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I don't know anymore....

7692 Views 16 Replies 4 Participants Last post by  Anthill
In August I changed to another clinic, because my endocrinologist could no longer help me controlling my diabetes. Those were her words...

In the new hospital, several things came to the attention of the professor. He appears to be one of the best specialists in our country.

* PCOS
* slow metabolism (<30)
* gastropareses
* candida
* insuline resistance
* fat percentage of 47% (duh!)
* high cholesterol (178 then)
* overweight (I need to lose at least 40 pounds)

The doc put me on glucophage for the PCOS and the insulin resistance. He wanted to put me on Prepulsid for the gastropareses but I refused (I heard some deaths were caused by this medication :eek:), a low fat diet (I have done this diet for several years already) and I had to take Prareduct 20mg for the cholesterol.

Today I went back to see him. My BG were lousy. 71% were too high. It makes me want to cry. Really, I'm so fed up with it.
I told him my opinion on carbs and that they spike my BG and that I want to cut on carbs. He doesn't agree. He says I can do that for a while, but not all the time.
My cholesterol has gone up!!! 268!! I don't get it anymore...

The doc thinks I might have a yeast allergy. That could explain my high numbers. Since I already have fungus (candida) in my body, and I react extremely to carbs. Glucophage is a form of yeast in your intestines. That could explain the high numbers as well, because my numbers have only gone up since I started taking Glucophage.
It has also given me diarrhea, so we decided to give up on Glucophage.
Another explanation for the high BG could be, that I might have sleep apnea. We will have that tested later on.

My standard deviation is 151 mg/dl. I told the doc about Richard and his wonderful A1c and deviation on his low carb diet. He didn't say much about that...

The doctor has also told me that weight loss will not happen for me. The combination of slow metabolism, huge need of insulin, PCOS and gastropareses is causing the weight gain. That really upsets me...

Sorry guys, but I'm feeling like crap now...:(
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Well I don't think that I would be much of a help and I am in the same boat as you are. Are you a Type 2 or 1 I am questioning about my experience with DAFNE Dose Adjustment For Normal Eating and my BG's are high too. :( and low carbing is getting more and more needed to me now and I just cannot see how low carbing is going to evolve in my way of eating as I am a carb hog!!! :eek: and exercise is another thing too. I know that you are in a country that's in a freezer and exercise is not an activity that you can do outside other than walking although walking is a good way to expel all that energy that you have eaten.
Cholesterol is an issue that again exercise is a vital tool as this will promote the good HDL up and there is another thing and that's is where you are as I know that you are in a country that is surrounded with food that is bad for us, I am so sorry as here we have the same as you as we have a Belgian/Holland products too and cheese I adore like the Edam and the Gouda as these are little if no carb in it but it's the Colesterol that's in it. I have been told that foods that has rich color like the green pepper or the red, Leafy greens, And the like that we should eat and I guess that we can just have an entire thread about it.
I think it's about discipline and buy doing this will help and again there is the reward as you attcheve a goal is to have a piece of that nice cake or whatever takes your fancy. But once in a blue moon!!! :cool:
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Wow Cathy! That's a lot going on. Just remember: your Dr. is there to guide you not to force you to do something his/her way. Since carbs are causing you that much trouble you should tell him/her that you are cutting them. Simple as that. When I know something is going wrong in me because of something that my Dr. has instructed me to use or otherwise, I tell him/them that I'm weaning myself off of it. That includes carbs. But I do tell them first, just in case they know something that I don't. :rolleyes: They are usually okay with it, after a discussion.

As you know, Candida infections(various types) can be caused by suppressed immune systems, birth control pills, stress, high sugar levels, wearing wet swimwear, overuse of antbiotics, etc., etc.

Your Dr. can prescribe meds. that will get rid of it. Depending on what type, some can be bought OTC. Probiotic supplements can help with it. There is probiotics in yogurt but that is to help keep the infections away. It is not strong enough to get rid of the infection. But you knew that.

I just hope that you are able to get some of these problems corrected soon with the help of your Dr. or other professional.
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Thank you Peter and Terrie, for the support.
I'm unemployed right now. My D has always affected my work situations, since I have never had great control....

I talked to my job coach today. He's willing to help me find the best solution, putting my health first. That calms me down. It's not easy to find a job when you're not feeling your best.

My doc knows I will cut down on eating carbs. I started my own diet again today. I'm glad I'm off the Glucophage (metformax). No more gas today, no more diarrhea :)
Had my first hypo after lunch. O well...

