Joined
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690 Posts
And I am so excited! I hope everyone sticks around and we can keep givng each other support. Yes, I have been away for a couple of weeks but I am in a much better place emotionally. In other words, feeling less stinky! I had my MRI and guess what! I do have a brain but no visible tumor on my pituitary gland. After another rounds of steriods to see if it reduced my cortisol level (and they did) I was referred to the head of the pituitary clinic at UAB (University of Alabama at Birmingham). He was ready to send me for a IPSS based on my blood work, but after seeing me and the fact that I don't have any physical characteristics of someone with Cushing's Disease, he is having me collect my urine for 24 hrs again. If the urine results are in the gray area, I will have something called a dexamethasone/CRH test to see how my glands react. If the urine is high enough to be indicative of Cushing's then I have the IPSS. With the IPSS, they will go in through my groin to my pituitary gland and look for that microadenoma (tiny, benign, tumor). I feel better because this doctor was wonderful, compassionate and not willing to do anything invasive to me until he was proof postive I needed it. The only reason he thinks I have Cushing's Disease is because I have Type 2 diabetes and my parents don't have it. He didn't care that my grandmother had it, and didn't care that I was overweight. He said with my family history, good health and blood work, there is no reason for me to have diabetes at this age. Anyway, I will keep you posted and plan to participate more frequently in the forum! Love you guys!
thisstinks
stinky
Jenn
thisstinks
stinky
Jenn