dressing might have been high carb. I had my high BG set at 160. I corrected a bit. I reset it at 180. I got home and looked at the CGM screen two hours after it started. I was 114. I entered that on the pump sensor page. At 4 hours after start I tested at 79, the CGM said 184! I gave several test results to the CGM every two hours after that even though Mary Ann said to do that at most 4 times per day. That afternoon it started giving me low BG alarms but I was 77-95 every time that happened. During the night I had no alarms except one time it wanted a new BG reading from my meter. The CGM was consistently giving me readings 20-30 points higher than my meter during the night. It is an average of about 20 points too high this morning. I have not had any high or low BG alarms on the CGM either last night or today. I think the system is honing in on my true range. I am set on 65-180 for alarms and the graph is staying in the lower-mid half of that band. It did not bother me to sleep on the sensor even though it is on my side and I sleep on my sides. I have a big snoring problem if I don't. :rolleyes:

I think everything may be running smoothly by tomorrow. If not I might go back to see Mary Ann!!!!! Lol! I wonder if my wife would let me go back by myself? Hmmmmm! :D

Richard
 

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Hey Richard: :)

richard157 said:
I don't think she has trained many on the CGMS before but she knew a lot of the important facts. I sat close so she could put the CGM/sensor in place. ;) She has beautiful blue eyes. .........oh, yes, where was I? My wife, the personification of stark reality, was sitting three feet away. I couldn't daydream very long at a time. Lol! Mary Ann seemed nervous when she wanted to know where I wanted the sensor placed on my body. She said "How about your love handle?"......er....well....OK. She had to do it two times to get it in place properly but she did well. She explained many things and I played dumb. I didn't know nuttin. "Oh, thank you Mary Ann! You are a great help!" Lol! :rolleyes:

What can I say, "You're JUST AWFUL RICHARD"!! ROFL! We gotta keep smiling.:D
(I asked my Husband's Physical Therapist a question this morning when she came over, that no one seemed to be expecting me to ask. :eek: Red faces....then Big Smiles and an explanation.) :D



Ya, it takes a while to get the CGMS's calibrated to where you want them to be at first but then it is usually okay. I'm Glad that you finally got one. I know you've been wanting one for some time. That's Good news. Thanks for sharing and Great Luck Richard. I hope that Anita lets you go solo....but behave. ;)
 

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Continuous Monitoring

Richard

Now that you have had the Minimed for a couple of months, has the accuracy problem been resolved? What are your opinions of the system? I am getting close to my apptmt date with the practitioner so your experience will be valuable in helping me choose what to use, etc.

Thanks

reido
 

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Hi Reido: :)

Sorry, Richard is otherwise occupied(and I hope that he doesn't mind my quoting him....): He is not happy with the CGM at this point.

richard157 said:
I cannot depend on the CGM since the results are rarely close to my meter numbers. A few times they have been as much as 100 points too high. It tells me I am hypo when I am 90. That happens too many times. I do NOT want one of these CGM's.

That is unfortunate that it wasn't a successful trial. That is one gadget I wouldn't mind having if it worked accurately....or even close to accurately.
 

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Why Was It Innaccurate?

Terrie

Thanks for the input...it raises big questions that I want to research before I lay out the hard-earned cash. An innaccurate monitor is useless in my book. That is why we all occasionally calibrate our meters to check for accuracy. MiniMed should have addressed this. :eek:

My friend at work had a coworker who was very satisfied with the Paradigm, so this has me wondering if there was some goof. While it is a complicated process to combine a meter and a pump, it is not as complex as one might think. For years I was onto my brother who used to design Mitsubishi controls to do this. After a lot of discussion we concluded that it was already easily doable by medical companies, but the liabilities are tremendous (which is why I don't expect to ever see an intelligent sensor and pump that will do it all).

I hope Richard gets a chance to weigh in, but if not, you have alerted me to a real problem with this device.

reido
 

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:)Why Was It Innaccurate?

DOH!! I didn't think to ask him that. :D But you know Richard is certainly not the first Person that I've heard that result from. I was just hoping that maybe he would fair better.

I also wanted the Omnipod as I mentioned but so many are having problems with the sensors. It's just not right. Some People have to dish out a lot of their hard earned cash to pay for these toys. It's not that they weren't designed correctly probably. It's most likely WHO is making these machines. Some lots are Good some are not. WHY?