How do you solve hypos when you eat low carb?
Hello: :)

I'm surprised that you're having hypos if you are Insulin resistant. You and your Dietician would have to make out a new diet plan for you(I'm sure that she'd be thrilled that you want to eat less carbs). :)

Moderate consumption of meats and low carb cheeses would be included since they stablize blood sugars better. You would also have to take less Insulin since you are experiencing hypos.

On the other hand, are you sure that you are Insulin resistant? Maybe if you tried a "new" spot for the infusion set, the Insulin may work better. Too many infusions in the same area ends up causing the Insulin to not be absorbed properly.(rotation, rotation, rotation ;) ). Perhaps the Apidra is not working the Best for you.

The Dietician or the Certified Diabetes Educator will also give you your new and proper Insulin to carb ratio.

Are you taking something for your Hypothyroidism?
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Hello: :)

I'm surprised that you're having hypos if you are Insulin resistant.
I normally don't have many hypos Terrie. My last test result said 7% of my numbers were hypos. I think I had one today because my basal pattern went up.

You and your Dietician would have to make out a new diet plan for you(I'm sure that she'd be thrilled that you want to eat less carbs). :)

Dieticians are the same as doctors over here: not fond of low carb meals. Dieticians over here are the ones that put us on 220 gr carbs a day when you need to lose weight!

Moderate consumption of meats and low carb cheeses would be included since they stablize blood sugars better. You would also have to take less Insulin since you are experiencing hypos.

On the other hand, are you sure that you are Insulin resistant? Maybe if you tried a "new" spot for the infusion set, the Insulin may work better. Too many infusions in the same area ends up causing the Insulin to not be absorbed properly.(rotation, rotation, rotation ;) ). Perhaps the Apidra is not working the Best for you.

I have tried all the insulins available so far. Rotation is something I do every two days. One time left of the belly button, the next time right of the belly button. Sometimes I put it in my bottom, or on the hip as well. So I guess that's not the problem either

The Dietician or the Certified Diabetes Educator will also give you your new and proper Insulin to carb ratio.

Are you taking something for your Hypothyroidism?

I had thyroid tests done before and those results were fine. I think you must confuse me with someone else? Or maybe I get lost in translation?
I'm writing everything down again: food, bolus, correction,... Hopefully that will tell us more.
You are the one in charge of controlling your Diabetes along with your Dr. as the Guide. Weight-loss is a part of it sometimes. They cannot make you eat too many carbs. And I don't mean really low-carb for you. I mean, over here the CDA (Diabetes.ca) expects a Diabetic to eat 155 carbs a day.

I can't eat that much so I don't except on Special occasions. Also balanced meals help to keep the blood sugar level, normally. They are okay with that but of course I had to lessen my Insulins. I do have occasional lows because I usually have a lot of stuff to do and I miss a test or 2 when distracted or busy. Most Diabetics have the occasional low, pumpers or not. Unless their Diabetes is out of control and they are high most of the time.

No, I'm talking to you Cathy. :) Doesn't a slow metabolism usually mean Hypothyroidism sometimes? I'd say out of the many thousands of Diabetics I've met through the years(that were of age)that 2/3 of them had Hypothyroidism including myself. Well, probably not you, if your tests say not.
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No, I'm talking to you Cathy. :) Doesn't a slow metabolism usually mean Hypothyroidism sometimes? I'd say out of the many thousands of Diabetics I've met through the years(that were of age)that 2/3 of them had Hypothyroidism including myself. Well, probably not you, if your tests say not.
Nobody has ever told me that before Terrie... My mouth is falling open now.. But I know tests have been done this summer and a couple of years ago.
If you have hypothyroidism (what a word...), what are the symptoms?
Nobody has ever told me that before Terrie... My mouth is falling open now.. But I know tests have been done this summer and a couple of years ago.
If you have hypothyroidism (what a word...), what are the symptoms?
There you go, my Dear. Close our mouth. :D As it says, there are more symptoms and varied symptoms. I read the symptoms in a book(symptoms vary from Person to Person)and I swear I checked off about 15 of them. I took the book to my Endo at the time. Great Guy but he moved. He did the tests and sure enough the results said my number was out of range.

Your TSH test helps to determine if you have the condition called subclinical hypothyroidism. This condition shows little or no symptoms.

There is also Hyperthyroidism which mainly gives the opposite symptoms of Hypothyroidism. You don't have that condition.

