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Discussion Starter #1
Did a sleep study last week.

After about 90 mins they woke me up and put me on the machine.

The word they used was "severe".

Blood Oxygen was in the 70% range and even dipped below 70.

Any thoughts, wisdom or advice on a cpap? Mask selection?

I'm interested to hear others peoples experiences of using one and how beneficial it was.
 

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Did a sleep study last week.

After about 90 mins they woke me up and put me on the machine.

The word they used was "severe".

Blood Oxygen was in the 70% range and even dipped below 70.

Any thoughts, wisdom or advice on a cpap? Mask selection?

I'm interested to hear others peoples experiences of using one and how beneficial it was.
Sorry to hear that, but knowledge is power. I worry I may suffer from that as well. I can usually tell I had a bad night when I wake up with a sore throat from all the gasping for air I must be doing. I'm hoping weight loss will take care of it.
 

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Did a sleep study last week.

After about 90 mins they woke me up and put me on the machine.

The word they used was "severe".

Blood Oxygen was in the 70% range and even dipped below 70.

Any thoughts, wisdom or advice on a cpap? Mask selection?

I'm interested to hear others peoples experiences of using one and how beneficial it was.

My two cents are as follows...

I was not that chronic..but i do use a cpap machine.

you should spend time picking the mask you like (its a big deal)
dont let them rush you during this process you will regret it later..

I just did what I was told till I found my way to a full good nights sleep.

I wont tell you the feeling of a good night sleep but I will say there will be no doubt in your mind the first time that occurs.

I am answering fast as Im at work but if you have any questions feel free to shoot them my way
 

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VERY beneficial. You'll definitely know it when you begin to get 'real' sleep. I've been on CPAP since 2005, and I almost can't fall asleep without it - it's my blankie in my old age! ;)

I was having 75-80 events per hour when I was first diagnosed and was put on 9cc pressure. I've since had a new sleep study and pressure was raised to 12cc. Medicare bought me a new machine when they took over my medical care, so I now have a machine at bedside, and also one by my napping chair. :cool:

You may need several tries at getting the right mask - I started out with a full face mask because they thought my allergic rhinitis might cause nasal congestion resulting in mouth-breathing. I did okay with that mask, but because mouth-breathing was never a problem, I later switched to a nasal mask and still use it. I've tried nasal pillows, but those didn't work as well for me. There are also size gradations of the various masks, so you may need a little trial & error there too.

Just be sure you get a good seal when you adjust the mask, because there shouldn't be any hissing or feeling of air blowing in your face - it should be quiet. Apparently many patients prefer the ramping option which starts you out at lower pressure & gradually increases as you fall asleep. I've never cared for that myself - I'd rather have full pressure from the get-go.

I've been on it so long that I'm prob'ly forgetting things, but several others here also use CPAP, and they'll come along to fill out the story. Just be patient and let yourself grow accustomed to it - I think your CPAP will become another of your best friends, right behind your glucose meter! :D
 

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I was diagnosed with sleep apnea before diabetes. My blood oxygen was actually dropping below 40%. I had an APAP machine paid for via my work insurance, so my pressure has dropped from 14 to 9 since my diabetes diagnosis and subsequent LCHF diet. I think I was experiencing a lot of inflammation due to the high BG. Anyway, I love my mask and machine now and don't notice them at all. Get a professional to fit you.
 

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I was diagnosed with sleep apnea before diabetes. My blood oxygen was actually dropping below 40%. I had an APAP machine paid for via my work insurance, so my pressure has dropped from 14 to 9 since my diabetes diagnosis and subsequent LCHF diet. I think I was experiencing a lot of inflammation due to the high BG. Anyway, I love my mask and machine now and don't notice them at all. Get a professional to fit you.
well Silvertiger..you just made me realize I need to go get mine reduced. i was diagnosed sleep apnea 10 plus years before diabetic
but i wasn't heavy then either..anyhow I do believe i need some type of adjustment

Thanks
 
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Discussion Starter #7
I called my doctor. It's been a week and she hasnt received the results. She's going to track them down so we can get going with this. Not entirely sure what the process is for getting the machine approved / ordered / setup but we'll get it figured out.