I don't know if Richard totally gave up on the CGM, I hope to hear back from him also.

reido said:
(which is why I don't expect to ever see an intelligent sensor and pump that will do it all).
I agree. They have been working on them separately for years then combined. There is no excuse for not getting it done right, a while back. But if everything worked properly then the Diabetics couldn't waste their money on parts that worked properly.

Hey Reido....how come you are not designing medical machines/equipment for Diabetics?? ;) j/k YW!

*Terrie*
 

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Discussion Starter · #7 ·
Hi folks, the CGM I was using was made by Minimed. The Minimed pump I am using is wonderful but their CGMS was not good for me. It was a loaner and I was permitted to use it for only 7 days. People who have been successful with it have told me that seven days is long enough to determine if it is going to be successful. The blood sugar numbers on the CGM and those on my glucometer never agreed very closely. Sometimes the CGM numbers were much higher than my meter and other times they were much lower.

There is a study that has been made by Minimed that states that some people have an excess of some type of acid in the fluid where the CGM measures glucose levels. The excess acid hinders the CGM giving accurate readings. People having success with the Minimed CGM evidently produce much less of this acid. I have looked for the website that gives that report but I have not found it. My friend found it but he is not available.

I have two other friends who use the Navigator CGMS made by Abbott and they are having tremendous success with it. I would like to give it a try if my endo approves.

Richard
 

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CGMS + Pump

Richard

Thanks. I will check out the Navigator. I doubt that the sensor in the Paradigm is different from the one you tried out. Today I hope to contact the friend of a friend who has one and talk with him about it.

reido
 

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Richard,

Did you calibrate your CGMS when there was an up or a down arrow? I made that mistake and got readings like yours.

Once I learned when to properly calibrate and turn off my link meter my readings were very close. It has made all the difference in the world for me.

Allen
 

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Discussion Starter · #10 ·
Thanks for your input Allen. I don't think I did as you suggested. The lady who gave me the instrustions went "by the book" and she obviously did not really understand the CGMS. I asked questuions and she could not answer so she gave me a sheet with info but not much detail. I went to my Minimed manual that came with my MM 522 pump and got info there that helped but I don't think it said to calibrate when the arrows were not showing. That may be why I had problems.

I would like to be using one now and give it another try but my insurance company will not pay for it unless I have my endo's approval. My endo says my control is very good and she does not think I need a CGMS. I do have occasional highs and lows though and I could catch those before they got so bad if I had a CGMS. Maybe I am asking for too much. I am too much of a perfectionist.

Richard
 

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No you are not asking for too much Richard. That is Very unfair of your Endo to say No. If you feel that you could get better levels then that's not for her to decide. I mean she wouldn't be paying for the CGMS. You or your Insurance would be. I don't get it. Maybe if you keep bugging her about it. My Endo and Rheumy say sure go for it, whenever I ask about something that I feel would improve my sugar levels or pain levels, to my satisfaction. Don't give it up if you really want it.
 

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Discussion Starter · #12 ·
Thanks for the encouragement Terrie! I listen to her telling about other patients who are frequently going to the ER with near coma like situations and others who are having A1c's like 20 or so. Then I agree that I don't need a CGMS. I have mixed emotions about it.
 

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There is a workbook that comes with the CGMS. The person who trained me first worked at my doctor's office. She did not instruct me to turn off the link with the meter. Or do anything that the workbook told me. I followed her lead and had disaster with it.

Then I went to a seminar from Minimed and they educated me according to the workbook.

You calibrate it at first the way it says. Every time you do a blood glucose it sends a calibration to the pump. So once you have it calibrated you don't send a blood glucose until you need to calibrate it again.

You can only calibrate it when your blood sugar is relatively stable. If there are up or down arrows that show your sugar is changing rapidly make sure that your meter's link feature is turned off. I manually enter all glucose readings now and the pump asks me if I want to use that reading to calibrate. I only do so when the rapid change arrows (the up and down arrow) are not showing.

It's way more accurate now. The link feature on your glucometer is set up to always calibrate the CGMS. As strange as it sounds you have to turn it off.

I will gladly photocopy my workbook for the CGMS and mail it to you if you like. It spells everything out much better than what I was first trained.

I think the person who showed you was not up on it's calibration needs.

Allen
 

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Discussion Starter · #14 ·
Don't bother with that Allen. My endo is not going to approve of my using a CGMS. The one week I did use one was just a loaner from her office. My insurance will not cover it without her approval. She thinks that since my A1c is always below 6.0 I will never need a CGMS. I have done without one for 63 years of diabetes so I guess I can hobble along the rest of the way as usual. Lol!
 
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