Hypothyroidism: Symptoms - MayoClinic.com

And again, I am not saying that you have it, if your Dr. says that you don't.
There you go, my Dear. Close our mouth. :D As it says, there are more symptoms and varied symptoms. I read the symptoms in a book(symptoms vary from Person to Person)and I swear I checked off about 15 of them. I took the book to my Endo at the time. Great Guy but he moved. He did the tests and sure enough the results said my number was out of range.

Your TSH test helps to determine if you have the condition called subclinical hypothyroidism. This condition shows little or no symptoms.

There is also Hyperthyroidism which mainly gives the opposite symptoms of Hypothyroidism. You don't have that condition.

Hypothyroidism: Symptoms - MayoClinic.com

And again, I am not saying that you have it, if your Dr. says that you don't.
Sorry Terrie...but the mouth is still open (suppose I'm drooling by now :eek:)

Fatigue
Sluggishness
Increased sensitivity to cold
Constipation
Pale, dry skin
A puffy face
Hoarse voice
An elevated blood cholesterol level
Unexplained weight gain
Muscle aches, tenderness and stiffness
Pain, stiffness or swelling in your joints
Muscle weakness
Heavier than normal menstrual periods (I had a hysterectomy for that reason :cool:)
Brittle fingernails and hair
Depression

the green ones sound familiar to me...

One more question for my professor. He'll be happy to see me next week :rolleyes:
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Sorry Terrie...but the mouth is still open (suppose I'm drooling by now :eek:)

Fatigue
Sluggishness
Increased sensitivity to cold
Constipation
Pale, dry skin
A puffy face
Hoarse voice
An elevated blood cholesterol level
Unexplained weight gain
Muscle aches, tenderness and stiffness
Pain, stiffness or swelling in your joints
Muscle weakness
Heavier than normal menstrual periods (I had a hysterectomy for that reason :cool:)
Brittle fingernails and hair
Depression

the green ones sound familiar to me...

One more question for my professor. He'll be happy to see me next week :rolleyes:
Mmmmm...that looks like when I was soon dxd. In the book it had 21 symptoms. I checked off about 15 of them. I asked my Endo if these were really all symptoms for Hypothyroidism. He said, "Yes Terrie, they are all symptoms of Hypothyroidism". :eek:


I hope that you don't have this condition. But thankfully there are drugs that do give relief to most of the symptoms.
Sorry Terrie...but the mouth is still open (suppose I'm drooling by now :eek:)

Fatigue
Sluggishness
Increased sensitivity to cold
Constipation
Pale, dry skin
A puffy face
Hoarse voice
An elevated blood cholesterol level
Unexplained weight gain
Muscle aches, tenderness and stiffness
Pain, stiffness or swelling in your joints
Muscle weakness
Heavier than normal menstrual periods (I had a hysterectomy for that reason :cool:)
Brittle fingernails and hair
Depression

the green ones sound familiar to me...

One more question for my professor. He'll be happy to see me next week :rolleyes:
Cathy,
I agree with Terrie. I think you might be hypothyroid as well. I know I am because I had my thyroid gland completely removed 6 years ago due to cancer. A few months ago when I was trying to lose weight and my blood sugar was going wacky, instead of sending me for a glucose tolerance test, like I originally thought I needed, the doctor sent me to have a thyroid uptake and sure enough, I needed more thyroid hormone. This helped me to lose weight, which in turn helped my blood sugar.
Insulin makes you gain weight, so the reason I live a low carb lifestyle is because I don't want my body to be putting out insulin and making me gain weight. If I eat no carbs, my pancreas won't be pumping out insulin. I think the same would apply to you, and it may not hurt you to try. If you consumed less carbs and burned off via exercise what little carbs you do consume, you would need less insulin. Also, if it's available you should take Chromium picolinate, Alpha Lipoic Acid, Biotin and the B complex vitamins. Chromium will metabolize your blood sugar and you'll need less insulin.
Gastropareses is a neuropathy of your stomach nerves and muscles. Here is a list that I've copied and pasted from another website, which might help you. I hope these are available in Belgium. If not, many are available online.
Alpha Lipoic Acid is one if the most important nutrients to consider for diabetes. Alpha Lipoic acid has been evaluated for blood sugar control, and it may also be considered in diabetic neuropathy and kidney disease. A dose of 20 to 50 mg daily appears to be appropriate and a cautious way to begin treatment. Alpha lipoic acid is more effective when treatment is started early before the diabetic neuropathy has progressed to a late stage. You can buy an Alpha-Lipoic acid supplement online.

