[Tinss_C]

My son and I had a 2 1/2 meeting with an endocrinologist and dietician yesterday afternoon. It went well enough but the bulk of the meeting was re-hashing what had happened when my son had DKA. Then another nurse showed up asking if I was willing to participate in a study with type 1 diabetes trial net and basically see if my other son and I are at risk for this autoimmune disease. Then, a McMaster student shows up, handing me a booklet to fill for her studies in the care of newly diagnosed patients and if I could read it over by the end of our dr meetings. Then the dietician shows up asking us how the diet is working for us. I know I count his carbs at every meal and snack times but because I haven't logged in all that info. She seemed very annoyed with me, insisting that I am not taking all this seriously. Then I found out from our nurse that I'm on my own figuring how much insulin to give my son in balance with his meals. At last, the endo shows up 20 mins. late and introduces herself and ushers us out of the room with my list of questions un- answered. I felt frustrated at the end but then I guess I'm going to have to learn everything about this condition and do my own experimentations with the insulin. I also asked the nurses about my son's c-peptides if I could get a testing and they just tell me ask the doctor. I guess I had so much hope that they being the experts in this could provide me with some knowledge but I'm sorely disappointed. Sorry for rambling but I had to get this off my chest. Thank you.

 

[silvertiger]

Your experience is like many others have experienced here. I'm so sorry. You'll find that Blood Sugar 101 and Dr. Bernstein's books are far more useful than most professionals, sadly enough.

 

[Shanny]

Sorry to see it, but not surprised. And you can always come here to get it off your chest. Some of the most frustrating times we have around here are the interactions we have with misinformed and unhelpful professionals.

 

[fangirl]

I just wanted to add my sympathies regarding what sounds like an awful experience with the "medical experts". It's shocking how little they actually seem to help their diabetic patients sometimes. The folks here on this forum are a true font of knowledge and will certainly help you to the best of their combined abilities.

Good luck on the journey.

 

[Tinss_C]

I actually asked the nurse what to do with a hyperglycaemia attack. She told me we'll discuss that next week. Sheesh!

 

[Mary]

Next week? Seriously? Is that like, she wasn't sure herself? Not sure why she'd ignore such an important question. What a shame. So glad that you found us. Please keep asking any questions that you have.

 

[mbuster]

Do you promise not to have one until week after next, when that weeks topic is how to deal with hypos.

 

[Tinss_C]

My son is actually having quite a roller coaster ride today but everything is going down. 3 times since waking up and I suspected he was hypo too upon waking. His bg was 4.0. I thought we had the sugars stabilized but this is quite a curveball.

 

[Jen]

Tinss - here are two books that will help you understand how to set up the optimal insulin program for your son: Think Like a Pancreas by Gary Scheiner and Using Insulin by John Walsh. They're both easy to read and understand. I think all insulin users are ultimately "on their own" - we each have such individual requirements! These books will give you the arithmetic that will help you and your son make adjustments in accordance with his specific needs.

Jen

 

[Tinss_C]

Thanks Jen! I'm I've actually ordered the book Think like a Pancreas from our local bookstore. I'm going to search for the Using Insulin book too.