After the sleep study the tech said she adjusted me as high as 11 before I started fighting it, at the point it started interrupting my sleep.

She gave me a nose piece but it felt hard to exhale so I opted for the full mask although it felt a little small.

This is all new territory.

Thanks for the replies.
 

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I actually did a "take home" sleep study that cost me about $100 from the local sleep apnea equipment place. It's an oxygen meter and breath meter that you wear overnight. It records data that is sent to your doctor. I did that because the wait to get in on the sleep study would be a year, although it would be free.

The full mask is also handy in case you had a cold that plugged your nose. I bought a full mask to have on hand in just that case, so I could sleep.
 

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My diagnosis was the same as Silvertiger's . . . I wasn't insured at that time, so the medical supply company ran oximetry etc., on me at home. Then OWC conferred with my doc & demonstrated for him the horrendous gasping episodes I was having (how in the world do we 'sleep' through these events? They look awful, and yet I had no idea I was having such brutal breathing problems), and doc didn't take much persuading. He wrote the order & the medical supply company took it from there.
 

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I was diagnosed with sleep apnea in 1999 and have been using it every single night ever since. I take my machine every where I go. I can not sleep without it. I had no rem sleep for a long time. I was on my way to a stroke and I was I think 33 and slightly overweight. I stopped breathing 112 times n hour. I could not do the full hour without then putting the machine on me. Like everyone else I had to adjust to the different mask. I got sores, and I had indentations on my face and forehead, but I never stopped wearing the mask. But now its just been to long since I had sleep apnea and I gained a lot of weight since I was first diagnosed 100lbs and so they really are pushing for me to have the surgery, which I won't do. but I have to do something. Anyway, I fully support the use of the Cpap I speak to people all the time about it. Everyone that doesn't use their machines do not live very long. My mother has one she refuses to use it. yet she knows I won't go anywhere without mines. I asked the doctor how would I die, he said a stroke, heart attack in my sleep, they call that natural causes too, hmm go figure. or i will just stop breathing for one minute to long.
so that was all i needed to hear, not that it was ever a problem. The difference can't be beat. Without my mask, i feel like I am drowning.
 

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I was diagnosed 15 years with sleep apnea and given me cpap machine. it was remstar machine. I did not like to use cpap machine. so a friend told me to do anulomvilom pranayam(breathing slowly exercise). taking breath from left and leaving it on the right and reversal. You can find more from internet and youtube. every 6 moths i go to sleep clinic and saw that my point coming down. When it reaches normal i completely stopped cpap mechine. Now i am so lazy and not continuing pranayam at all. But walking time trying to do deep breathing technique.
It is my pure experience.
But for my diabetics this pranayam did not helped at all. Only from you people's guidance on LCHF diet and metformin sr 1g working.
 

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Apnea is caused by the collapse of muscles/tissues behind the tongue allowing the airway to close, and it's hard to imagine how breathing in/out with alternating nostrils would prevent that collapse. The CPAP provides a continuous positive pressure that keeps the airway open - not something slow breathing can do.

And no, CPAP has not helped my diabetes either - it isn't meant to - but I think I'm onto something it IS helping - my hay fever! When I'm awake my nose drips almost constantly, both post and ante-nasal. When I'm asleep with CPAP running, all the dripping stops. Of course the air is filtered through the machine, so allergens are reduced, and there may be other benefits I'm not smart enough to puzzle out. At any rate, it's tempting to mask up and nap the days away, just to rid myself of a runny nose! :rolleyes:
 

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Discussion Starter #13
On my first week of trial. It's going ok, adjusting to the mask but not really sleeping more than 4hrs at a time.

I do feel more rested, I suspect though that I might benefit from more pressure. Think I still snore a little and doesn't feel like enough with the mask on even though there is.a lot of airflow once the seal is broken.

Have to go back in a week, talk with them about it then I guess.
 

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On my first week of trial. It's going ok, adjusting to the mask but not really sleeping more than 4hrs at a time.

I do feel more rested, I suspect though that I might benefit from more pressure. Think I still snore a little and doesn't feel like enough with the mask on even though there is.a lot of airflow once the seal is broken.