Acetyl-L-carnitine is helpful in the treatment of diabetic neuropathy. An acetyl l-carnitine dose of 100 to 300 mg a few times a week may be tried. Higher doses can cause overstimulation. Occasionally carnitine may also be tried. You can buy an Acetyl-l-Carnitine supplement online.

Benfotiamine has been evaluated in diabetic neuropathy with positive results.

B vitamins could be helpful, perhaps combined with gabapentin (Neurotin).

Ginkgo Biloba - Dr. Susanne Koeppen, from the University of Essen in Germany, and colleagues randomly assigned 60 diabetic patients with neuropathy to ginkgo biloba extract, folate, both agents, or placebo. All three active treatments were superior to placebo, with the best effect seen with the combination of folate and ginkgo biloba extract.

I wish you much luck. And like Terrie said, you don't need to do EVERYTHING your doctor tells you if you don't feel right about it or if you don't think it will benefit you. If I consumed 220 carbs per day, I'd gain all my weight back in a week and my blood sugar would be going up and down like a see saw the same way yours is. You also, however need to exercise. During the winter over here, I put on music and I dance for a half hour to 45 minutes. You have teenagers...dance with them...;) It'll do your heart and blood sugar some good. I dance with my girls and my grandson, plus I studied 10years of ballet so I do ballet exercises as well. Do something fun that will keep you moving for at least a half hour everyday. Exercise won't make you more tired, it will invigorate you.
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is it possible that you test negative one year, and positive the next? Like diabetes?
Sorry Terrie...but the mouth is still open (suppose I'm drooling by now :eek:)

Fatigue
Sluggishness
Increased sensitivity to cold
Constipation
Pale, dry skin
A puffy face
Hoarse voice
An elevated blood cholesterol level
Unexplained weight gain
Muscle aches, tenderness and stiffness
Pain, stiffness or swelling in your joints
Muscle weakness
Heavier than normal menstrual periods (I had a hysterectomy for that reason :cool:)
Brittle fingernails and hair
Depression

the green ones sound familiar to me...

One more question for my professor. He'll be happy to see me next week :rolleyes:
Cathy,
I agree with Terrie. I think you might be hypothyroid as well. I know I am because I had my thyroid gland completely removed 6 years ago due to cancer. A few months ago when I was trying to lose weight and my blood sugar was going wacky, instead of sending me for a glucose tolerance test, like I originally thought I needed, the doctor sent me to have a thyroid uptake and sure enough, I needed more thyroid hormone. This helped me to lose weight, which in turn helped my blood sugar.
Insulin makes you gain weight, so the reason I live a low carb lifestyle is because I don't want my body to be putting out insulin and making me gain weight. If I eat no carbs, my pancreas won't be pumping out insulin. I think the same would apply to you, and it may not hurt you to try. If you consumed less carbs and burned off via exercise what little carbs you do consume, you would need less insulin. Also, if it's available you should take Chromium picolinate, Alpha Lipoic Acid, Biotin and the B complex vitamins. Chromium will metabolize your blood sugar and you'll need less insulin.
Gastropareses is a neuropathy of your stomach nerves and muscles. Here is a list that I've copied and pasted from another website, which might help you. I hope these are available in Belgium. If not, many are available online.
Alpha Lipoic Acid is one if the most important nutrients to consider for diabetes. Alpha Lipoic acid has been evaluated for blood sugar control, and it may also be considered in diabetic neuropathy and kidney disease. A dose of 20 to 50 mg daily appears to be appropriate and a cautious way to begin treatment. Alpha lipoic acid is more effective when treatment is started early before the diabetic neuropathy has progressed to a late stage. You can buy an Alpha-Lipoic acid supplement online.

Acetyl-L-carnitine is helpful in the treatment of diabetic neuropathy. An acetyl l-carnitine dose of 100 to 300 mg a few times a week may be tried. Higher doses can cause overstimulation. Occasionally carnitine may also be tried. You can buy an Acetyl-l-Carnitine supplement online.

Benfotiamine has been evaluated in diabetic neuropathy with positive results.

B vitamins could be helpful, perhaps combined with gabapentin (Neurotin).

