Discussion Starter · #1 ·
My son and I had a 2 1/2 meeting with an endocrinologist and dietician yesterday afternoon. It went well enough but the bulk of the meeting was re-hashing what had happened when my son had DKA. Then another nurse showed up asking if I was willing to participate in a study with type 1 diabetes trial net and basically see if my other son and I are at risk for this autoimmune disease. Then, a McMaster student shows up, handing me a booklet to fill for her studies in the care of newly diagnosed patients and if I could read it over by the end of our dr meetings. Then the dietician shows up asking us how the diet is working for us. I know I count his carbs at every meal and snack times but because I haven't logged in all that info. She seemed very annoyed with me, insisting that I am not taking all this seriously. Then I found out from our nurse that I'm on my own figuring how much insulin to give my son in balance with his meals. At last, the endo shows up 20 mins. late and introduces herself and ushers us out of the room with my list of questions un- answered. I felt frustrated at the end but then I guess I'm going to have to learn everything about this condition and do my own experimentations with the insulin. I also asked the nurses about my son's c-peptides if I could get a testing and they just tell me ask the doctor. I guess I had so much hope that they being the experts in this could provide me with some knowledge but I'm sorely disappointed. Sorry for rambling but I had to get this off my chest. Thank you.