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Discussion Starter · #1 ·
hi-
I'm new here. I have a few other autoimmune/endocrine issues & just recently became very sick. When I saw my doctor he said I had a very high ANA positive count & recommended me to an Endocrinologist. After loads of research (not WebMD - everyone always thinks I just went on WebMD like a hypochondriac) LADA or Type 1.5 seems to fit. I got a blood glucose monitor & started checking my BGL. It's all over the place! Like a yo-yo. In the 60s then jumps up to 200 if I eat. I stick to a low carb no added sugar diet, exercise, & live a healthy life style. I see the endo Friday. I'm open to suggestions on how to balance out my BGL or at least how to keep it from being so extreme that I feel sick. Before I started monitoring it I had 2 episodes of what I guess was an extreme high BGL. Once after a very intense exercise class in a heated room where I sweat so much I work out on a towel the second time was after eating a big meal. Any suggestions are appreciated. Thanks.
 

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Hello and welcome, Sarah.

I know the ANA test is used to detect autoimmune disorders such as lupus, but the best test I know for diabetes is for GAD antibodies. Do you know if they tested you for GAD65 . . . or c-peptide? Did they do an A1c? That is mandatory.

Did they put you on insulin or some oral medication? What exactly are you eating? It isn't enough to eliminate sugar from your meals, you must eliminate anything else that converts to sugar - all the starches like bread, potatoes, pasta, etc.

These docs are using awfully vague language for things that have very definitive tests for diagnosis. If you have your test results (and they should always give you a copy or make it available online), tell us what else they tested for.
 

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Hi Sarah,

It is possible that your hunches are right, but the best thing is to rule out the doubt with the GAD65 test. The wild BG swings that you describe fit what is known as reactive hypoglycemia, though 60 would not technically be a low. And RH does overlap with LADA. But the GAD65 will tell.
 

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Agreed, GAD and C peptide. I am LADA. Are you losing weight? It does seem like you are having hypo reactive events therefore VERY low carb is in order. Anything that raises BG will create an over abundance of insulin and lower you fast. You probably need to eat small frequent meals as well, but again VLC/HF. Sudden unexplained weight loss is a sign of LADA. Also, an A1C might not be a great indicator if you are having highs and lows it could average out to an OK A1C BUT highs and lows are not controlled BS.
 

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Discussion Starter · #5 ·
The plan is to have the Dr I see Friday check A1C & GAD 65. Because I hadn't been paying attention to blood sugar before I saw my regular Primary Care doc he just tested for ANA & all the regular CBC type things. My reason for going to him was that first bout of sickness after working out which kept me sick for a long time. As well as the extreme fatigue I've been feeling for the past 2 months. In 3 months I've lost 20 pounds without changing diet or exercise. I am very active (I exercise 3-5 times a week for 90 minutes). But that hasn't changed. I've actually been exercising less the past month because of fatigue & being sick. I am starving all the time but I can't really eat a variety of foods because I never know what will happen after I eat. The only sure "meal" is a 300 calorie protein shake that is very very low carb/low sugar & a banana.

I checked my BGL at wake up it was healthy 90. (Yay) . I took my thyroid med, waited 90 minutes, then had a protein shake. After about 15 minutes I tested, it went DOWN. It was 84, tested 15 minutes later it was 70..... The downward trend continued until I ate 2 bananas. Bananas brought it up to 100 & now I feel fine. When I am on a downward trend it will go as low as I let it. I start to feel the effect of low BG at 80 which I know is just the low end of normal. 60 is the lowest it's gotten since I started testing.

Since I've started testing it hasn't gotten 2 high being that my diet has become even more strict. Most meals are chicken eggs or beef with a side of vegetables. Highs recently have been caused by too much fruit (2 nectarines is too much) & eating like a normal person (tacos or a sandwich) because I swear any simple carb sends it through the roof.

