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Discussion Starter · #1 ·
Hello everyone. I was diagnosed with type 1 right after Christmas. Spent 3 days in ICU from DKA and it's been tough ever since... getting used to the changes.

I hope to meet some good people here, learn a few things and contribute what I can. So hello!!
 

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DKA was how I found out I was T1 as well. I spent 3 days in ICU and a week over in the hospital.

Welcome and ask away. There are several T1 here with all levels of experience so never be afraid to ask!
 

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Hi Alex
Welcome to the forum. I am not a T1 but just wanted to welcome you to the forum.

We have T1s on the forum who have successfully managed their diabetes for over several decades, with several over 50+ years. Many of them should be online very soon.

Sorry to hear about your DKA experience. Feel free to post your questions and comments here. What's your insulin and diet plan at the moment ?
 

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Discussion Starter · #5 ·
Thanks everyone!

I'm on 15 units of novalog before each meal and 44 units of lantus before bed.

I'm 28 and quickly becoming much more active so hopefully I can consistently lower the dosage a little soon enough.

I'm glad to hear that there are some people here who've managed this for so long. I'm sure to learn a thing or two here.
 

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Hi Alex, do you live in the US? Apparently you have not been told to use carb counting to determine your novolog doses before eating. I use 1 unit for every 8 carbs I eat. That is called a 1:8 insulin:carb ratio. You would have to use trial and error to determine your own ratio, it could be very different from mine. carb counting is a much better way of having stable control after meals. There are other things you need to learn. I recommend the book "Using Insulin" by John Walsh. You can buy the book from amazon.com.

I was diagnosed in 1945, when I was 6, and am very healthy. If you have good control, you can have a long, healthy life.

Richard
 

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Discussion Starter · #7 ·
Thanks for your reply Richard!

I do live in the US. They did not tell me about the insulin/carb ratio but I have read about it and was planning on bringing it up at my next appointment.

They explained it to me as using 15 units and eating 4 carb choices (60 carbs) and put me on a sliding scale. Thats all I was told at first, but I am learning quite a bit lately from places like this forum.

I will check out the book as you are not the first to recommend it!
 

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Some doctors don't want to overwhelm their patients at first. I knowing didn't. I don't think that is a bad thing, but sometimes it leaves us with more questions than answers. Mine allows me to call his office and leave questions with his two nurses who will get back to me later that day. Perhaps yours will do the same. Mine also hasn't covered ratios yet. That's my next appt. he likes to tak things slowly and make sure I got a good grasp of things as we go along.
 

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Alex, if I eat as much as 60 carbs at a meal that could mean 200 carbs per day, including snacks. That requires a lot of insulin, an I gain weight. So I limit myself to a max of 150 carbs per day, and use a total of 34 units of insulin per day (basal + bolus). I do not gain weight that way. About 35 carbs per meal and a couple of snacks of 20-25 carbs each is how manage my food intake.
 
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Discussion Starter · #10 ·
I have thought that was high for each meal since they told me. I actually only eat one snack and its carb free or <2 carbs (lunch meat or cheese etc) so I get around 180 per day.

I wanted to lower my carbs to 45-50 each meal and was going to bring that up in my next visit with the insulin ratio question. I think I've started to figure out my ratio numbers as well. There is a lot to learn at first.

Do most people on MDI's inject before snack also? I've found even 5 carbs will spike my blood sugar more than i'd like (thats why i've kept my snack is usually carb free).
 

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Just hollering in to say welcome, Alex. Glad you're getting a sense of the big picture here - our T1s can help you learn the ropes & prob'ly save you a ton of grief! :)

Thank you for joining us - I hope you benefit as much from these folks' wisdom & experience as I have! :cool:
 

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Alex, some MDI's inject 15-30 minutes before eating. That gives the insulin a head start. I have done that many times. It would not be a good idea though, if you had a low at the time you were going to take your injection. Under those circumstances you should inject and then start eating. If I have a low below 70 at meal time, and I start to use my pump for a bolus,, my pump displays a message. It says to wait for my BG to return to normal before using insulin. I have eaten half my meal before injecting at those times.
 

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I'm really shocked the doctors haven't informed you about insulin to carb ratio yet. They wouldn't let my son out of the hospital until we understood it. In fact we had to watch videos and fly alone without the help of nurses before they would let him leave. Then I had to call in his numbers every day for a week or so.

No wonder a lot of people don't understand. Some doctors don't inform. Just makes me thankful we lucked out with good doctors. Someone was looking over my son.

And thank goodness for this forum.
 

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I appreciate your making that post. I am a member of many parents groups on Facebook. There are parents there whose doctors told them to take a particular number of units before each meal. The number of carbs involved does not matter. I actually believe the doctors do not understand either. Some parents take their T1 children to a GP and don't know there are diabetes specialists until they join an online support group. Learning about insulin:carb ratios, insulin sensitivity levels, and endocrinologists makes a big difference in their children's control.
 
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