Ginkgo Biloba - Dr. Susanne Koeppen, from the University of Essen in Germany, and colleagues randomly assigned 60 diabetic patients with neuropathy to ginkgo biloba extract, folate, both agents, or placebo. All three active treatments were superior to placebo, with the best effect seen with the combination of folate and ginkgo biloba extract.

I wish you much luck. And like Terrie said, you don't need to do EVERYTHING your doctor tells you if you don't feel right about it or if you don't think it will benefit you. If I consumed 220 carbs per day, I'd gain all my weight back in a week and my blood sugar would be going up and down like a see saw the same way yours is. You also, however need to exercise. During the winter over here, I put on music and I dance for a half hour to 45 minutes. You have teenagers...dance with them...;) It'll do your heart and blood sugar some good. I dance with my girls and my grandson, plus I studied 10years of ballet so I do ballet exercises as well. Do something fun that will keep you moving for at least a half hour everyday. Exercise won't make you more tired, it will invigorate you.
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Ahh Ballet.

During the winter over here, I put on music and I dance for a half hour to 45 minutes. You have teenagers...dance with them...;) It'll do your heart and blood sugar some good. I dance with my girls and my grandson, plus I studied 10years of ballet so I do ballet exercises as well. Do something fun that will keep you moving for at least a half hour everyday. Exercise won't make you more tired, it will invigorate you.[/COLOR]
WOW!! :D:D Can I be a Cavalier to you and do a Par de Deux with you. ;) Gee I can dream. :rolleyes:

But to be on topic I may have some lacking thyroid I think as I am not sure so a subject for my endo as a general practice doctor may not and my carb count is not under 150 Grammes :eek: a day. :confused::rolleyes:
WOW!! :D Can I be a Cavalier to you and do a Par de Deux with you. ;) Gee I can dream. :rolleyes:

But to be on topic I may have some lacking thyroid I think as I am not sure so a subject for my endo as a general practice doctor may not and my carb count is not under 150 Grammes :eek: a day. :confused::rolleyes:
Ok Peter, hold on while I get on my pointe shoes. (Back in the day, we used to call them "toe shoes.") :) If I can find them, that is. Been too many moons ago. :(
I must admit though, after seeing my grandson in class and attending his recitals, I miss it, so I was thinking of enrolling in an adult ballet class next season.

Speaking of hypothyroidism, I was reading that most doctors, even endos overlook hypothyroidism as a possible cause. Proper thyroid gland function regulates body metabolism, blood calcium levels, energy, excess fats, hormones, oxygen, weight loss.
I too am a carb junkie!! I'm Italian and I LOVE my pasta, Italian bread, processed salami, hams, Italian pastries, and all the rest of that "good tasting, but bad for me stuff." :)
I'm only prediabetic and not even a full type 2 diabetic, but I limit my carb consumption to 50 grams or less per day. That way, I avoid spikes in blood sugar and I keep my weight and my cholesterol down. Once in a while, on special occasions I will cheat and have some of the Italian goodies I mentioned above. :D
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Ok Peter, hold on while I get on my pointe shoes. (Back in the day, we used to call them "toe shoes.") :)
They're called En Pointe shoes as I have thrown mine away and deliberately break them as they are for my foot and no one else's. These shoes are an exact fit!! They must be as to be on toe. Do you use a shank? I do. :eek: Don't forget the toe socks & tape & cotton wool. :D
If I can find them, that is. Been too many moons ago. :(
I must admit though, after seeing my grandson in class and attending his recitals, I miss it, so I was thinking of enrolling in an adult ballet class next season.
Gee that would be nice to see. I can do some exercises like doing demi pile while the turnout can be better. :eek:

I too am a carb junkie!! I'm Italian and I LOVE my pasta, Italian bread, processed salami, hams, Italian pastries, and all the rest of that "good tasting, but bad for me stuff." :)
I'm only prediabetic and not even a full type 2 diabetic, but I limit my carb consumption to 50 grams or less per day. That way, I avoid spikes in blood sugar and I keep my weight and my cholesterol down. Once in a while, on special occasions I will cheat and have some of the Italian goodies I mentioned above. :D
Ahh but to a full time dancer carbs are a dancer's freind and with their activity in dance will keep us trim (Oh one can dream. :eek:) There is one famous dancer who for the first time to whore En Pointe shoes and that dancer was an italian and her name is Marie Tagloni 1832.
Unfotunately there are no advances to improve the shoes though. :(
There is exercise and ballet is just one of them as we look out of the ballet hall we see other people playing a football match wile we practice our art. :D
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