What do doctors usually suggest to stabilize BGL? Like because my diet is already so strict there isn't much else I can do. I am literally scared to eat because I know even the slightest slip up & I'm laying in bed ill. Wouldn't insulin make the lows worse? I've had lots of lows lately because I'm scared to eat, the highs make me so sick is rather feel hungry than feel the effects of high BG.
 

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Right now you're on a roller coaster, yo-yoing from hypos to spikes - reactive hypoglycemia, so that contributes the feeling of having been hit by a train. Once you can gain and maintain a low stable blood sugar level, you'll feel much MUCH better!

With your symptoms, I think your PCP was just showing off in testing ANA . . . that is not a routine test, and the signs of diabetes were all over the place, even though you say you have other autoimmune disorders (what are those, BTW?). What he should have ordered to begin with was a basic metabolic panel and the A1c. Those are the routine procedures.

Once you start focusing on your blood sugar, you'll find that your diet strictures can be loosened. While you are striving to eat healthy, the conventional wisdom of 'healthy' is what kills diabetics. We cannot metabolize carbs - not ANY carbs, and all the self-styled experts insist that fruit and whole grains are de rigueur. They are all wrong. Grains are the absolute worst offenders for carbs, and high-starch root crops like potatoes, etc., come in second. Fruit is right in there too, withh only a few berries being tolerated by a few diabetics.

So please have a look at a low-carb/high-fat way-of-eating (WoE), and I think you'll discover it lines up pretty well with what you've already realized keeps you feeling better. The high-fat part is the secret weapon, because once you delete carbs which have been feeding the glucose-based energy system, you need a new source of fuel for energy, and that is good natural saturated and unsaturated fats which convert to ketone bodies, and provide the perfect source of energy for diabetics. This is by far the safest and best way to control high blood sugar - regardless of what the pharmaceutical industry would have us think, with all their new and expensive drugs.

Start trying this LCHF WoE by using a technique called eating to your meter. I think you'll be amazed. If you prowl around the introductory threads of other members, you'll find so many others who have already been amazed. And you certainly don't have to take our words for it . . . just try it for a few weeks and let it work its magic.

You can also peruse Blood Sugar 101 (it'll take while! ;)) for an excellent education on diabetes in general - all types.

This works and you can do it.
 

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As Shanny said, high fat is what you need to do. It will stabilize BS in the absence of carbs. Protein is not unrestricted either as it elicits a large insulin spike, hence lowering BS. I lost lots of weight (that I couldn't afford to lose) just before DX BUT my BS was high, not low and I did roller coaster around. Bananas are not a food for you. They will initially raise you and then you will plummet. High fat is your best option, VLC and moderate protein. I never eat more than 3 oz at a time. As I said, protein spikes insulin almost as much as carbs. Fat has little effect on insulin and this is why it will keep BS steadier. I recommend getting acquainted with avocado, nuts, oils and some butter. Do you have food allergies or intolerances? What is making you sick after eating?
 

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Rollercoaster is the right word to describe the wild & rapid BG swings with reactive hypoglycaemia. The disorientation & listlessness is caused neither by the lows or the highs themselves, but the sudden drop from the high number to the low. So if you can avoid going high, you can avoid those feelings until all your tests are done & you've gotten better at the game. All the advice given above, to that end, is spot on.
 

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Discussion Starter · #9 ·
Other Autoimmune diseases

I also have Celiac Disease & Sjogren's syndrome. I was diagnosed with celiac when I was 23 after a lifetime of celiac complications.
 

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Welcome Sarah

You certainly do have your share of autoimmune conditions. LCHF is by nature gluten-free because of not including grains (although one can find gluten in a few LCHF products such as wheat gluten and soy sauce - as you already know).

I am gluten intolerant and after many years of making delicious gluten-free breads, etc., I had to give them all up when dx'd with diabetes. I have found that making low-carb breads and cakes to be not only easier to do but so much better for my blood sugar levels. I used to have hypoglycemia episodes and when I went LCHF they no longer happened.

You might want to browse through the Diet section which contains threads about what's in our meals, and the Recipe section - there are some excellent LCHF cooks here (and very few contain items with gluten).
 
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