Have to go back in a week, talk with them about it then I guess.
Most definitely you should not be snoring. If your snoring either your pressure is to low, or your mask is not secure. I use to have leaks and make all kinds of noise, thank God I never sleep alone, my husband would wake me up, now my daughter will alert me if something is wrong. Its been good with the new mask they have out now, but I still hate it because it just pops off and there is nothing to secure the mask like before, but I have adjusted. It doesn't cause me any sores and irritation like the other mask do and I sleep throughout the night.

I have used my machine for so long, I wouldn't know what to do if they said I was well and I don't need it, I think I would not go to sleep for days afraid. I have had to sleep without a few times and it was a nightmare, a nightmare. I felt like I was struggling to get to the surface, but it was me not breathing but this time it woke me up. It wakes me up now if I drift off to sleep without putting on the mask. I am thankful for my machine. I sleep well, I dream.

The thing is now, when I go to sleep, I go right into rem. I sleep deeply. As soon as I put the mask on say my prayers, I am gone.

As I lose weight I wonder, what is going to happen with my machine, I will go for a sleep study in November and see.
 

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Hey Blaze? Y'know what wakes me up if I doze off without my CPAP? The first long loud HONK I let out, trying to get some air! It would wake the dead! :D :rolleyes:
 

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Yeah, my spouse usually wakes me up if my mask has gotten loose and I've managed to sleep through my snoring/the air squealing through the gaps.

If II dream about drowning or otherwise needing air, I double check my mask fit the next night. A few adjustments takes care of it.

I have also tried tricks like taping my lips shut with medical tape at night (just a small piece, enough to keep your mouth from falling open but little enough that if you needed to open your mouth in an emergency you could.) I have a nose-only mask.
 

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Discussion Starter #17
I had mentioned I thought maybe the pressure was too low, however I did do the sleep study in which they determined 11 as optimal.

Did some research, they gave me the resmed s9 which is arguably the best on the market. It auto detects and adjusts for apnea events.

I know they put it on a 45 min ramp which I will probably turn off next time I use it. I also learned how to display additional data from my previous sleep, so that will be very useful and I can see what pressure it ran, if the mask leaked and how many apnea events it detected.
 

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Sleep apnea as Shanny has said is dangerous and you can stop breathing long enough to not recover. This can also cause strokes.

I am surprised no one has mentioned being fitted by a sleep specialist that fits the mask properly to your face and if necessary fits you with two or three masks to see which fits you best and works if you are laying on your side.

The other thing that has really solved the air leak problem for me can be found here - RemZzzs CPAP Mask Liners You may need to explore the sight to find the one for your mask. I have been using them for several years and do not have air leaks with the nasal mask I use.
Medicare does pay for the mask liners, but my medical insurance before medicare would not.
The mask liners are cloth and help the mask fit better and I have not had nose problems since using them.

I was diagnosed at 116 apneas per hour. I presently have a BIPAP machine which allows for an upper and lower setting and it adjusts automatically to what pressure is needed between the two settings. My settings are 10 (low end) and 15 (upper end) and in the information pulled from the card, my average setting is 12.5 for pressure with excursions between 11 and 15.

Most local sleep equipment stores in my area allow up to 30 days to test a mask and if it does not fit properly it can be exchanged for another mask.

My BIPAP also has a humidifier that is heated or unheated and during the winter I certainly appreciate the humidity as it keeps the nasal passages from drying. During the summer the water is just evaporated as the air passes over it.
 

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Discussion Starter #19
Looking at the history it looks like It's set to 7. Should have been 11 according to the sleep study tech. I go back in a few days for my first follow up. Would like to try a large size mask to see if it fits better. Turned the auto ramp up off today. Was starting at 4.
 

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Robert? I was able to get a box of these mask liners from my local pharmacy, and I'm eternally grateful to you for mentioning them. Not so much for leaks, but during the hot humid months of the year I do fight my mask and it impacts my sleep more than I realized. For the last three nights I've used a liner and have slept a good solid five/six hours without so much as a twitch! I'm a believer! ;)
 
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